| Presenter Information: |
| Presenter 1: |
Name: Miranda Perdue
Affiliation: WI Dept. of Health Services
Miranda is the data tracking and coordination project manager for the Wisconsin Sound Beginnings (WSB) Program. (WSB is the name of the statewide Early Hearing Detection and Intervention program in the Division of Public Health.) Miranda's introduction to the deaf and hard of hearing community began as a technical support representative at Ultratec, Inc.--a leading manufacturer of telecommunication devices for the deaf and hard of hearing. She gained a background in software development, data management, reporting and data models while working as a technical trainer for the electronic medical record company Epic Systems Corporation.
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| Presenter 2: |
Name: Elizabeth Seeliger
Affiliation: WI Dept. of Health Services
Elizabeth has worked as a clinical audiologist in a variety of settings, helping to guide children and families through the process of screening, diagnosis and intervention of hearing loss. She is now the Wisconsin Sound Beginnings Program Director. As the Director of the Wisconsin EHDI Program, Elizabeth has played a leadership role in the development of a data, tracking and referral system, developed educational resources for hospitals, audiologists, and families, facilitated the development of a comprehensive guide for providers, and an interactive notebook for parents. Elizabeth has also spearheaded the initiative to enable WI home birth midwives to provide UNHS. Elizabeth sits on the board of directors for both the WI and National Chapters of Families for Hands & Voices, and the Directors of Speech and Hearing Programs in the State Health and Welfare Agencies (DSHPSHWA).
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| Abstract Information: |
| Title: |
Developing a Statewide Web-Based EHDI Tracking and Referral System |
| Primary Track: |
5-Follow-up, Tracking, and Data Management
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| Keyword(s): |
data, web-based tracking, reporting, program integration |
Abstract: |
Data collection and tracking is an integral part of every successful statewide EHDI program, and has the potential to become a centralized safety net to prevent loss to follow-up. Methods vary from state to state and range from paper-and-pencil systems to custom-built software applications. The Wisconsin Sound Beginnings program uses a custom web-based application to track every birth in the state through screening and diagnosis, and is in the process of integrating with the state’s Early Intervention program to complete data tracking through the EHDI continuum. This presentation will include a simulation of the system, and will highlight enhancement plans for referring children to Early Intervention, as well as the tracking and reporting of children with hearing loss risk factors. Discussion will include advantages, lessons learned, and possibilities when building a system like Wisconsin’s. This discussion will touch on reporting, data consistency, program integration, resources and costs involved, and user training and cooperation. States will gain an understanding of the development, implementation, and enhancement process of a statewide web-based EHDI system, as well as learn what steps a state program may need to take if they are interested in building a similar system. |
| Presentation(s): |
Not Available
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| Handouts: |
Not Available
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