18th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 3-5, 2019 • Chicago, IL

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3/09/2015  |   11:35 AM - 12:05 PM   |  Implementing Electronic Reporting of Point-of-Care Newborn Screening Results: The Whos, Whats, Whens, and Hows   |  Coe   |  6

Implementing Electronic Reporting of Point-of-Care Newborn Screening Results: The Whos, Whats, Whens, and Hows

The recent addition of CCHD to the Recommended Universal Screening Panel in 2011 caused many newborn screening programs to reexamine how point-of-care testing results (for both EHDI and CCHD) are delivered from the birth facility to the program. Minnesota was one such program that took the addition of CCHD as an opportunity to also improve upon the EHDI program by implementing an electronic reporting system that would allow for real-time result reporting in order to improve upon follow-up efficiency and data integrity. We will present Minnesota’s point-of-care electronic reporting implementation planning. Key steps included: working with state offices of health information technology, meeting with electronic health record and health information exchange advisory groups, as well as finding nursing champions throughout the state. Utilizing these steps has allowed the Newborn Screening Program to get buy-in for implementation from IT staff and ensure preparedness by birth facilities and attendants. We will discuss: • Hospital survey outcomes and development of educational materials and training • General messaging terminology to prepare states to discuss needs • Project management tactics • Implementation steps, including stakeholder meetings, process planning, and implementation by facility and health care system. The addition and implementation of new reporting modalities often follow very different paths in different states. Because each state faces different challenges, and may enjoy different opportunities, sharing state experiences in implementation of electronic data systems is critical to improving the EHDI program nationwide.

  • 1) Define basic data messaging terminology as it relates to EHDI results reporting
  • 2) Describe processes utilized to pave the way for implementation of an electronic reporting system for point-of-care newborn screening
  • 3) Design an implementation plan for their own program

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Presenters/Authors

Kirsten Coverstone (Author,POC), MN Dept. of Health, Kirsten.Coverstone@state.mn.us ;
Kirsten Coverstone is an audiologist with many years of service dedicated to early hearing detection and intervention. She grew up in southern Minnesota, earned her masters degree from the Univ. of Northern Iowa and her doctorate from Salus University. Kirsten has actively worked at the local state and national levels to promote universal newborn screening for hearing. As coordinator of the Lions Infant Hearing Program at the University of Minnesota she worked directly with hospitals to establish effective hearing screening programs and audiologists to confirm hearing loss. In addition, Kirsten implemented a statewide hearing instrument loaner program for infants and young children in Minnesota. She is dedicated to making a difference in the lives of children and their families as the MDH EHDI Screening Program Coordinator.


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Amy Gaviglio (Primary Presenter,Author), Minnesota Dept of Health, amy.gaviglio@state.mn.us;
Amy, a graduate from the Genetic Counseling Training Program at the University of Michigan, has been employed by the Minnesota Department of Health, Newborn Screening Program for the past 7 years. In her current position, Amy supervises the short term follow-up of blood spot, hearing, and pulse oximetry results, aids in statewide educational efforts on newborn screening and genetics, and works on genetics-related policy in the state. She is currently the co-chair of the public health special interest group for the National Society of Genetic Counselors, and a member of the APHL and NewSTEPS Short Term Follow-Up and CCHD Workgroups.


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Tony Steyermark (Co-Presenter,Author), Minnesota Department of Health, tony.steyermark@state.mn.us;
Tony Steyermark is the supervisor for the Newborn and Child Follow-Up program at the Minnesota Department of Health (MDH). The program is responsible for long term follow-up for infants and children with a condition detected by newborn screening. This includes ensuring proper care coordinator and ensuring that families have access to the services they need so as to maximize outcomes for the infant or child. Tony has been with the Minnesota Department of Health for 6 years, starting his public health career with the Newborn Screening Program. Before joining MDH, Tony taught Anatomy and Physiology, and conducted research in metabolic rate regulation, at the University of St. Thomas in St. Paul, MN.


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Kaitlin Houlihan (Author), Minnesota Department of Health, kaitlin.houlihan@state.mn.us;
Kaitlin is a health program coordinator and project manager for the Minnesota Department of Health Newborn Screening Program. In her current role, she works closely with Minnesota birth hospitals to implement electronic reporting of point-of-care newborn screening results and contributes on projects to improve the informatics capacity of Newborn Screening. Kaitlin is a Certified Professional Project Manager and 2016-17 Project SHINE Informatics Training in Place Program (I-TIPP) Fellow.


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Mark McCann (Author), Minnesota Department of Health, mark.mccann@state.mn.us;
Program manager in Minnesota serving a terrific team of scientists and public health practitioners regarding the health protection effort of newborn screening in the State of Minnesota. Current impact is saving the lives and improving the medical outcomes for over 400 children annually. This includes program responsibilities for laboratory, operations, follow-up (which includes hearing screening & critical congenital heart disease screening), legislative, legal, policy, and health education for newborn screening.


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