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ABSTRACT INFORMATION
Title: 'Non-Universal (Mandated) Screening of Congenital Cytomegalovirus (CMV): From the Utah Trenches' Track: 10 - Policy, Advocacy and Legislative Issues Keyword(s): Cytomegalovirus, Testing, Mandate, Legislation, Considerations Learning Objectives: Describe issues/questions that can arise with non-universal CMV testing mandates Identify anecdotal and evidence-based answers to these questions Create strategies for their own EHDI/hospital/NBHS program in re: CMV testing Abstract: In 2013 Utah became the first state in the nation to mandate hearing-directed cytomegalovirus (CMV) testing for all infants who fail the “newborn hearing screening test(s)” before 21 days of age. The rule written to accompany the law clarified eligibility by stating that eligible infants are those who fail both the initial hearing screen routinely done at birth and the subsequent follow-up screen OR if the initial failed screen is obtained after 14 days of age. There was also a clause pertaining to Special Populations of Newborns whom testing for CMV is left to the discretion of the medical practitioner(s) caring for the newborn. In addition, the law states that when a medical practitioner orders the congenital CMV (cCMV) test they are to provide to the parents of the newborn infant information regarding birth defects caused by cCMV and available methods of treatment. Logistically, these different categories of infants and the counseling requirement have made eligibility, CMV testing and data collection a difficult and daunting task at times – for Utah EHDI, providers and families. Come learn issues and questions that have arisen during these first two 1/2 years of our CMV mandate and how we have addressed them. Tales from our trenches should help prepare for battle anyone wishing to implement CMV testing at a state or local level or just interested in hearing-directed CMV testing. Presentation: This presentation has not yet been uploaded or the speaker has opted not to make the presentation available online. Handouts: Handout is not Available
PRESENTER(S) / AUTHOR(S) INFORMATION
Stephanie Browning McVicar - Primary Presenter Utah Department of Health      Credentials: Au.D., CCC-A       Dr. McVicar is the Director of the Early Hearing Detection and Intervention (EHDI) Program, the Children’s Hearing Aid Program, and the Cytomegalovirus Public Health Initiative in Utah. She is Program Manager in the Utah Department of Health's Children with Special Health Care Needs Bureau in Salt Lake City. She is the Audiology Core Faculty member and Director of the Infant-Pediatric Audiology Program for the URLEND (Utah Regional Leadership Education in Neurodevelopmental Disabilities) Program, training future leaders in transdisciplinary family-centered care of children and adolescents with special healthcare needs. Clinically, Dr. McVicar is a pediatric audiologist. She is originally from Western New York and has over two decades of experience and knowledge in Audiology and the management of health care programs in both the public and private sectors. Dr. McVicar serves on the Board of Ethics in Audiology for the American Speech-Language-Hearing Association.       ASHA DISCLOSURE: Financial - Nonfinancial - -             ASHA DISCLOSURE: Financial - Nonfinancial -