18th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 3-5, 2019 • Chicago, IL
4/14/2014 | 2:00 PM - 2:30 PM | Wisconsin Sound Beginnings & WIC Collaboration to Reduce LTFU | Grand Ballroom 6 | 1
Wisconsin Sound Beginnings & WIC Collaboration to Reduce LTFU
Wisconsin Sound Beginnings (WSB) and Wisconsin’s WIC program have a MOA giving WSB access to WIC’s statewide database. There are 92 WIC sites in Wisconsin that WSB divided into follow-up protocols A and B. We currently have 32 WIC-B sites; the remaining sites are in the WIC-A protocol. WSB identifies babies in our database who haven’t passed their newborn hearing screen and are at risk for LTFU. We identify those babies in the WIC database and place one of two alerts that this baby needs follow-up. Babies in WIC-A sites receive an alert asking WIC to give the family a letter that WSB provided to WIC in English, Spanish and Hmong. Babies in WIC-B sites receive an alert to provide care coordination with WSB. WSB is able to provide a follow-up hearing screen at that family’s WIC appointment, in their home or other community location. To date, WSB has placed 146 total alerts for babies at risk to LTFU at one month of age. For cases receiving a WIC-A alert, 84 (74%) have been successfully resolved. For cases receiving a WIC-B alert, 23 (72%) have been successfully resolved. WSB screened 26 WIC-A and 10 WIC-B babies in their home or community location. WSB continues to evaluate its LTFU protocol and WIC collaboration, and is currently doing this in the context of a CDC-funded grant titled 'Determining Successful Strategies for Improving Newborn Hearing Screening Follow-up through a WIC/EHDI/UCEDD Partnership.' Data from the pilot project and from this evaluation study will be shared that provide insight into how many factors - including access to additional information about families; the local health department’s collaboration with local WIC; rural vs urban differences; local health care systems differences; culture; and WSB’s current LTFU protocol — all interplay to impact Wisconsin’s LTFU rate.
- 1. Attendees will gain insight about WSB’s lessons learned in the first years of implementing this initiative to help other EHDI programs explore how a collaboration like this would work in their States
- 2. Attendees will learn about WSB’s LTFU protocol, including in-home and in-community outpatient screenings and how they work in the context of WIC collaboration
- 3. Attendees will learn through case studies how the WIC collaboration plays an important role in successfully reaching at-risk families
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Presenters/Authors
Rebecca Martin
(Primary Presenter), WI DHS, rebecca.martin@wi.gov;
Rebecca Martin, MPH, IMH-E(II) is the Outreach Specialist Coordinator at Wisconsin Sound Beginnings, working to support families and providers throughout EHDI. She has a decade of experience in health education, home visitation, case management, communications and advocacy. With a focus on high-risk, minority, immigrant and teen parents and their young children, Rebecca has provided intensive case management, intervention, education and support around parent-child relationships, child development, family stability, domestic violence and physical/emotional health. Rebecca completed her public health Preceptorship at a community health center in rural Wisconsin working with Amish and Hispanic communities. Rebecca served as a Peace Corps Volunteer, working to better maternal/child health and improve community organization. She is a graduate of UW-Madison’s Infant, Early Childhood and Family Mental Health certificate program and has earned her Level II Infant Mental Health Endorsement as an Infant Family Specialist for culturally sensitive, relationship-focused practice promoting infant mental health.
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Susan Picione
(Co-Presenter), Wisconsin Sound Beginnings, City of Milwaukee Public Health, SPICIO@milwaukee.gov;
Susan is a Public Health Nurse with the City of Milwaukee Health Department and serves the Southeastern region of Wisconsin as a Regional Outreach Nurse Specialist for Wisconsin Sound Beginnings. With more than 20 years of home visiting experience, she has worked with thousands of families to provide them with valuable health information, access to community resources, advocacy and support. Since 2010, Susan has provided outreach services, hearing screenings and support to families in Southeastern Wisconsin. She is passionate about reducing the lost to follow-up rate and has been successful in reaching many extremely difficult-to-locate families to help ensure their access to hearing-related care.
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Jeanne Gustafson
(Co-Presenter), Wisconsin Sound Beginnings, Chippewa County Department of Public Health, jgustafson@co.chippewa.wi.us;
Jeanne came to EHDI work through her experience as the parent of a child who is hard of hearing. Jeanne was a Parent Guide with the Guide By Your Side Program and a Follow-Through Parent Guide for WSB. She currently serves the northern and western regions as an Outreach Specialist, providing in-home and in-community hearing screenings for babies. Jeanne serves many Amish and Mennonite communities, providing out of hospital outreach and education and building relationships with several traditional midwives and public health departments that serve the area. Jeanne is also a WSB Parents Reaching Out parent, who helped develop the program and supports families post-diagnosis in the Western and Northern parts of WI.
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