| Title: |
'Parent Guides Help EHDI Providers Follow-Through: A Win-Win Partnership' |
| Track: |
6 - Follow-up, Tracking and Data Management
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| Keyword(s): |
Parents, Providers, Identification, Referral, Collaboration |
| Learning Objectives: |
- • Identify four challenges to EHDI parent engagement and describe potential family-centered solutions.
- • Identify four challenges to EHDI provider compliance with reporting and referring and describe parent-driven solutions.
- • Describe four key characteristics of an effective professional parent consultant and identify opportunities to engage parent consultants in support of both families and providers.
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Abstract: |
In an effort to address Loss to Follow-Up and Loss to Documentation within the state of Texas, the Department of State Health Services is partnering with Texas Hands & Voices. The collaboration utilizes professional parent consultants as “Follow Through Guides” to connect with EHDI families that fail to transition to either diagnosis or early intervention. A primary activity of the project is to have each at-risk family contacted by the parent of a child who is deaf/hard-of-hearing. The Follow Through Guides are able to answer questions, facilitate connections to the next steps, identify potential barriers, and provide just-in-time supports. Objective and descriptive data collected by the Guides has been used to facilitate transition to services for individual families, and has been applied to inform system-level changes. When a family encounters a barrier, either in how information was communicated or how services were provided, a Follow Through Guide makes contact with the provider. The result is increased accountability with timely consultation and training for providers focused on ensuring a continuum of care. Components of the project also include targeted connections with Spanish-speaking families, cooperation with Early Childhood Intervention, and consultation with corporate contractors. The session includes a description of the evolution of the project including the powerful role of parents as professional consultants and the challenges of staying on mission, balancing family and provider support, within a data driven project. Highlights include descriptions of diverse encounters with families and providers, preliminary data from the project, and the development of a unique collaboration between the state EHDI program and a parent-driven non-profit agency. This Parent Pilot Project is funded by a grant from the U.S. Health Resources and Services Administration. |
| Presentation: |
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| Handouts: |
Handout is not Available
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