2024 Early Hearing Detection & Intervention Conference
March 17-19, 2024 • Denver, CO
3/06/2023 | 2:30 PM - 3:00 PM | Congenital CMV: A Parental Perspective on Hearing Loss In Children and EHDI Benefits | DECC 207/208
Congenital CMV: A Parental Perspective on Hearing Loss In Children and EHDI Benefits
Congenital CMV (cCMV) in infants continues to be the number one non-genetic cause of hearing loss in children, yet is relatively unheard of amongst the general population. In 2018, as a first time parent, the long term outcome of having a child diagnosed with cCMV was overwhelming. Our son was born with sensorineural hearing loss and it was a confusing path to navigate. Thanks to EHDI we were aware of the damage already done to our son's hearing and were able to immediately take steps to get channels of care lined up to take care of his progressive loss. This presentation will highlight the lifelong impacts of cCMV on families and the importance of EHDI in newborns, with the intention to offer insight on services that benefit families in similar situations.
- Participants will be able to explain the potential effects that cCMV has on a child's hearing.
- Participants will be able to better identify what resources within EHDI would be helpful for families who have children effected by hearing loss.
- Participants will be able to justify the importance of EHDI services in children diagnosed with cCMV.
Presentation:
3420032_15565MirandaDiaz.pdf
Handouts:
Handout is not Available
Transcripts:
3420032_15565MirandaDiaz.docx
Presenters/Authors
Miranda Diaz
(Primary Presenter), National CMV Foundation, nationalcmvfohio@gmail.com;
Miranda Diaz is a mother of a 4 year old diagnosed with congenital cytomegalovirus (cCMV) at birth. She has been the primary care provider for her son through the health battles he has endured since he was born in 2018. She recently began advocating as the Ohio Alliance Chair with the National CMV Foundation to help bring awareness, community and education to her state.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
AAA DISCLOSURE:
Financial -
Nonfinancial -