18th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 3-5, 2019 • Chicago, IL
4/15/2014 | 3:00 PM - 3:30 PM | Follow-Up and Support for Families....Creating a Family Centered Loss to Follow-Up System. | City Terrace 7 | 1
Follow-Up and Support for Families....Creating a Family Centered Loss to Follow-Up System.
The State of Maine EHDI program, has created a parent partnership to support loss to follow up in our state. The Maine Newborn Hearing Program provide a two-tiered system of support to families and follow up with medical and audiological providers, by providing a loss to follow up coordinator that oversees the follow up process and focuses on follow up with the child's medical home and audiology providers, and a parent consultant that focuses on supporting the parents to get to next step in their process of following up after newborn hearing screening. Both of these positions are filled by parents, an aspect we feel is critical to our success. In an effort to encourage families to participate in Part C services and receive family support in early intervention these providers work collaboratively with Maine's Part C agency and Maine's Early Childhood and Family Services program to ensure families receive timely and appropriate early intervention in a family centered way. The presenters will share aspects of their program that they feel are essential to reducing loss to follow up and how partnerships and parental involvement have been key to its success.
- Describe how family centered statewide follow up after newborn hearing screening can be done by involving parents in a coordinated systematic way.
- Identify critical areas of need in a family centered follow up system.
- Explain how to promote family independence and follow up with a family centered loss to follow up program.
Presentation:
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Transcripts:
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Presenters/Authors
Anne Banger
(Primary Presenter), Maine Newborn Hearing Program, anne.banger@maine.gov;
Anne Banger is the state EHDI coordinator for the Maine Newborn Hearing Program. She obtained her Bachelor of Science degree in Civil Engineering and her Bachelor of Arts degree in Business Administration from Rutgers University. She served on the Maine Commission for the Deaf, Hard of Hearing and Late Deafened. She is a member of the Executive Board of the Cued Speech Association of Maine and Cue Camp New England. She is the proud mother of a deaf son who is currently attending Roger Williams University studying Architecture.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Darlene Freeman
(Co-Presenter), Maine Hands & Voices, darlsfree13@gmail.com;
Darlene Freeman is on the board and the treasurer of the Maine Hands & Voices chapter and a Parent Guide with Maine Hands & Voices. She is also the Quality Improvement Specialist for Maine's HRSA Grant. She is the parent of her 28-year-old daughter, Deaven, who is deaf. Darlene enjoys working with families to help them understand the newborn hearing screening process into early intervention and beyond to encourage them to become strong advocates for their children who are deaf or hard of hearing.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Karen Hopkins
(Co-Presenter), The Maine Educational Center for the Deaf and Hard of Hearing/Governor Baxter School for the Deaf, karen.hopkins@mecdhh.org;
Karen Hopkins is the Executive Director of The Maine Educational Center for the Deaf and Hard of Hearing/Governor Baxter School for the Deaf and the principal investigator of Maine's HRSA grant. She brings over 30 years of experience as a collaborative teacher of the deaf, special educator, early interventionist and educational administrator to her work with Deaf and hard of hearing children. Her work with families, coupled with her own personal experience as a Deaf adult and parent of a daughter who is hard of hearing have inspired her to create systems that empower families. Karen oversees early intervention and statewide educational programming for children who are Deaf or hard of hearing birth to age 22 throughout the state of Maine. She is active in many organizations and boards in Maine, the Hands & Voices HQ Board of Directors and is involved with international FCEI programming including the Deaf Leadership International Alliance. Karen is the Board President of Hands & Voices Headquarters. Karen's current research as she finalizes her doctoral journey is focused on perspectives of family empowerment in early intervention systems for Deaf and hard of hearing children.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.