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ABSTRACT INFORMATION
Title: 'Addition of Congenital Cytomegalovirus Testing Data Management to an EHDI Data System' Track: 6 - Follow-up, Tracking and Data Management Keyword(s): cytomegalovirus testing, data management, data integration, EHDI data system Learning Objectives: Consider the data fields essential to congenital CMV follow-up Learn the benefits of integrating congenital CMV testing data with EHDI data Abstract: On July 1, 2013, the state of Utah began mandating testing for congenital cytomegalovirus (CMV) after two failed newborn hearing screenings. This necessitated a state-wide change in newborn hearing screening protocol and it became quite clear that documenting these referrals was essential, as well as, having a place to report the outcomes of the congenital CMV testing. Adding congenital CMV testing tracking to existing EHDI data management is a worthwhile endeavor because: 1) It is estimated that 20% percent of babies in Utah that are diagnosed with hearing loss have impairment due to contraction of CMV in utero, with national estimates as high as 33%. 2) In Utah, creating a congenital CMV database within Hi*Track will allow NBHS programs a quick and easy place for congenital CMV data entry, as this system is already utilized on a daily basis. 3) Provides comprehensive follow-up for parents and babies across two health domains. State data managers may be faced with the question of how to implement a congenital CMV testing tracking data system. Among the choices is whether to purchase congenital CMV tracking software, build it into a new or existing EHDI data system, or build it as its own separate system. There are a few important guidelines to consider when adding congenital CMV testing tracking to an existing EHDI data management system. Some systems are designed to incorporate user defined pick lists and user-customizable forms though other systems might not provide this flexibility. In systems that do not allow customization it may be easier to build congenital CMV testing tracking as a separate linked system. Participants will learn about the challenges that face the design and implementation of a congenital CMV testing tracking EHDI data management component. Presentation: This presentation has not yet been uploaded or the speaker has opted not to make the presentation available online. Handouts: Handout is not Available
PRESENTER(S) / AUTHOR(S) INFORMATION
Stephanie Browning McVicar - POC,Primary Presenter Utah Department of Health      Credentials: Au.D., CCC-A       Dr. McVicar is the Director of the Early Hearing Detection and Intervention (EHDI) Program, the Children’s Hearing Aid Program, and the Cytomegalovirus Public Health Initiative in Utah. She is Program Manager in the Utah Department of Health's Children with Special Health Care Needs Bureau in Salt Lake City. She is the Audiology Core Faculty member and Director of the Infant-Pediatric Audiology Program for the URLEND (Utah Regional Leadership Education in Neurodevelopmental Disabilities) Program, training future leaders in transdisciplinary family-centered care of children and adolescents with special healthcare needs. Clinically, Dr. McVicar is a pediatric audiologist. She is originally from Western New York and has over two decades of experience and knowledge in Audiology and the management of health care programs in both the public and private sectors. Dr. McVicar serves on the Board of Ethics in Audiology for the American Speech-Language-Hearing Association.       ASHA DISCLOSURE: Financial - No relevant financial relationship exist. Nonfinancial - No relevant nonfinancial relationship exist. James Fritzler - Co-Presenter Utah State University      Credentials: BS, Business Information Systems      Other Affiliations: National Center for Hearing Assessment and Management       James Fritzler is a Project Manager, Analyst and Software Developer with 13 years of EHDI Data Management experience. He has directed and managed iterative software development for complex, specialized medical data management systems. In doing this work he has collaborated with eight State Departments of Health in implementing data surveillance systems and leveraged SQL Server and the Microsoft .Net Framework to build Web-based and Windows-based data management software. Additionally, his consultation with world-wide screening equipment manufacturers has established and improved hearing screening data integration.       ASHA DISCLOSURE: Financial - No relevant financial relationship exist. Nonfinancial - No relevant nonfinancial relationship exist. Nita Jensen - Author Utah Department of Health      Credentials: Health Program Representative, Data and Tracking Specialist       Nita is the EHDI Data Coordinator for the state of Utah, and has been since Utah mandated newborn hearing screening in July of 1998. Nita's professional interests include newborn hearing screening, tracking and follow-up; early intervention for infants and toddlers identified with hearing loss; and quality improvement.       ASHA DISCLOSURE: Financial - No relevant financial relationship exist. Nonfinancial - No relevant nonfinancial relationship exist.