2024 Early Hearing Detection & Intervention Conference
March 17-19, 2024 • Denver, CO
3/15/2022 | 3:15 PM - 3:40 PM | A Community of Support: Connecting Families of Children Who Are Deaf or Hard of Hearing Plus (DHH+) with Resources and Support | Room 3
A Community of Support: Connecting Families of Children Who Are Deaf or Hard of Hearing Plus (DHH+) with Resources and Support
Parents of children who are deaf/hard of hearing with additional special considerations (DHH+) often report that the supports and resources offered do not specifically address this unique population’s needs. Over 40% of children with deafness or hearing loss have additional special needs. This presentation will share a new parent guide that has been developed so that families can consider communication, language development, social/emotional supports, and resources needed to ensure success. This new document, “A community of support: connecting families of children who are deaf or hard of hearing plus (dhh plus) with resources and support” has been developed by the early hearing detection and intervention (EHDI) parent to parent committee, which is made up of parents of children who are deaf or hard of hearing, as well as a diverse group of professionals, including D/HH adults, who support our families in Early Intervention and beyond. This tool can be used by any family and IFSP team in the country to help facilitate conversations resulting in appropriate supports for families.
- Build self-awareness that leads to a greater ability to partner with families who have children who are DHH+ in order for them to participate successfully in the supports needed for their children.
- Utilize the tool that will be available for families that is geared specifically for this population.
- Empower Family Advocates to ensure that the supports to families with children who are DHH+ are provided with appropriate supports.
Presentation:
3353554_14917CandaceLindow-Davies.pdf
Handouts:
Handout is not Available
Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Janet DesGeorges
(Primary Presenter), Hands & Voices, Headquarters, janet@handsandvoices.org;
Janet DesGeorges lives in Boulder, Colorado and is Executive Director of Hands & Voices Headquarters and the P.I. for the FL3 Center. Janet has presented to groups worldwide about the experiences of families as they journey through life with a child with deafness or hearing loss. Ms. DesGeorges received a program certificate from the MCH Public Health Leadership Institute in 2011 at the University of North Carolina – Chapel Hill.
As an EHDI Systems advocate, Janet believes in the principles and guiding philosophies of Hands & Voices towards a parent-driven, professionally-collaborative approach when supporting families in the early years. Her areas of interest include Leadership Development for parents who participate in systemic improvement; Deaf Education Reform and Improvement; Children’s Safety and Success(preventing child abuse and neglect); Early Hearing Detection and Intervention Systems; and Parent/Professional partnerships in Quality Improvement processes.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
Candace Lindow-Davies
(Co-Presenter), Hands & Voices Headquarters, Candace@handsandvoices.org;
Candace is the mother of an adult son who is deaf plus other health concerns. For 16+ years, she developed and directed parent support services for MN Hands & Voices. May 2017, she became the Director of Outreach for Hands & Voices HQ and has served on the Core Management Team of the Family Leadership in Language in Learning or FL3 Center. She has developed materials for and provided technical assistance/training to family-based organizations in the US, US territories and China. She is passionate about supporting the needs of children/adults who are deaf/hh plus other health issues, creating health and employment equity, as well as ensuring families have access to adults who are deaf and hard of hearing. She is a Core Member of the Fostering Joy project, focusing on the joys of raising children who are D/HH.
ASHA DISCLOSURE:
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Nonfinancial -
AAA DISCLOSURE:
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Nonfinancial -
Michele Berke
(Co-Presenter), California School for the Deaf, mberke@csdf-cde.ca.gov;
Michele Berke has worked for over 30 years in programs within the Deaf community. Her experience includes management of a rest home for deaf and deaf-blind senior citizens, directing Gallaudet University's western regional office, coordinating a US Department of Education funded project to develop an ASL Assessment tool, and teaching college-level Linguistics of ASL courses.
Berke currently works at the California School for the Deaf in Fremont as Principal in the Early Childhood Education Department. Her doctoral studies in Speech, Language, and Hearing Sciences from the University of Colorado in Boulder focused on exploring the shared reading practices of Deaf and hearing mothers and their pre-school children.
ASHA DISCLOSURE:
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Nonfinancial -
AAA DISCLOSURE:
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Nonfinancial -
Terri Patterson
(Co-Presenter), Hands & Voices, terri@handsandvoices.org;
Terri Patterson is the Director of Chapter Support for Hands & Voices, Coordinator of the H&V Leadership-to-Leadership (L2L) Program, and a member of the core management team for Hands & Voices Family Leadership in Language and Learning (FL3) Center. Her passion stems from her family, specifically her son who was born profoundly deaf in 1999. Through her personal experiences raising, supporting and advocating for her son, as well as navigating the systems that support children who are D/HH, she provides perspective, herself, as a hard of hearing adult. Her leadership skills continue to grow as she trains and provides technical assistance to over 50 Hands & Voices Chapters and efforts across North America through one-on-one training, leadership development, state and national conference presentations and national organizational engagement with NAD, NCDB, HRSA.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
Teri Urban
(Co-Presenter), Virginia Hands & Voices, vahandsandvoices@gmail.com;
Terese ‘Teri’ Urban lives with her husband and their three children in Montpelier, Virginia. Her oldest child (13 years old) was identified at birth with bilateral sensorineural non-syndromic hearing loss, commonly known as Connexin 26. Her daughter’s loss was progressive, and she now utilizes bilateral cochlear implants and American Sign Language to understand the world around her. Teri’s passion for bringing deaf and hard of hearing children together and providing resources for families began in Vermont when she successfully resurrected Vermont Hands & Voices. After relocating to Virginia in 2016, she has continued her leadership efforts as Chair for Virginia Hands & Voices. She joined the team at Supporting Success for Children with Hearing Loss in 2022 as Vice President of Advocacy and Parent Outreach to help build a bridge between educators and families and the resources used. Teri is a member of the Virginia EHDI Advisory Committee and sits on the board for numerous local and national committees that focus on the overall success of deaf and hard of hearing children. In her free time, she enjoys reading, traveling, exploring the outdoors, and spending time with loved ones.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.