18th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 3-5, 2019 • Chicago, IL
4/15/2014 | 10:10 AM - 10:40 AM | Addition of Congenital Cytomegalovirus Testing Data Management to an EHDI Data System | Clearwater | 6
Addition of Congenital Cytomegalovirus Testing Data Management to an EHDI Data System
On July 1, 2013, the state of Utah began mandating testing for congenital cytomegalovirus (CMV) after two failed newborn hearing screenings. This necessitated a state-wide change in newborn hearing screening protocol and it became quite clear that documenting these referrals was essential, as well as, having a place to report the outcomes of the congenital CMV testing.
Adding congenital CMV testing tracking to existing EHDI data management is a worthwhile endeavor because: 1) It is estimated that 20% percent of babies in Utah that are diagnosed with hearing loss have impairment due to contraction of CMV in utero, with national estimates as high as 33%. 2) In Utah, creating a congenital CMV database within Hi*Track will allow NBHS programs a quick and easy place for congenital CMV data entry, as this system is already utilized on a daily basis. 3) Provides comprehensive follow-up for parents and babies across two health domains. State data managers may be faced with the question of how to implement a congenital CMV testing tracking data system. Among the choices is whether to purchase congenital CMV tracking software, build it into a new or existing EHDI data system, or build it as its own separate system. There are a few important guidelines to consider when adding congenital CMV testing tracking to an existing EHDI data management system. Some systems are designed to incorporate user defined pick lists and user-customizable forms though other systems might not provide this flexibility. In systems that do not allow customization it may be easier to build congenital CMV testing tracking as a separate linked system. Participants will learn about the challenges that face the design and implementation of a congenital CMV testing tracking EHDI data management component.
- Consider the data fields essential to congenital CMV follow-up
- Learn the benefits of integrating congenital CMV testing data with EHDI data
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Presenters/Authors
Stephanie Browning McVicar
(POC,Primary Presenter), Utah Department of Health and Human Services, smcvicar@utah.gov;
Dr. Stephanie Browning McVicar is the Director of the Early Hearing Detection and Intervention Program, the Children’s Hearing Aid Program, and the Cytomegalovirus (CMV) Public Health Initiative in Utah. She works for the Utah Department of Health and Human Services' Children with Special Health Care Needs Office in Salt Lake City. Dr. McVicar is a pediatric audiologist, an advocate for CMV testing in newborns, and passionate about the prevention of congenital CMV infection. She was instrumental in the creation of the Utah EHDI tele-audiology program. She is originally from Western New York and has extensive experience and knowledge in Audiology and the management of health care programs in both the public and private sectors.
ASHA DISCLOSURE:
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No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Nita Jensen
(Author), Utah Department of Health, nitajensen@utah.gov;
Nita is the EHDI Data Coordinator for the state of Utah, and has been since Utah mandated newborn hearing screening in July of 1998. Nita's professional interests include newborn hearing screening, tracking and follow-up; early intervention for infants and toddlers identified with hearing loss; and quality improvement.
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James Fritzler
(Co-Presenter), Utah State University, James.Fritzler@usu.edu;
James Fritzler is a Project Manager, Analyst and Software Developer with 20 years of EHDI Data Management experience. He has directed and managed iterative software development for complex, specialized medical data management systems. In doing this work he has collaborated with eight State Departments of Health in implementing data surveillance systems and leveraged SQL Server and the Microsoft .Net Framework to build Web-based and Windows-based data management software. Additionally, his consultation with world-wide screening equipment manufacturers has established and improved hearing screening data integration.
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Nonfinancial -