2024 Early Hearing Detection & Intervention Conference
March 17-19, 2024 • Denver, CO
| Benefits of Family-Centered Intervention in Children with CHARGE
Benefits of Family-Centered Intervention in Children with CHARGE
Early childhood is a critical, yet potentially and stressful time for a parent of a child with CHARGE syndrome. However, an interdisciplinary team of professionals (physical therapist, occupational therapist, speech-language pathologist, early interventionist, teacher of the deaf, etc.) can make a positive impact on the child’s overall development. CHARGE syndrome presents challenges across a range of sensory domains. Individuals with CHARGE may experience: vision loss, balance disturbances, decreased or absent sense of smell and tasted, tactile defensiveness, and diminished interoception (understand and feel what’s going on inside of your body).
Family-centered and relationship-based care will benefit families of children with CHARGE syndrome. To effectively support young children and their families through family-centered care, consistent collaboration of effective interprofessional teams who share information and solve problems, will be necessary. Interprofessional collaboration is critical in ensuring successful outcomes for children diagnosed with CHARGE syndrome.
- Identify possible presentations of CHARGE syndrome by recognizing common characteristics experienced by young children with this diagnosis.
- Describe the potential impact of early intervention to promote positive development.
- Explain opportunities for interprofessional collaboration to best support families of children with CHARGE syndrome.
Presentation:
3353554_15103MadeleineMayer.pdf
Handouts:
Handout is not Available
Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Madeleine Mayer
(Primary Presenter), Fontbonne University, mmayer02840@fontbonne.edu;
Madeleine Mayer, B.S. is a Speech-Language Pathology graduate student at Fontbonne University, where she has received OSEP-funding to specialize in the provision of family-centered early intervention for children who are deaf/hard of hearing and their families. Mayer, is interested in cognitive, communication, and physical (vision and hearing) development and seeks to serve the pediatric population upon graduation.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
AAA DISCLOSURE:
Financial -
Nonfinancial -