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ABSTRACT INFORMATION
Title: 'Redefining EHDI National Surveillance Through Individual-Level Data: Results From the iEHDI Pilot Project' Track: 6 - Follow-up, Tracking and Data Management Keyword(s): Data, Standardization, Quality Improvement, Assessment Learning Objectives: Describe the benefits of collecting, reporting, and analyzing individual-level EHDI data Explain how individual level data can be can be used to address loss to follow-up and other issues Abstract: Individual-level data is a critical component in the effort to ensure children with hearing loss are identified and receive recommended follow-up services. The collection, reporting, and analysis of individual-level data makes it possible to more accurately document the services children are receiving and assess performance of the tracking and surveillance system. Programs at the local, state, and federal levels routinely collect data throughout the EHDI process but there are often differences in how this information is analyzed and reported. In addition, the data collected by the CDC are aggregated, which limits the ability to standardize reported data at the national level and conduct detailed analysis. To address these limitations, the CDC conducted a pilot project in collaboration with Indiana, Iowa, and Nebraska to redefine their approach to national surveillance through the collection of limited sets of individual-level data. The successful pilot has generated more complete and detailed information about the documentation of EHDI services and ways to improve state-based surveillance systems. Linking this information with other national data sets made it possible to identify specific factors impacting service provision at the state level. During this presentation the benefits of reporting individual-level data through this pilot and findings about how this data can be used to address loss to follow-up and other issues will be discussed. Presentation: This presentation has not yet been uploaded or the speaker has opted not to make the presentation available online. Handouts: Handout is not Available
PRESENTER(S) / AUTHOR(S) INFORMATION
Marcus Gaffney - Author CDC      Credentials: MPH       Marcus Gaffney is a Health Scientist and serves as the lead for the CDC EHDI Team. He has over 14 years’ experience working in the area of newborn hearing screening and is responsible for overseeing a range of activities, including supporting the development of jurisdictional EHDI Information Systems, assessing progress towards national goals, providing technical assistance, and supporting research efforts. He holds a Masters of Public Health from Mercer University.       ASHA DISCLOSURE: Financial - No relevant financial relationship exist. Nonfinancial - No relevant nonfinancial relationship exist. Tammy O'Hollearn - Co-Presenter Iowa Department of Public Health      Credentials: LBSW       Tammy O’Hollearn serves as the program director for Iowa’s Early Hearing Detection and Intervention program. She has been in this role for the last seven and a half years. Ms. O’Hollearn oversees all grant activities including: infrastructure building; training and use of the EHDI web based data system (eSCREENER Plus), developing partnerships with early intervention, medical home and audiological service providers; program evaluation and analysis. Prior to 2006, she was involved with early intervention programming, contract management and program development within the Iowa Department of Public Health.       ASHA DISCLOSURE: Financial - No relevant financial relationship exist. Nonfinancial - No relevant nonfinancial relationship exist. Xidong Deng - Primary Presenter CDC      Credentials: PhD       Dr. Xidong Deng is a Health Scientist with the CDC EHDI Team. She holds a PhD. in Computer Science and Engineering from Pennsylvania State University. Dr. Deng’s work with the EHDI team includes helping to develop national EHDI data systems, identifying strategies for integration of EHDI systems with electronic health records and state based systems, evaluation of state based EHDI systems, and the identification of privacy and security solutions for information exchange between state public health registries. Her current interests are in ontology, controlled vocabulary and data standards, EHR and PHR systems, and evaluation of health information systems.       ASHA DISCLOSURE: Financial - Nonfinancial - Julie Schulte - Co-Presenter Indiana State Department of Health      Credentials: MA, CCC-A       Julie Schulte, M.A., CCC-A is the EHDI Follow-up Coordinator for the Early Hearing Detection and Intervention (EHDI) at the Indiana State Department of Health. Julie has worked with the EHDI Program since 2005. Prior to working in the EHDI Program, Julie worked as an audiologist in several different capacities including a clinician on a cochlear implant team, a researcher examining the speech and language development of children with cleft lip and palate, an aural rehabilitationist working with deaf and hard of hearing children receiving early intervention services, and a clinical audiologist providing diagnostic audiology and hearing aid services.       ASHA DISCLOSURE: Financial - Receives Salary for Employment,Management position,Teaching and speaking from Indiana State Department of Health.   Receives Salary for Employment,Management position,Teaching and speaking from Indiana State Department of Health.   Nonfinancial - No relevant nonfinancial relationship exist. Kathy Northrop - Co-Presenter Nebraska Early Hearing Detection & Intervention Program      Credentials: AICP, MCRP      Other Affiliations: NE-EHDI Program Manager, DSHPSHWA Vice-President       Kathy is the Program Manager for the Nebraska Early Hearing Detection and Intervention Program, a position she’s held since August 2010. She has a Master’s degree in Community and Regional Planning from the University of Nebraska-Lincoln and is a certified planner by the American Institute of Certified Planners. She is responsible for planning, coordinating, implementing, and monitoring the state-wide systems to carry out the NE-EHDI Program; coordinating activities relative to patient and professional education, technical assistance for hospitals development and implementation of quality assurance systems; the development of collaborations and systems for access to health, habilitative, and family support services; performing grant management activities including writing of competitive grant applications, preparation of budgets and reports, project management, administration of sub-contracts, and sub-grants, and staff supervision.       ASHA DISCLOSURE: Financial - No relevant financial relationship exist. Nonfinancial - No relevant nonfinancial relationship exist. Suhana Alam - Co-Presenter,Author CDC / ORISE      Credentials: MPH       Suhana Alam is currently serving as an epidemiologist at the Centers for Disease Control and Prevention through Oak Ridge Institute for Science and Education (ORISE) fellowship. She obtained her Bachelor of Science degree in Environmental Health and her Master of Public Health degree in Epidemiology, both from the University of Georgia in Athens. She enjoys traveling, learning different cultures, and trying different cuisines. Her primary communication modality is verbal language.       ASHA DISCLOSURE: Financial - No relevant financial relationship exist. Nonfinancial - No relevant nonfinancial relationship exist.