18th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 3-5, 2019 • Chicago, IL
3/10/2015 | 9:40 AM - 10:10 AM | Spreading the CMV Message: the Who, How, What, and When | Combs Chandler | 10
Spreading the CMV Message: the Who, How, What, and When
Cytomegalovirus (CMV) is a common virus that is not harmful to most. However, if a woman contracts CMV during her pregnancy and transmits it to her baby, it can cause permanent disabilities and even death. Approximately 1 child in 150 is born with congenital cytomegalovirus (cCMV). In every 5 children born with cCMV, 1 will develop permanent disabilities. cCMV is the leading non-genetic cause of childhood hearing loss and a leading preventable cause of developmental disabilities. cCMV causes more disabilities than many other more well-known conditions such as Down Syndrome and Spina Bifida.
Despite the high prevalence of cCMV infection, awareness of cCMV among the general population is relatively low. In fact, a study done in the U.S. by Cannon et al. (2012) found that in a sample of 4,184 only 13% of the women and 7% of the men were aware of cCMV and there are preliminary results that suggest that specific prevention knowledge of cCMV is even lower than awareness.
One reason cCMV awareness may be low is the lack of information provided to pregnant women by their healthcare provider. cCMV information is also lacking in pregnancy literature. The presenters will highlight data to show the accuracy and amount of information in pregnancy websites and books. Presenters will also highlight CDC research about messages and materials designed to improve knowledge of cCMV and increase motivation to reduce risk of exposure to CMV. Based on presented research, presenters will help participants devise an action plan of how they can help spread the cCMV prevention message. Specifically, participants will map who they believe should be receiving the cCMV message in their state, develop no more than three succinct prevention messages, decipher when the message should be received, and determine how the message will be delivered.
- Discuss the basic tenants of cCMV including characteristics of the virus, modes of transmission, its effects on the fetus, and prevention.
- Describe why there is a lack of awareness of cCMV and why people involved in EHDI should care about cCMV.
- Develop an action plan of how to spread the cCMV message through state EHDI and MCH programs.
Presentation:
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Presenters/Authors
Alyson Ward
(Primary Presenter,POC), NCHAM, alyson.ward@usu.edu;
Ms. Ward earned a MS in Health Education in 2008 through Utah State University and became a certified as a Quality Improvement Advisor by the Institute for Healthcare Improvement in 2015. For the past 15 years, her career efforts have demonstrated commitment to improving public health through health promotion, education, research, policy development, evaluation, and grant development from the community to national levels. Ms. Ward’s positions and interests provide her with broad and valuable experiences in public health. Currently, Ms. Ward is engaged in learning systems development (e.g., coalitions, learning communities, and collaboratives) and children’s health research (e.g., environmental, viral, and genetic factors) as the Director of Quality Improvement at the National Center for Hearing Assessment and Management, an MCHB-funded technical assistance center. She is also the project coordinator of the CMV (cytomegalovirus) Public Health and Policy Conference and serves on the board of the National CMV Foundation.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Sara Doutre
(Co-Presenter), National CMV Foundation, saradoutre@gmail.com;
Sara Doutre is a PHD student studying sociobehavioral epidemiology at Utah State University. She has an MA in education policy studies and a BS in elementary and special education. A former special education teacher, she currently consults with state departments of education and health on special education policy. Her six-year-old daughter is deaf due to congenital cytomegalovirus.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.