2024 Early Hearing Detection & Intervention Conference

March 17-19, 2024 • Denver, CO

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3/15/2022  |   10:00 AM - 10:25 AM   |  Direct Referrals - What We've Learned   |  Room 6

Direct Referrals - What We've Learned

Hear from members of our team as they share the latest shifts in providing parent to parent support that they’ve experienced and the variety of tools utilized to provide support to families. Changes in technology, information access and time constraints of families have kept our program on our toes. In addition, our parent to parent support program transitioned in 2020 to receive referrals directly from our state EHDI program. Once we began receiving direct referrals we quickly experienced a shift in the needs and concerns of our incoming families. Join us as we share what we’ve learned about providing parent to parent support within the baby's first year.

  • Compare the shift we’ve seen in the needs of families with children who have a child who is deaf/hard of hearing since receiving referrals directly from our state EHDI program.
  • Summarize the feedback the parent to parent support team has experienced working directly with parents of children who are deaf/hard of hearing.
  • Identify at least 3 tools our parent to parent support team utilizes while working directly with families.

Presentation:
3353554_14986CarrieBalian.pdf

Handouts:
Handout is not Available

Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference


Presenters/Authors

Carrie Balian (Primary Presenter), Illinois Hands & Voices Guide By Your Side, cbalian6@outlook.com;
Carrie Balian is the mother of five children. Her oldest child, Jack, was born deaf. Carrie and her husband, Andre, have been married for over 25 years and reside in Island Lake, IL. She has been the Coordinator of her state Parent to Parent support program, IL Hands & Voices Guide By Your Side (GBYS) for over 13 years. In continuing her ventures of representing families of children that are deaf and hard of hearing, Carrie has presented to groups nationwide and co-authored several publications including the NCHAM e-book. Carrie is currently serving as a board member on the Illinois Universal Newborn Screening Advisory Council and Illinois Hands & Voices. She is also an editor for JEHDI (Journal of Early Hearing Detection & Intervention) publications, participated on the Illinois Universal Newborn Hearing & Screening Advisory Board and Illinois Deaf Task Force. She has also participated as a parent professional on the NICHQ (National Institute for Children’s Healthcare Quality) national and statewide learning collaborative teams. In 2021, Carrie graduated from the Hands & Voices L2L (Leadership to Leadership) development cohort and in 2022 was awarded the EHDI Family Leadership Award. Carrie had the pleasure of participating in two national projects: FEHDI (Family EHDI) to help determine data points and definitions for family-based organizations for grant reporting purposes and VSV/Virtual Site Visit team that created materials and information to help support families before and after newborn hearing screening and the hospital teams that carry out newborn hearing screening. Carrie has also been recognized and awarded both nationally and locally for her support, commitment, and leadership in the field. Her educational background includes a bachelor’s degree in Marketing and Management.


ASHA DISCLOSURE:

Financial -
No relevant financial relationship exists.

Nonfinancial -
No relevant nonfinancial relationship exists.

AAA DISCLOSURE:

Financial -
No relevant financial relationship exists.

Nonfinancial -
No relevant nonfinancial relationship exists.