15th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 13-15, 2016 • San Diego, CA
3/15/2016 | 10:10 AM - 10:40 AM | Topical Session 4 | Tiki Pavilion | 1 - EHDI Program Enhancement
Understanding the Response of Parents to Newborn Hearing Screening
At the time of newborn hearing screening, parents may have very little understanding of hearing loss in childhood and find themselves unprepared for the results of the screening testing. Parents may not understand the difference between screening and diagnostic testing. Not passing the hearing screen may have an impact on how parents interact with their newborn in the critical early weeks that shape attachment. Understanding how parents respond to the results of newborn hearing screening and whether they knowingly or unknowingly modify their behavior towards their child will assist in identifying where to focus resources and attention for parent support. Transcripts from interviews and focus groups with parents and professionals involved in the newborn screening program in Rochester, NY and New York State were coded for themes relating to parent experience after learning the results of their child’s hearing screening. Themes were interpreted in the framework of the Social-Ecological Model to describe to describe the family experience around newborn hearing screening with a focus on the educational needs of parents prior to screening and when faced with the need for further testing. Their experiences provide opportunities for optimizing information provided before and after newborn hearing screening and thus enhancing parental understanding of how to interact with their newborn. Acting on these opportunities may ensure healthy parent-child interaction during the period between initial hearing screen and the confirmatory follow up appointment and ultimately facilitate acceptance if hearing loss is confirmed.
- Characterize the complexity of reporting newborn hearing screening results to parents
- Recognize the potential relatedness between diagnostic uncertainty and parent-child interaction
- Identify opportunities to ensure healthy parent-child interaction if a child does not pass the newborn hearing screen
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Presenters/Authors
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Robert C. Nutt
(Primary Presenter,Author,POC), University of Rochester, robert_nutt@urmc.rochester.edu;
Robert Nutt graduated from Dartmouth College and received his medical degree from the Geisel School of Medicine (Dartmouth). He served on the Newborn Hearing Screening Task Force for New Hampshire, charged with implementing universal newborn hearing screening in that state. Dr. Nutt completed his pediatric residency at the University of Rochester Medical Center, and is completing his specialty training in Neurodevelopmental and Behavioral Pediatrics. Dr. Nutt is director of the Deaf Health Pathway at the University of Rochester School of Medicine and Dentistry. He developed an ambulatory pediatric clinic for families who communicate using American Sign Language as part of the Patient-Centered Medical Home. His overall research aims to reduce health disparities in underserved or socially vulnerable populations, such as those who are deaf or hard of hearing. His specialty-specific goal is to better understand the interactions between deafness and developmental disabilities, such as Autism Spectrum Disorder.
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No relevant financial relationship exist.
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Mark S. Orlando
(Author), University of Rochester, mark_orlando@urmc.rochester.edu;
Dr. Orlando is an Associate Professor of Clinical Otolaryngology (Audiology) at the University of Rochester Medical Center. He received his BS in Arts & Sciences, Communication Disorders from the State University College at Buffalo in 1984. He then received his MS in Audiology/Speech Pathology from Pennsylvania State University in 1986 and his MBA in Medical Management from the University of Rochester-Simon Business School in 2009 and his PhD in Audiology/Speech Pathology from the University of Washington in 1990. Dr. Orlando is the Director for Education and Research for the Department of Otolarnygology Division of Audiology.
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Melissa Pennise
(Author), University of Rochester, melissa_pennise@urmc.rochester.ed;
Melissa Pennise, MPH is a Senior Health Project Coordinator for the health disparities initiatives at Strong Center for Developmental Disabilities. She earned her MPH in Epidemiology and Biostatistics from Oregon Health and Science University, and has 5 years of experience in local public health. Her interests include quality improvement, access to health care, and maternal and child health. Melissa brings a public health science and data-driven perspective to the mission of identifying, evaluating and addressing health disparities for people with intellectual and developmental disabilities. She envisions quality, affordable, and accessible healthcare for all.
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Suzannah Iadarola
(Author), University of Rochester, Suzannah_Iadarola@URMC.Rochester.edu;
Dr. Iadarola is a pediatric psychologist who specializes in diagnostic evaluations for children for whom there is a suspected autism spectrum disorder (ASD). Dr. Iadarola conducts initial diagnostic evaluations for children of all ages, with a focus on ASD and other differential developmental and mental health diagnoses. In addition, she is a Board Certified Behavior Analyst and has experience providing and coordinating behavioral treatment for individuals with ASD. As part of this treatment, Dr. Iadarola incorporates a focus on working with families (e.g., parent training and education, sibling support).
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Scott McIntosh
(Author), University of Rochester, Scott_McIntosh@urmc.rochester.edu;
As Associate Director of the Smoking Research Program, and Director of the Greater Rochester Area Tobacco Cessation Center, Dr. McIntosh is currently involved with the study of stop-smoking interventions with various populations and the training of physicians and other medical professionals in guideline-based nicotine dependence interventions. He is a founding Co-Chair of WATI (Web-Assisted Tobacco Interventions), an ongoing series of international workshops funded by the National Cancer Institute, Health Canada, and the American Legacy Foundation.
Dr. McIntosh received his BS in Psychology in 1984 (Iowa State University), his MA in Counseling Psychology in 1986 (University of Missouri), and his PhD in Counseling Psychology in 1993 (University of Miami). Dr. McIntosh has multiple faculty appointments in the University of Rochester School of Medicine and Dentistry and is Course Director of a required 4th Year Medical School course in Community Health Improvement.
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Peter Veazie
(Author), University of Rochester, Peter_Veazie@urmc.rochester.edu;
Dr. Veazie is an Associate Professor - Department of Public Health Sciences at the University of Rochester School of Medicine and Dentistry. Dr. Veazie's primary interests are the decision behavior of health care providers and patients, the consequent health outcomes, and the influence of social and organizational systems on such behavior and outcomes. He is specifically interested in the structuring and use of information by patients and providers, the impact of psychological disposition and states on health care decisions, the decision strategies of healthcare providers in the management of patients with chronic illnesses, the physician/patient interaction, and how physician decision processes can lead to medical errors. Dr. Veazie is presently studying (1) physician use of racial information in diagnosis and treatment decisions, and (2) the effect on patient risk perceptions of various graphical representations of very low level risks.
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James Dolan
(Author), University of Rochester, James_Dolan@urmc.rochester.edu;
Dr. Dolan is an Associate Professor in the Department of Public Health Sciences at the University of Rochester School of Medicine and Dentistry. After graduating from Temple University School of Medicine, Dr. Dolan completed both a residency in Internal Medicine and a fellowship in General Medicine at the University of Rochester. Dr. Dolan has practiced as an Academic General Internist for more than 25 years. In 2009, he joined the Department of Public Health Sciences at the University of Rochester Medical Center where he is currently director of Master's education. He has a long-standing interest in improving the quality of clinical decision making at every level in the health care system. His research involves exploring effects of multi-criteria decision making methods, particularly the Analytic Hierarchy Process, on doctor-patient communication, shared decision making, decision outcomes, translation of clinical evidence into practice, implementation of clinical guidelines, and clinical decision making process.
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Susan Hyman
(Author), University of Rochester, Susan_Hyman@urmc.rochester.ed;
Dr. Hyman is the Division Chief for the Divsion of Neurodevelopmental-Behavioral pediatrics at the University of Rochester Medical Center. Her research interests are: Autism Spectrum Disorders and how they are similar and different to other developmental conditions; Diet and Nutrition in Autism; Medical Management of Children and Adolescents with Autism. Dr. Hyman received her ScB in Biology from Brown University in 1976 and MD from Brown University in 1979. Dr. Hyman completed her internship and residency training in Pediatrics at University of North Carolina Hospitals, a fellowship training in Developmental Pediatrics at Johns Hopkins Hospital.
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