2024 Early Hearing Detection & Intervention Conference
March 17-19, 2024 • Denver, CO
3/13/2022 | 1:00 PM - 4:00 PM | Developing Data Sharing Arrangements between EHDI and Part C to Improve Early Identification and Services | Room 2
Developing Data Sharing Arrangements between EHDI and Part C to Improve Early Identification and Services
Presenters: Haidee Bernstein, Karl White, Evelyn Shaw, Sharon Walsh, and selected EHDI and Part C state staff. As part of program evaluation and quality improvement initiatives, the Centers for Disease Control and Prevention and the Health Resources and Services Administration ask EHDI Programs to respond to data requests related to early intervention. State Part C Programs are required to coordinate and collaborate their child find efforts and ensure the programmatic needs of all eligible children including those who are deaf or hard of hearing are being met. EHDI and Part C state programs often encounter challenges with accessing and sharing early intervention data and rely on collaboration with each other to fulfill requirements and requests to improve outcomes for young children and their families. Therefore, both EHDI and Part C benefit greatly from sharing data to improve their programs, while still protecting the privacy of family information. State EHDI and Part C early intervention programs are engaged in various levels of data sharing. Federal and state agencies recognize the need to increase the quality and frequency of data sharing arrangements between EHDI and Part C to improve early identification and services for young children who are deaf or hard of hearing. This interactive workshop is designed as a working session for state teams of Part C and EHDI Program representatives. Participants will receive information and resources from national technical assistance staff and selected states to assist them in developing and/or enhancing data sharing arrangements. Several new resources from the CDC EHDI Outcomes Committee will be shared as well as a new NCHAM/DaSy/ECTA webpage. Small group discussions will allow state teams and other participants to discuss challenges, share strategies and plan for next steps in their data-sharing activities.
- Participants will increase their understanding of the privacy requirements (e.g. under IDEA, FERPA and HIPAA) and important technical aspects needed to address data sharing.
- Participants will gain knowledge of data sharing arrangements including challenges and strategies from selected states and will share and receive resources on data sharing.
- Participants will have the opportunity to network with other participants and presenters to discuss current state activities and plan for updating or developing data sharing arrangements between EHDI and Part C.
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Presenters/Authors
Karl White
(Co-Presenter), Utah State University, karl.white@usu.edu;
Dr. White is a Professor of Psychology, the Emma Eccles Jones Endowed Chair in Early Childhood Education, and the founding Director of the National Center for Hearing Assessment and Management. He has been the PI or Co-PI for over $50 million of competitively awarded research. His work has been recognized with awards from such diverse organizations as the Deafness Research Foundation, the American Association for Speech Language and Hearing, The Swedish Society of Medicine, and the Alexander Graham Bell Association for the Deaf. He has hundreds of publications and presentations at scholarly meetings, and has been an invited speaker to more than 35 countries. He also serves on many national and international advisory groups for organizations such as the United States Department of Health and Human Services, the World Health Organization, the Institute of Medicine, and the American Academy of Pediatrics.
ASHA DISCLOSURE:
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Nonfinancial -
AAA DISCLOSURE:
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Michelle Garcia
(), MDHHS/EHDI, garciam@michigan.gov;
Michelle Garcia is a licensed audiologist. She obtained her doctorate of audiology from Salus University and has experience as a clinical audiologist and expertise in newborn hearing screening as follow-up consultant for the Michigan EHDI program. Dr. Garcia has coordinated meetings for hearing screening, presented at conferences and in-service trainings, developed program materials and publications, and coordinated follow up efforts with partner organizations and agencies.
ASHA DISCLOSURE:
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• Receives Salary for Employment from MDHHS.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
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Financial relationship with MDHHS.
Nature: Salary.
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No relevant nonfinancial relationship exists.
Elizabeth Seeliger
(Co-Presenter), Department of Health Services, elizabeth.seeliger@dhs.wisconsin.gov;
Elizabeth Seeliger, AuD, is the Wisconsin Sound Beginnings Program Director and has worked as a clinical audiologist in a variety of settings, helping guide children and families through the process of hearing loss diagnosis and intervention. Elizabeth has been a leader in developing a data, tracking and referral system; educational resources for hospitals and providers; and an interactive notebook for parents. Elizabeth spearheaded the initiative to enable Wisconsin homebirth midwives to provide UNHS. Elizabeth has also provided technical assistance and consultation locally and internationally on quality improvement in EHDI systems. Elizabeth served on the board of directors for the WI Chapter of Families for Hands & Voices and Hands & Voices HQ. She is endorsed in Infant, Early Childhood and Family Mental Health.
ASHA DISCLOSURE:
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Lori Wittemann
(Co-Presenter), Department of Health Services, Lori.Wittemann@dhs.wisconsin.gov;
Lori graduated from the University of Wisconsin - Oshkosh with a dual degree in early childhood special education and learning disabilities. She worked in two different county Birth to 3 Programs in Wisconsin; in one as a teacher/service coordinator and director of the other. She has worked at the WI Department of Health Services Birth to 3 Program for seven years to support and monitor the 72 county Birth to 3 Programs.
ASHA DISCLOSURE:
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AAA DISCLOSURE:
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Christine Kometer
(Co-Presenter), Center for Communication, Hearing & Deafness, ckometer@cesa1.k12.wi.us;
Christine Kometer, M.Ed., LSLS Cert. AVEd, is the current Director of Child and Family Services at the Center for Communication, Hearing & Deafness, West Allis, Wisconsin . Chris provides coordination and supervision, and also works within the program as a Child & Family Teacher/Service Coordinator. Chris oversees parent education and counseling services, organizes educational workshops, and leads parent discussion groups. Chris directs and coordinates Child & Family Program activities, as well as sign language classes and social-recreational events. In addition, she has been an Ad Hoc professor at the University of Wisconsin-Milwaukee and has experience providing training to graduate students specializing in education for the deaf and hard of hearing from Gallaudet and other universities. Chris is also involved on many committees throughout the state.
ASHA DISCLOSURE:
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Sharon Walsh
(Primary Presenter), DaSy Center, WALSHTAYLO@aol.com;
Sharon Walsh has provided consultation on the implementation of IDEA for over 30 years. Currently, she is the Governmental Relations Consultant for the Division for Early Childhood of CEC (DEC) and the IDEA Infant and Toddler Coordinators Association (ITCA). Sharon also is a consultant on the federally funded Early Childhood Technical Assistance Center (ECTA) and the Center for IDEA Early Childhood Data Systems (DaSy). In conjunction with her TA Center work, she has provided consultation with CDC EHDI Committee. Previously, she has worked in a large suburban school district, for LRP Publications, and for the National Association of State Directors of Special Education (NASDSE).
ASHA DISCLOSURE:
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No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
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No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
Evelyn Shaw
(Co-Presenter), ECTA Center, evelyn.shaw@unc.edu;
Evelyn Shaw, M.Ed., is a technical assistance specialist at the Early Childhood Technical Assistance (ECTA) Center, FPG Child Development Institute. In her position at ECTA , she supports collaboration between EHDI and Part C state programs and federal partnerships to improve outcomes young children who are deaf or hard of hearing and their families. As a technical assistance specialist with ECTA, she is also the topic specialist on ASD and other disabilities and early identification, works on issues related to child find, especially for underidentified populations, birth to one, and use of data to target improvements. She has worked in technical assistance for 35 years. Her research interests focus on the translation of research on evidence-based interventions and practices to implementation of these practices at multiple levels (e.g., home, community, provider, program, and state).
ASHA DISCLOSURE:
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No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
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No relevant financial relationship exists.
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No relevant nonfinancial relationship exists.
Haidee Bernstein
(Co-Presenter), SRI Education , haidee.bernstein@sri.com;
Haidee Bernstein, Ph.D. is an Early Childhood Researcher/Technical Assistance Specialist with the IDEA Early Childhood Data Center (DaSy) at SRI Education with 26 years of experience as a researcher and TA consultant. She has deep knowledge and expertise about both early childhood special education and school-age special education issues. Dr. Bernstein has provided guidance in the areas of public policy analysis and evaluation; technical assistance to states/localities; design, management, and coordination of state grants for special education; Head Start, Child Abuse Prevention and Treatment Act (CAPTA), Early Hearing Detection Intervention (EHDI) Program and other areas of early childhood. Dr. Bernstein has provided support and guidance to states related to their IDEA data reporting, assisting states at the local, state, and national levels. She has presented at national conferences and has worked with the Centers for Disease Control (CDC) to increase interactions and knowledge between EHDI and IDEA program managers.
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