| ABSTRACT INFORMATION |
| Presenter Information: |
| Presenter 1: |
Name: Thalia Wood
Affiliation: State of Alaska
Thalia Wood has a Master of Public Health degree from Loma Linda University which she received in 2001. Her emphasis of study was Maternal Child Health. She began work with the State of Alaska, Dept of Health and Social Services in February 2001 starting in the Section of Epidemiology with the Cancer Registry and then becoming the Newborn Metabolic Screening Program Manager in the Section of Maternal Child and Family Health in December 2001. Prior to this time, Thalia worked in medical laboratories in Colorado, Iowa, and Alaska. She has more than 30 years of experience in the medical laboratory field.
In May 2006 she was promoted to Manager of the Children’s Health Unit where she continues to manage the metabolic screening program as well as provide supervision to the managers of the Early Hearing Detection and Intervention (EHDI) program, the Genetics Clinics, and the Specialty Clinics.
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| Presenter 2: |
Name: Lura Daussat
Affiliation: OZ Systems
Lura Daussat, MPH, serves as a program coordinator for OZ Systems, a child-centric information management solution company. Her role is to implement and support US and international newborn screening programs and interpret the business needs of OZ Systems’ customers to the company’s software development and analysis teams. She works closely with Health Departments as they introduce information management solutions for Newborn Screening and Early Hearing Detection and Intervention programs. She has trained nurses, audiologists, and public health department staff on the use of the software and conducted train the trainer sessions for programs across the country.
Prior to joining OZ Systems, Lura completed her BS in Biology at the University of North Texas then served as a United States Peace Corps Volunteer in Ghana, West Africa. She then earned a Master of Public Health at Tulane University School of Public Health and Tropical Medicine in International and Health Development.
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| Author Information: |
| Author 1: |
Name: Thalia Wood
Affiliation: State of Alaska
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| Abstract Information: |
| Title: |
The Alaska EHDI and Bloodspot Database Integration Project |
| Primary Track: |
5-Follow-up, Tracking, and Data Management
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| Keyword(s): |
information management, data management, follow-up, tracking |
Abstract: |
In January 2008, the State of Alaska enacted a legislative mandate for newborn hearing screening. At the same time, the state expanded the web-based database to electronically import newborn bloodspot results from the Oregon Public Health Laboratory and link them with newborn hearing screening results. The integration provided an opportunity to have a child-centric record that maintained information on both programs.
The integration of an information management system for NBS and EHDI functions as a cross-check for State, hospital staff and community-service providers who participate in both child health programs. As child health staff prepared for the integration, they identified data elements to use when matching newborn dried bloodspot screens to hearing screening data. With the development of the system, processes were modified in both programs to ensure confidentiality of health data for each program.
As the process continued, modifications were made to the information system to meet the needs of the program staff. This presentation will review the lessons learned and the steps and occasional missteps taken, and make recommendations to facilitate integrating these public health information systems. This evidence supports the importance of integrated newborn hearing and bloodspot screening data management which helps ensure newborns receive screening and follow-up for both programs. |
| Presentation(s): |
Not Available
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| Handouts: |
Not Available
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