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ABSTRACT INFORMATION
Title: 'Reducing Loss to Follow-up by Meeting Family Needs' Track: 5 - Medical Home Keyword(s): Loss to Follow-up, Attrition, Monitoring Learning Objectives: Describe statistics for loss to follow-up in EHDI programs. Describe components of a subject/patient retention plan. Help parents become active members of an EHDI Program. Abstract: Loss to follow-up continues to be a significant problem for newborn hearing screening programs and delays in follow-up degrade the quality of services offered and the outcomes achieved for children with hearing loss. Attrition rates as high as 60% between the initial referral and the diagnostic evaluation are not uncommon. Insight from family involvement, audiological assessment, and intervention with children with hearing loss who were involved in long-term longitufinal investigation spannig over 20 years will be summarized. Suggestions and techniques for maintaining parent/child/subject involvement will be provided. Additionally, suggestions and recommendations for development of a retention plan and a patient database will be discussed. Further, ideas for helping parents become members of the diagnostic/intervention collaboration will be explored. Presentation: This presentation has not yet been uploaded or the speaker has opted not to make the presentation available online. Handouts: Handout is not Available
PRESENTER(S) / AUTHOR(S) INFORMATION
Faye McCollister - POC NCHAM      Credentials: CCC-A, EdD      Other Affiliations: UAB CMV Studies       Faye P. McCollister, EdD, CCC-A, has authored articles on hearing loss associated with congenital cytomegalovirus, low birth weight, unilateral hearing loss, and Downs Syndrome. She is Professor Emeritus at the University of Alabama. She is an audiology consultant for the National Center for Hearing Assessment and Management Technical Assistance Network and for the UAB collaborative studies regarding congenital CMV and hearing loss. Dr. McCollister has extensive pediatric audiology experience and experience in early intervention with families and their infants and young children with hearing loss.       ASHA DISCLOSURE: Financial - Nonfinancial - Karen Fowler - Co-Presenter UAB Dept. of Pediatrics      Credentials: DRPH       Karen B. Fowler, DrPH, is a professor in the Department of Pediatrics at the UAB School of Medicine. Her research focuses on the epidemiology of maternal and congenital cytomegalovirus infections and CMV-related hearing loss in children. She is co-director of a multicenter study of CMV infection and hearing loss.       ASHA DISCLOSURE: Financial - Nonfinancial -