18th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 3-5, 2019 • Chicago, IL
4/16/2013 | 9:40 AM - 10:40 AM | Supporting Families at Identification:Centralized Coordination | Aurora C/D | 1
Supporting Families at Identification:Centralized Coordination
The JCIH 2007 report recommends EHDI programs include 'a simplified, single point of entry' into appropriate intervention services to ensure families receive information about a full range of options.
This presentation will describe the process the British Columbia Early Hearing Program (BCEHP) used for developing the model for a centralized intervention referral and coordination service to enhance the EHDI program. This BCEHP Coordination service provides a central point of contact and intake for newly diagnosed infants and assists families to move forward on the family path. Automatic referrals to “Coordination” are made through a secure web-based integrated information and tracking system to ensure all families have access to this coordination service. This shared information system is an effective link between audiology, “coordination”, and intervention providers.
Coordinators are professionals with expertise in working with families with Deaf and Hard of Hearing infants. They provide initial support and unbiased information to families soon after an infant is identified with hearing loss and assist them to connect to other sources of support and services. The Coordinators are the early link between audiology and early intervention providers and continue to support the family until they enroll in ongoing early intervention services. This presentation will review parental concerns, events, and situations that appear to contribute to parents postponing early intervention services and how the centralized coordination service assists families to move forward.
Audiology providers are reporting that families who have received this initial centralized coordination/support are far more knowledgeable about hearing loss, understand the importance of early language development, and appear to be less hesitant to take the next steps. The difference in the families who received this coordination service has been so significant that the Public Health Audiology Group has formally requested this service be expanded beyond newborns to include later identified young children.
- describe process for using stakeholder input for enhancing EHDI program services
- describe how an EHDI centralized intake/referral coordination service can provide families with initial support and unbiased information and assist families to take the next steps following identification of hearing loss.
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Presenters/Authors
Susan Lane
(POC,Co-Presenter), BC Early Hearing Program, slane@cw.bc.ca;
Susan Lane has worked for over 25 years with families with Deaf and Hard of Hearing infants and young children in both a clinical and administrative role. Since January 2006, Susan has worked with the BC Early Hearing Program (an EHDI program) as the program’s provincial Intervention Coordinator. In this role, she has been working with families, audiologists, speech-language pathologists, educators of the Deaf/Hard of Hearing and other professionals to develop a provincial strategy for Intervention Services.
Ms. Lane co authored the book “My Turn To Learn: A Communication Guide for Parents of Deaf and Hard of Hearing Children”
ASHA DISCLOSURE:
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Lori Bell
(Co-Presenter), BC Early Hearing Program, lbell3@cw.bc.ca;
Lori Bell is a Service Coordinator for the BC Early Hearing Program (BCEHP) in British Columbia, Canada. Lori graduated from the University of British Columbia's Audiology and Speech Sciences and has been involved with families of young deaf and hard of hearing children for over 20 years. Lori co-authored the book “My Turn To Learn: A Communication Guide for Parents of Deaf and Hard of Hearing Children”
ASHA DISCLOSURE:
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Nonfinancial -