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ABSTRACT INFORMATION
Title: 'The State of Congenital CMV Education and Testing Initiatives across the United States: A Panel Discussion' Track: 1 - EHDI Program Enhancement Keyword(s): Congenital CMV, CMV, Policy, Education, Testing Learning Objectives: Discuss CMV initiatives occurring across the United States with or without legislation. Describe the benefits of and barriers to increasing Congenital CMV awareness and/or cCMV testing. Learn about resources available for use in implementing Congenital CMV initiatives. Abstract: Approximately 1 child in 150 is born with Congenital Cytomegalovirus (cCMV) and 1 in 5 of those children will develop permanent disabilities. cCMV is the leading non-genetic cause of childhood hearing loss. Over the past five years, cCMV has gained national attention in EHDI and MCH programs. Currently, five states (CT, HI, IL, TX and UT) have laws requiring cCMV testing programs, cCMV awareness initiatives, or both. Many other entities (e.g., states, hospitals, public health departments) have implemented cCMV education initiatives or cCMV testing independent of legislation. This panel includes four presenters representing cCMV initiatives across the United States including mandated and independent initiatives. Each panelist will present an overview of their initiative, what they’ve accomplished to date, partners, successes, barriers, evaluation, and next steps. After the panel presentations, a facilitator will field questions from the attendees. Additionally, a table of state resources will be exhibited and a list of online resources will be available. Presentation: This presentation has not yet been uploaded or the speaker has opted not to make the presentation available online. Handouts: Handout is not Available
PRESENTER(S) / AUTHOR(S) INFORMATION
-             ASHA DISCLOSURE: Financial - Nonfinancial - Amy Mirizzi - Co-Presenter Connecticut Department of Public Health      Credentials: MPH, CPH       Amy Mirizzi has served as the Connecticut EHDI Coordinator since 2008. She was hired by the Connecticut Department of Public Health in 2005 to oversee EHDI tracking and surveillance. She is a member and past chair of the CT EHDI Task Force, a member of the CT Department of Rehabilitation Services, Deaf and Hard of Hearing Services Advisory Board, and a member of the Directors of Speech and Hearing Programs in State Health and Welfare Agencies. Ms. Mirizzi is responsible for overall program functions, policy development, technical support to hospitals and diagnostic testing centers, consultation on database design and development, provider and family education and outreach, and ongoing program evaluation.       ASHA DISCLOSURE: Financial - No relevant financial relationship exist. Nonfinancial - No relevant nonfinancial relationship exist. Debra Behringer - Co-Presenter MI Dept of Community Health      Credentials: RN, MSN EHDI Program Coordinator      Other Affiliations: Sigma Theta Tau-member Healthy Homes Specialist-credential       Public health/maternal child health nurse for 35 years. Background experience in hospital, clinic, home care nursing and nurse consultant for the state of Michigan. Public health nurse educator for RN-BSN students.       ASHA DISCLOSURE: Financial - Nonfinancial - Kirsten Coverstone - Co-Presenter MN Dept. of Health      Credentials: Au.D.       Kirsten Coverstone is an audiologist with many years of service dedicated to early hearing detection and intervention. She grew up in southern Minnesota, earned her masters degree from the Univ. of Northern Iowa and her doctorate from Salus University. Kirsten has actively worked at the local state and national levels to promote universal newborn screening for hearing. As coordinator of the Lions Infant Hearing Program at the University of Minnesota she worked directly with hospitals to establish effective hearing screening programs and audiologists to confirm hearing loss. In addition, Kirsten implemented a statewide hearing instrument loaner program for infants and young children in Minnesota. She is dedicated to making a difference in the lives of children and their families as the MDH EHDI Screening Program Coordinator.       ASHA DISCLOSURE: Financial - Nonfinancial - Stephanie Browning McVicar - Co-Presenter Utah Department of Health      Credentials: Au.D., CCC-A       Dr. McVicar is the Director of the Early Hearing Detection and Intervention (EHDI) Program, the Children’s Hearing Aid Program, and the Cytomegalovirus Public Health Initiative in Utah. She is Program Manager in the Utah Department of Health's Children with Special Health Care Needs Bureau in Salt Lake City. She is the Audiology Core Faculty member and Director of the Infant-Pediatric Audiology Program for the URLEND (Utah Regional Leadership Education in Neurodevelopmental Disabilities) Program, training future leaders in transdisciplinary family-centered care of children and adolescents with special healthcare needs. Clinically, Dr. McVicar is a pediatric audiologist. She is originally from Western New York and has over two decades of experience and knowledge in Audiology and the management of health care programs in both the public and private sectors. Dr. McVicar serves on the Board of Ethics in Audiology for the American Speech-Language-Hearing Association.       ASHA DISCLOSURE: Financial - No relevant financial relationship exist. Nonfinancial - No relevant nonfinancial relationship exist. Alyson Ward - Primary Presenter NCHAM      Credentials: MS      Other Affiliations: CHES       Alyson Ward has a M.S. in Health Education and a Certified Health Education Specialist certification and has worked in public health for over ten years. She has been involved in health promotion, education, research, policy, evaluation, grant development, and grant review from the community to national levels. Alyson oversees the National Center for Hearing Assessment and Management’s quality improvement (QI) technical assistance for state Early Hearing Detection and Intervention (EHDI) programs and is the EHDI improvement advisor for six states and three U.S. territories. Alyson is also involved in the planning and implementation of Utah’s HB 81, which mandates the Utah Department of Health to conduct a public-centered and physician-centered education campaigns about Cytomegalovirus.       ASHA DISCLOSURE: Financial - Nonfinancial - Sara Doutre - Co-Presenter,POC NCHAM      Credentials: MA       Sara Doutre is a PHD student studying sociobehavioral epidemiology at Utah State University. She has an MA in education policy studies and a BS in elementary and special education. A former special education teacher and education policy professional, he currently consults with state departments of education and health on special education policy. Her four-year-old daughter is deaf due to congenital cytomegalovirus.       ASHA DISCLOSURE: Financial - Nonfinancial -