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ABSTRACT INFORMATION
Title: 'Follow-Up and Support for Families....Creating a Family Centered Loss to Follow-Up System.' Track: 1 - EHDI Program Enhancement Keyword(s): Follow Up, Family Support, System, Parents Learning Objectives: Describe how family centered statewide follow up after newborn hearing screening can be done by involving parents in a coordinated systematic way. Identify critical areas of need in a family centered follow up system. Explain how to promote family independence and follow up with a family centered loss to follow up program. Abstract: The State of Maine EHDI program, has created a parent partnership to support loss to follow up in our state. The Maine Newborn Hearing Program provide a two-tiered system of support to families and follow up with medical and audiological providers, by providing a loss to follow up coordinator that oversees the follow up process and focuses on follow up with the child's medical home and audiology providers, and a parent consultant that focuses on supporting the parents to get to next step in their process of following up after newborn hearing screening. Both of these positions are filled by parents, an aspect we feel is critical to our success. In an effort to encourage families to participate in Part C services and receive family support in early intervention these providers work collaboratively with Maine's Part C agency and Maine's Early Childhood and Family Services program to ensure families receive timely and appropriate early intervention in a family centered way. The presenters will share aspects of their program that they feel are essential to reducing loss to follow up and how partnerships and parental involvement have been key to its success. Presentation: This presentation has not yet been uploaded or the speaker has opted not to make the presentation available online. Handouts: Handout is not Available
PRESENTER(S) / AUTHOR(S) INFORMATION
Anne Banger - Primary Presenter Maine Newborn Hearing Program      Credentials: parent       Anne Banger is currently serving as the Follow-Up Coordinator for the Maine Newborn Hearing Program. She obtained her Bachelor of Science degree in Civil Engineering and her Bachelor of Arts degree in Business Administration from Rutgers University. She served on the Maine Commission for the Deaf, Hard of Hearing and Late Deafened. She is a member of the Executive Board of the Cued Speech Association of Maine and Cue Camp New England. She is the proud mother of a deaf son who is currently attending Roger Williams University studying Architecture.       ASHA DISCLOSURE: Financial - No relevant financial relationship exist. Nonfinancial - No relevant nonfinancial relationship exist. Darlene Freeman - Co-Presenter Maine Newborn Hearing Program      Credentials: parent       Darlene Freeman is the Parent Consultant for the Maine Newborn Hearing Program. She is also the parent of her 19-year-old daughter, Deaven, who is deaf. Darlene enjoys working in her position as parent consultant so that she can encourage families to follow up on their children’s hearing testing and help them have a successful outcome on their journey with their children. She is vice president of the Maine Hands & Voices chapter.       ASHA DISCLOSURE: Financial - No relevant financial relationship exist. Nonfinancial - No relevant nonfinancial relationship exist. Karen Hopkins - Co-Presenter The Maine Educational Center for the Deaf and Hard of Hearing      Credentials: M.Ed.CAGS       Karen Hopkins is the Director of Early Childhood Education and Family Services at The Maine Educational Center for the Deaf and Hard of Hearing. Karen coordinates early intervention services for children birth through age five throughoutt the state of Maine, which includes The Parent Infant Toddler Program, and the Bilingual Bimodal Preschool Program at MECDHH. She serves on the Maine Hands & Voices Board, the Maine Newborn Hearing Screening Advisory Board and Maine's Foundation for Deaf and Hard of Hearing Children, and has served on the National EHDI meeting planning committe and the National Deaf Mentor Program Committee with NCHAM.       ASHA DISCLOSURE: Financial - No relevant financial relationship exist. Nonfinancial - No relevant nonfinancial relationship exist.