2024 Early Hearing Detection & Intervention Conference
March 17-19, 2024 • Denver, CO
| Virtual Resources Created to Enhance Family-Centered Care for Families Navigating Childhood Hearing Loss and Hearing Technology
Virtual Resources Created to Enhance Family-Centered Care for Families Navigating Childhood Hearing Loss and Hearing Technology
The excitement and hope that new parents feel can quickly become uncertainty and fear when they learn that their baby has hearing loss. Approximately 90% of children with hearing loss are born to parents with normal hearing. This fact implies that for most parents, this is their first time thinking about what it means to have hearing loss or use hearing assistive technology. Research shows that early intervention is crucial for achieving the best outcomes in language development. In children ages birth to 3-years-old, parents bear the responsibility of ensuring proper access to language. For children with hearing loss, early intervention must occur to facilitate language development. Typically, identifying hearing loss and determining appropriate intervention requires multiple clinical visits where parents are inundated with new information and unfamiliar terms. At each appointment, clinicians are navigating time constraints and varying levels of health literacy in efforts to describe the child’s level of hearing, identify reasons for hearing loss, discuss opportunities for intervention, and predict outcomes and expectations. At the end of the visit, parents are given a brief moment to ask questions then sent home until their follow-up visit. The purpose of this project is to create family-centered resources to facilitate learning and provide more efficient counseling for those caring for children with hearing loss. Currently, 25 custom-made videos related to hearing, hearing loss, hearing aid use, and communication have been created with consideration of individual learning style, language fluency, cognition, and level of hearing and vision. An additional 23 topics have been identified to better serve pediatric patients and families. All resources are hosted on the project’s website, Access Audiology (www.access-audiology.com), for free and unrestricted use. This session will specifically showcase pediatric resources and promote dissemination of this online tool for all families, clinicians, and related professionals in attendance.
- Individuals will be able to describe the importance of accessible, virtual resources for parents of children with hearing loss.
- Clinicians will be able to integrate a collection of online resources into their routine audiology practice for improved family-centered care and education.
- Families will be able to utilize resources showcased in this presentation to enhance their understanding of hearing loss and management of hearing technology.
Presentation:
3353554_15113ErinKaufmann.pdf
Handouts:
Handout is not Available
Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Erin Kaufmann
(Primary Presenter,Author), erkaufmann@chla.usc.edu;
ASHA DISCLOSURE:
Financial -
Nonfinancial -
AAA DISCLOSURE:
Financial -
Nonfinancial -
Nicolette Dome
(Co-Presenter,Author,Co-Author), San Diego State University/University of California, San Diego, NDome@mednet.ucla.edu;
Currently a fourth year student of the San Diego State University/University of California, San Diego joint doctoral program in Audiology. Currently completing a fourth year externship at the University of California, Los Angeles.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
AAA DISCLOSURE:
Financial -
Nonfinancial -
Alison Grimes
(Co-Author), Audiology, RR UCLA Medical Center, AGrimes@mednet.ucla.edu;
A variety of presenters across audiology, medicine, early intervention and related fields will present.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
AAA DISCLOSURE:
Financial -
Nonfinancial -
Melanie Fruhner
(Co-Author), mfruhner@chla.usc.edu;
ASHA DISCLOSURE:
Financial -
Nonfinancial -
AAA DISCLOSURE:
Financial -
Nonfinancial -
Eun Kyung (Julie) Jeon
(Co-Author), The University of Iowa, eunkyung-jeon@uiowa.edu;
Eun Kyung (Julie) Jeon, Au.D./Ph.D. is a Clinical Assistant Professor in Communication Sciences and Disorders at the University of Iowa. She received her Au.D. in 2008 and Ph.D. in hearing science in 2016 from the University of Iowa. Her research and clinic interests are in aural (re)habilitation for children and adults with hearing aids and cochlear implants. She is a reviewer for journals including Ear and Hearing and Cochlear Implant International. She is a member of the American Academy of Audiology (AAA), the American Cochlear Implant Alliance (ACIA), the American Speech-Language-Hearing Association (ASHA), the Iowa Speech-Language-Hearing Association (ISHA), and the Asia Pacific Society of Speech-Language-Hearing (APSSLH). Currently, she serves as an educational committee officer for the APSSLH, a Member-at-Large for the ISLH Foundation, a program committee member for the CI2023 conference, and an Iowa’s EHDI Advisory Board representative for the ISHA.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
AAA DISCLOSURE:
Financial -
Nonfinancial -
Amanda Tyree
(Co-Author), Children's Hospital Los Angeles, atyree@chla.usc.edu;
Amanda Tyree, M.A, CCC-SLP is a licensed speech-language pathologist and Clinical Assistant Professor of Pediatrics [Clinician-Educator] through the Keck School of Medicine of University of Southern California. She is the lead SLP within the Community Mental health program at Children’s Hospital Los Angeles and is the Discipline Director for Speech-Language Pathology for the CA-Leadership in Education and Neurodevelopmental and Related Disabilities (LEND) program. Ms. Tyree works on several interdisciplinary teams and provides training to interdisciplinary audiences on communication development and disorders and topics related to bilingual language development.
ASHA DISCLOSURE:
Financial -
• Receives Salary for Employment from USC.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
Financial relationship with University of Southern Californi.
Nature: Employed and receive a salary.
Nonfinancial -
No relevant nonfinancial relationship exists.
Alexis Deavenport-Saman
(Co-Author), Children's Hospital Los Angeles, adeavenport@chla.usc.edu;
Alexis Deavenport-Saman, DrPH, MPH is a Public Health Research Scientist and an Assistant Professor of Clinical Pediatrics at USC who specializes in maternal and child health, social and behavioral health sciences, and the translation of evidence-based interventions into clinical practice. She researches maternal and child health disparities and health outcomes in vulnerable populations, including at the population-level, such as children with developmental disabilities, children involved with the child welfare system, and children with obesity. Dr. Deavenport-Saman works to promote health equity by conducting research and enhancing systems of care to establish linkages between children, their families, and local, state, and national-level programs. For instance, as the Audiology Program Director, she is working to increase the early hearing detection and intervention system’s capacity by partnering with health providers and programs to focus on timely screening, diagnosis, and enrollment into early intervention to promote optimal developmental outcomes for infants and children. She has also served a PI, Co-investigator or Director on NIH, CTSI, HRSA, and MCHB-funded grants. She has authored or co-authored numerous peer-reviewed publications, reviews, and book chapters.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
Financial relationship with Children's Hospital Los Angeles; USC Keck School of Medicine.
Nature: N/A.
Nonfinancial -
Non-Financial relationship with Children's Hospital Los Angeles; USC Keck School of Medicine.
Nature: N/A.
Douglas Vanderbilt
(Co-Author), Children's Hospital Los Angeles, dvanderbilt@chla.usc.edu;
Dr. Vanderbilt is the Division Chief, Developmental-Behavioral Pediatrics (DBP) at Children’s Hospital Los Angeles (CHLA) and a Professor of Clinical Pediatrics (Educational Scholar) at Keck School of Medicine and Occupational Science/Occupational Therapy at University of Southern California (USC). He is the CA-Leadership Education in Neurodevelopmental Disabilities Program Director.At USC and CHLA, he attained a KL2 Mentored Career Development Award to study the outcomes of High-Risk Infants (HRI) and has contributed to over 90 manuscripts, policy statements, editorials, and chapters. He also has been a Co-I on over 5 NIH grants. He co-leads the Saban Institute's Best Starts to Life strategic priority. He is a site PI for the Developmental-Behavioral Pediatrics Research Network (DBPnet), which is the only national professional society devoted exclusively to DBP disorders. As ACGME DBP fellowship director, he has graduated 13 DBP fellows and is partnering across the pediatric residency programs of the Los Angeles basin. As the medical director of the Newborn Follow-up clinic at CHLA, he has led the effort to bring an interdisciplinary team of staff together to enhance the parent-infant relationship of NICU graduates. Dr. Vanderbilt was an executive committee member for the Council on Early Childhood with the AAP. He serves as a member of the subboard for DBP with the American Board of Pediatrics and permanent member of the NICHD Biobehavioral and Behavioral Sciences (CHHD-H) Study Section. He is the Pediatric Academic Society liaison for the Society for Developmental-Behavioral Pediatrics and on the leadership team for the Health Equity Node of DBPNet. He holds active membership in the American Pediatric Society and Society for Pediatric Research.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
AAA DISCLOSURE:
Financial -
Nonfinancial -