16th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
February 26-28, 2017 • Atlanta, GA

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2/27/2017  |   8:00 AM - 9:00 AM   |  Effective Family Engagement: A Panel on the Power to Influence EHDI Systems   |  Centennial Ballroom III & IV

Effective Family Engagement: A Panel on the Power to Influence EHDI Systems

The panel will focus on family engagement within EHDI programs, including experiences of how family engagement can improve the system as well as challenges met and challenges overcome. This presentation will share practical strategies regarding Family Engagement priorities within EHDI systems and how the participants of the conference can enhance their work in this area. Family members from all over the U.S. with diverse life experiences will be represented on the panel.

  • Participants will be able to identify strategies to enhance Family engagement in state/territory systems
  • Attendees will gain the perspective of families on how they can positively impact EHDI systems.
  • Participants will gain skills in how to overcome challenges in ensuring family engagement.

Presentation:
This presentation has not yet been uploaded or the speaker has opted not to make the presentation available online.

Handouts:
Handout is not Available

Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference


Presenters/Authors

Janet DesGeorges (), Hands & Voices, Headquarters, janet@handsandvoices.org;
Janet DesGeorges lives in Boulder, Colorado and is Executive Director of Hands & Voices Headquarters and the P.I. for the FL3 Center. Janet has presented to groups worldwide about the experiences of families as they journey through life with a child with deafness or hearing loss. Ms. DesGeorges received a program certificate from the MCH Public Health Leadership Institute in 2011 at the University of North Carolina – Chapel Hill. As an EHDI Systems advocate, Janet believes in the principles and guiding philosophies of Hands & Voices towards a parent-driven, professionally-collaborative approach when supporting families in the early years. Her areas of interest include Leadership Development for parents who participate in systemic improvement; Deaf Education Reform and Improvement; Children’s Safety and Success(preventing child abuse and neglect); Early Hearing Detection and Intervention Systems; and Parent/Professional partnerships in Quality Improvement processes.

ASHA DISCLOSURE:

Financial - No relevant financial relationship exist.

Nonfinancial - No relevant nonfinancial relationship exist.


Djenne Amal Morris (), Today With Djenne, LLC, djennemorris@gmail.com ;
Djenne-amal N. Morris, M.A., is a national and international parent/professional trainer, facilitator, and motivational speaker. Rooted in her personal experience as a mother of a son with CHARGE Syndrome, she is passionate about empowering families and the professionals who serve them. Her career is dedicated to building an atmosphere of support and diversity, having served as a Family Specialist for the New England and North Carolina Deaf-Blind Projects. She currently holds the role of Family Faculty Advisor for the NC-LEND program at UNC-Chapel Hill. Djenne is married with three children and, alongside her husband, runs a consulting business.

ASHA DISCLOSURE:

Financial - No relevant financial relationship exist.

Nonfinancial - No relevant nonfinancial relationship exist.


Karen Wisinski (), Michigan Hands & Voices, wisinskiK@michigan.gov;
Karen Wisinski lives in Brighton, Michigan, and is mom to two teen boys. The youngest is hard of hearing. Karen is Program Director for Michigan Hands & Voices™, and part of the Michigan team that worked to build membership, an active board, a successful Guide By Your Side™ program, and an ASTra program in less than four years. Karen is the 2014 recipient of The Seaver Vision Award from Hands & Voices Headquarters.

ASHA DISCLOSURE:

Financial - Receives Salary for Employment from Michigan EHDI.   Receives Salary for Employment from Michigan EHDI.  

Nonfinancial - No relevant nonfinancial relationship exist.


Laura Gramer (), Washington Hands & Voices, lobara@gmail.com;
Born and raised just outside of Chicago, Laura moved to Seattle with her husband 17 years ago. Together, they are a proud deaf family raising two deaf sons and a lively three-year-old chocolate labrador. Coming from her deaf upbringing, Laura brings unique perspective that have shaped her lifelong commitment to advocacy and community. Inspired early on by her parents, who instilled the value of the Deaf and Hard of Hearing (DHH) community, she has grown into a strong advocate—for herself, her children, and now the broader community. Laura currently serves as the Board President of Washington State Hands & Voices and has contributed her expertise through numerous advisory roles and board service, including the Alaska Airlines External Advisory Board, the Seattle Commission for People with Disabilities, and several other boards in both Illinois and Washington. She has collaborated with DHH peers, parents, and organizations on legislative efforts to advance access and equity. Her leadership and dedication have been recognized with the Outstanding Community Service Award from HLAA-WA and, most recently, the Marilyn J. Smith Inspiration Award from ADWAS (Abused Deaf Women’s Advocacy Services). At the heart of Laura’s work is a deep commitment to ensuring every DHH child and family feels supported, empowered, and included.

ASHA DISCLOSURE:

Financial -

Nonfinancial -


Mariana Barquet (), Indiana Hands & Voices, mbarquet@health.in.gov;
Mariana Barquet was born and raised in Mexico City, Mexico. She moved to the US in 2004 and married an Indiana native in 2005. She started working as the Hispanic Parent Guide in Indiana in 2015 and has served in that position since. She spearheaded the efforts to start the Educational Advocacy Program under Hands & Voices, ASTra (Advocacy, Support and Training) and became the ASTra Program Coordinator in April 2019, when the Program officially started to operate. Shortly after, she took over the position of the Guide By Your Side Program coordinator as the previous coordinator stepped down. As the Programs Coordinator she oversees all operations of the ASTra and GBYS Programs that provide Parent to Parent support for all families of newly identified children with hearing differences all the way to exit of High School. She was awarded the National Early Hearing Detection & Intervention Family Leadership Award for improving the involvement of the Hispanic families with children with hearing difference in the Early Intervention Program by 11% over this population growth in the State of Indiana through the last 4 years grant period under CDC requirements. She has served in the Hands & Voices Latino Council since 2016 and has presented in the EHDI National Conference, Hands & Voices Leadership Conference, and several state conferences in Indiana. She has a deep passion for supporting families through the different stages of the educational process that often require the parents to become skilled advocates.

ASHA DISCLOSURE:

Financial -

Nonfinancial -