2024 Early Hearing Detection & Intervention Conference
March 17-19, 2024 • Denver, CO
3/15/2022 | 10:00 AM - 11:00 AM | Increasing Medical Provider Knowledge of Childhood Hearing Differences: An Opportunity for Interdisciplinary and Cross State Collaboration | Room 2
Increasing Medical Provider Knowledge of Childhood Hearing Differences: An Opportunity for Interdisciplinary and Cross State Collaboration
This session will be conducted as a participatory workshop to elicit the feedback of EHDI stakeholders and explore opportunities for collaboration in advancing medical home care of children who are deaf or hard of hearing (DHH). Participation will inform an ongoing project on improving medical provider knowledge in caring for DHH children and provide an opportunity for future collaboration.
Despite the high incidence of childhood hearing differences, primary care providers (PCP) report feeling ill-equipped to care for DHH children, while parents of DHH children report turning to their PCPs for guidance after a new diagnosis of a hearing difference (Dorros et al 2007; Li et al. 2003). Given this knowledge gap, we developed an Open Pediatrics curriculum for medical providers, including pediatricians, nurses, nurse practitioners, physician assistants, and nurse midwives, who interact with and care for children who are DHH. Open Pediatrics is an online platform of peer reviewed content that is available internationally on many pediatric related topics (https://www.openpediatrics.org/aboutus). Subscription is free and verified users may receive Continuing Medical Education (CME) credit for their participation.
The first module we developed provides an overview of early hearing detection, language development, and interventions. Future modules will expand upon Deaf culture, hearing technologies, genetics, and family and patient perspectives. The purpose of this workshop is to build on the module already created by identifying opportunities for improving the education of medical professionals related to caring for DHH children across states and EHDI systems, developing tools for curriculum evaluation, and brainstorming collaborative applications of a virtual curriculum to advance the care of DHH children.
By creating an accessible online module housed in a widely used and accredited academic platform, we seek to increase community knowledge of key topics related to caring for children who are DHH and ultimately improve developmental outcomes.
- Identify two or more areas in need of improved education for medical providers in the community related to caring for DHH children
- Develop two or more strategies for evaluating the effectiveness of a curriculum on caring for DHH children
- Brainstorm three or more collaborative project ideas across states and disciplines to improve provider knowledge of EHDI systems
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Presenters/Authors
Arielle Spellun
(Primary Presenter), Division of Developmental Medicine, Arielle.Spellun@childrens.harvard.edu;
Arielle Spellun is a developmental and behavioral pediatrician fellow at Boston Children's Hospital in Boston, MA. She is from Warwick, RI and went to the University of Pennsylvania in Philadelphia, PA for her undergraduate degree in Biology where she also studied ASL and Deaf Studies. She attended medical school at the Sidney Kimmel Medical College of Thomas Jefferson University. She hopes to practice developmental and behavioral pediatrics and work as a medical home provider for children who are d/Deaf and hard of hearing as well as children with special health care needs and medical complexity.
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Sarah Stone
(Co-Presenter,Co-Author), MA Dept. of Public Health, sarah.stone@state.ma.us;
Sarah Stone is the Director of the Massachusetts Universal Newborn Hearing Screening Program. She has a hearing loss and has been with the program for over 20 years. She has developed programming for families, including social and educational events. She is a member of the state's Universal Newborn Hearing Screening Advisory Committee.
ASHA DISCLOSURE:
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No relevant financial relationship exists.
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No relevant nonfinancial relationship exists.
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No relevant financial relationship exists.
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No relevant nonfinancial relationship exists.
Amy Szarkowski
(Co-Presenter,Co-Author), Children's Center for Communication/Beverly School for the Deaf, amyszarkowski@cccbsd.org;
Amy Szarkowski, PhD, is the Director of The Institute at the Children's Center for Communication/ Beverly School for the Deaf (CCCBSD), and faculty for LEND (Leadership Education in Neurodevelopmental and related Disabilities), at Boston Children's Hospital. She is a Research Fellow at the Institute for Community Inclusion at the University of Massachusetts Boston.
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• Receives Salary for Employment from CCCBSD.
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No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
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Financial relationship with Children's Center for Communication/Beverly School for the Deaf and University of Massachusetts Boston.
Nature: Employment.
Nonfinancial -
No relevant nonfinancial relationship exists.
Jane Stewart
(Co-Presenter,Co-Author), BIDMC, jstewart@bidmc.harvard.edu;
Jane Stewart, M.D. is the MA AAP EHDI Chapter Champion. She has been an integral, founding member of the MA EHDI program and has served as a Universal Newborn Hearing Screening Advisory Committee member for many years. She continues to strive to optimize early access to communication for children with reduced hearing. Her publication “Hearing Loss in Pediatrics: What the Medical Home Needs to Know” as authored with colleague Jennifer Bentley, AuD. is referenced below. 1
1 Stewart J, Bentley J. Hearing Loss in Pediatrics: What the Medical Home Needs to Know. Pediatr Clin N Am 66(2019)425-436.
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Jennifer Fleming
(Co-Presenter), MA DPH, jennifer.fleming@state.ma.us;
Jennifer Fleming is the special projects coordinator for the Universal Newborn Hearing Screening Program. In her former career, she was an engineer working in the medical device industry. She now has two children including a 13-year-old son who is deaf. Her new passion is to serve and support deaf and hard of hearing children and their families. She is a member of the state's Universal Newborn Hearing Screening Advisory Committee. She recently completed her fellowship with the Shriver Center’s Leadership Education in Neurodevelopmental and Disabilities Program (LEND) at the University of Massachusetts Medical School.
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