2024 Early Hearing Detection & Intervention Conference
March 17-19, 2024 • Denver, CO
3/15/2022 | 10:35 AM - 11:00 AM | Equality Through Direct Referrals to Parent to Parent Support | Room 6
Equality Through Direct Referrals to Parent to Parent Support
Increasing our parent to parent support intakes by 228%, creating two new program roles and achieving jaw dropping data towards equitable family support across Illinois are what can arise from a parent to parent support program uniting with a state EHDI program through a formal business agreement. HRSA (Health Resources and Services Administration) recommends parent to parent support no later than 6 months of age. How do you achieve this important benchmark when the support program is not built into the state EHDI program? We will discuss the diversity transition a parent to parent support program experienced after shifting from an opt-in to opt-out program due to the business agreement with the state EHDI program. Join us as we share our rollout timeline, implementation recommendations, vetted data collection elements and findings from the first year.
- Identify steps in the timeline that lead to an EHDI program partnering with and referring to a parent to parent support program.
- Develop parent to parent support services data governance and standardization for reporting and quality improvement initiatives.
- Recognize at least five domains that impact parent to parent support equality from direct referrals.
Presentation:
3353554_14989CarrieBalian.pdf
Handouts:
Handout is not Available
Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Ginger Mullin
(Co-Presenter), Illinois Department of Public Health, ginger.mullin@illinois.gov;
Dr. Ginger Mullin has a Bachelor’s degree Communication Disorders. She also holds a Master’s and Doctoral degree in Audiology. She has worked in pediatric audiology and the EHDI system since 1995 and became Illinois’ EHDI coordinator in 2005. During that time she has been the principal investigator for both the Health Resources and Services Administration (HRSA) and Centers for Disease Control and Prevention (CDC) grants/ cooperative agreements. She has received specific training in pediatrics, public health, data management and Continuous Quality Improvement (CQI). As the EHDI Coordinator, Dr. Mullin has worked at the state and national level to promote newborn hearing screening, audiology diagnostics, targeted intervention, family-to-family support, stakeholder education and ongoing surveillance through age 3. She has presented regionally and nationally on pediatric assessment, amplification, the EHDI system of care, and partnering with families She has been part of the leadership teams for the Newborn Hearing Screening Training Curriculum (NHSTC), EHDI-PALS, Virtual Site Visit Project (VSV), as well as the national EHDI Meeting. She has severed in many capacities, including the President for the Directors of Speech and Hearing Programs in State Health and Welfare Agencies. She is the co-leader of EHDI Chats a national forum for EHDI Coordinators to meet monthly and share seamlessly while stealing shamelessly from one another to enhance state programs. She has been nominated several time for the Antonio Maxon Award at the National EHDI Meeting and received the Seaver Vision Award. Dr. Mullin was also a key leader for the EHDI and GBYS program which received the Generating Real Action by Cultivating Engagement (GRACE) Award from Expecting Health and Baby’s First Test. Dr. Mullin sits on the Illinois Universal Newborn Screening Advisory Committee and the Illinois Interagency Council on Early Intervention to guide work for children with low-incidence sensory disabilities.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
Financial relationship with Illinois Early Hearing Detection and Intervention Program .
Nature: The EHDI program is funded by HRSA and CDC.
Nonfinancial -
No relevant nonfinancial relationship exists.
Carrie Balian
(Primary Presenter,Co-Presenter), Illinois Hands & Voices Guide By Your Side, cbalian6@outlook.com;
Carrie Balian is the mother of five children. Her oldest child, Jack, was born deaf. Carrie and her husband, Andre, have been married for over 25 years and reside in Island Lake, IL. She has been the Coordinator of her state Parent to Parent support program, IL Hands & Voices Guide By Your Side (GBYS) for over 13 years. In continuing her ventures of representing families of children that are deaf and hard of hearing, Carrie has presented to groups nationwide and co-authored several publications including the NCHAM e-book. Carrie is currently serving as a board member on the Illinois Universal Newborn Screening Advisory Council and Illinois Hands & Voices. She is also an editor for JEHDI (Journal of Early Hearing Detection & Intervention) publications, participated on the Illinois Universal Newborn Hearing & Screening Advisory Board and Illinois Deaf Task Force. She has also participated as a parent professional on the NICHQ (National Institute for Children’s Healthcare Quality) national and statewide learning collaborative teams. In 2021, Carrie graduated from the Hands & Voices L2L (Leadership to Leadership) development cohort and in 2022 was awarded the EHDI Family Leadership Award. Carrie had the pleasure of participating in two national projects: FEHDI (Family EHDI) to help determine data points and definitions for family-based organizations for grant reporting purposes and VSV/Virtual Site Visit team that created materials and information to help support families before and after newborn hearing screening and the hospital teams that carry out newborn hearing screening. Carrie has also been recognized and awarded both nationally and locally for her support, commitment, and leadership in the field. Her educational background includes a bachelor’s degree in Marketing and Management.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
Gabrielle Bires
(Co-Presenter), Illinois Department of Public Health / Early Hearing Detection and Intervention, Gabrielle.bires2@illinois.gov;
Gabrielle Bires is a Social Service Program Planner for the Illinois Department of Public Health EHDI Program. She received her Bachelor of Science degree in Public Health with a concentration in Health Care Planning and Administration from the University of Illinois at Urbana-Champaign. Ms. Bires received her Masters of Science Degree in Health Informatics with a concentration in health data science from the University of Illinois at Chicago. She is currently working on her Health Disparity Research certificate through the University of Illinois at Chicago.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
AAA DISCLOSURE:
Financial -
Nonfinancial -