18th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 3-5, 2019 • Chicago, IL
3/10/2015 | 11:00 AM - 11:30 AM | Issues Hearing Parents Face With Their Children Who Are Deaf/Hard of Hearing | Breathitt | 7
Issues Hearing Parents Face With Their Children Who Are Deaf/Hard of Hearing
We were co-workers and close friends before we had our children. We both have late-diagnosed children with different etiologies. We have used different modes of communication and enrolled our children in a variety of school situations. We have moved school districts and across the country to find what we need for our children. We have lived through and talked through these decisions together and we know how important it is to acknowledge and discuss them. We will provide that forum for families by drawing on our own experiences and encouraging others to talk about theirs. We intend for parents and professionals to talk about the issues that we know many of us face, but often don’t have the critical mass to address, to continue to find ways to help our kids navigate their lives with greater ease.
A majority of children who are deaf or hard of hearing are born to hearing parents. There is an adjustment period and learning curve for ever parent with a newborn baby and there are added variables when your child is deaf or hard of hearing. Children who are deaf/hard of hearing and educated in their neighborhood schools are often the only deaf or hard of hearing students in their schools. Students (and parents) may feel isolated and the school staff and administration may have no prior experience with students who are deaf or heard of hearing.
Families can support one another and build a connection with the larger deaf/hard of hearing community. We will touch upon our efforts and experiences with parent groups and social groups; memberships in organizations like Hands and Voices; social media; camps; searching for physicians and other professionals; and the importance of participation in conferences like EHDI.
- To provide a forum for families to talk about issues they face with their children who are deaf/hard of hearing.
- To share experiences raising families with children who are deaf/hard of hearing.
Presentation:
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Presenters/Authors
Lisa A Weiss
(Co-Presenter,POC), LAW Access Education LLC, coloradocues@gmail.com;
Lisa A. Weiss is a mediator and a public school policy expert. She provides direct instruction in self advocacy, work adjustment training, and communication access as a private educational interpreter with a family based cooperative School to Work Alliance Program called Solid Ground Denver.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
Susan Fingerle
(Primary Presenter), Hands & Voices, susanfingerle@msn.com;
Susan Fingerle is the parent of a 13 year old son who is Hard of Hearing. Susan has worked as a special education attorney since 2002 and has been involved with Hands & Voices in New York and Alabama. Her family recently moved to Denver, Colorado.
ASHA DISCLOSURE:
Financial -
Nonfinancial -