18th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 3-5, 2019 • Chicago, IL
2/26/2017 | 1:00 PM - 4:00 PM | CANCELLED: Creating an Interstate Data Sharing Agreement with Your Neighbors | Hanover B
CANCELLED: Creating an Interstate Data Sharing Agreement with Your Neighbors
From 2008 to 2013, the six New England states- Maine, Vermont, New Hampshire, Massachusetts, Rhode Island and Connecticut established the first cross border data sharing agreement. Four Western states- North Dakota, Montana, Wyoming and Idaho have been collaborating since March 2016 to create an interstate data sharing agreement too. The CDC-EHDI team facilitated all the discussions with the western states. In addition, the CDC-EHDI team has captured the entire process in a checklist and guidance document.
In this presentation we will explain the process, things you need to consider and plan, and share the interstate data agreement drafts of both the New England and the Western regions.
- Explain the collaborative process in reaching an interstate data sharing agreement
- what to consider and plan during the drafting phase of the collaboration
- Key Components to an Interstate Data Sharing Agreement
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Presenters/Authors
Sarah Stone
(), MA Dept. of Public Health, sarah.stone@state.ma.us;
Sarah Stone is the Director of the Massachusetts Universal Newborn Hearing Screening Program. She has a hearing loss and has been with the program for over 20 years. She has developed programming for families, including social and educational events. She is a member of the state's Universal Newborn Hearing Screening Advisory Committee.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Janet Farrell
(), Department of Public Health, janet.farrell@state.ma.us;
Janet Farrell is the Program Director for the Massachusetts Department of Public Health, Universal Newborn Hearing Screening Program. She is also the project director for two federal grants related to the program she oversees. She has over twenty-five years experience implementing and overseeing public health programs. Her passion is ensuring young children with hearing loss are identified early and receive appropriate services. She has a strong interest in data/research and has published articles on newborn hearing screening and related topics.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
Nancy Pajak
(), Marion Downs Center, nanpajak@gmail.com;
Nancy Pajak graduated from the University of North Dakota in 1975 with a B.S. In Speech Pathology. She spent two years working as a speech/language therapist in Minnesota public schools before beginning her Master of Science in Audiology studies at Colorado State University. Upon completion of her Masters, Nancy accepted a position with the Colorado West Otolaryngology Practice in Grand Junction Colorado. While Nancy enjoyed the medical setting, her true love was Educational Audiology. She began work at Natrona County School District in Casper WY as the District Audiologist and enjoyed this work until moving to Seattle in 1987. It was in the Pacific Northwest that Nancy found the opportunity to spend half of her time in educational audiology settings and the other half in a medical audiology/otologist environment. Nancy blended diagnostics for all ages of patients, fitting amplification, counseling, and patient care in the medical setting and used her skills in direct intervention and case management for school age children who were Deaf/Hard of Hearing in the educational setting. Nancy worked as the Director of Outreach Services for the Deaf and Hard of Hearing at the Wyoming Department of Education while keeping up her medical skills up at Ivinson Memorial Hospital in Laramie. As the importance of early hearing screening came of age, Nancy accepted the opportunity of designing and implementing the Early Hearing Detection and Intervention (EHDI) Program for the Wyoming Department of Health. She was the Wyoming EHDI Coordinator for 25 years. Nancy is utilizing her knowledge and experience in speech pathology, audiology, program management and child development/education as she serves as the Liaison/Consultant between the Wyoming Early Intervention Initiative (WEII) Program and the Marion Downs Center.
ASHA DISCLOSURE:
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Nonfinancial -
Linda Hazard
(), Vermont Department of Health, linda.hazard@partner.vermont.gov;
Linda Hazard is the Program Director for the Vermont Early Hearing Detection and Intervention Program and the Deaf and Hard of Hearing and Deaf Blind Educational Services Program. She has a masters degree in Audiology and a doctorate in Educational Leadership and Social Policy.
Linda is currently the Past Co-President of DSHPSHWA and serves on two Governor appointed boards in Vermont.
Prior to coming to VTEHDI Linda was the Director of Audiology and the Cochlear Implant Program for the University of Vermont Medical Center. Additionally she worked for Cochlear Americas in clinical research and Advanced Bionics in Education and Training.
ASHA DISCLOSURE:
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Nonfinancial -
Liza Then
(), RI DOH, liza.then@health.ri.gov;
Liza is currently the manager for the Newborn Hearing Screening program and is the EHDI coordinator for Rhode Island. Liza provides oversight for the project and coordinate with other relevant statewide efforts. She previously worked as a parent consultant, and a Community Liaison for RIDOH’s Women, Infant and Children (WIC) Program. Dr. Then is fluent in written and spoken Spanish.
ASHA DISCLOSURE:
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Nonfinancial -
Brian Shakespeare
(), Idaho Sound Beginnings, Brian.Shakespeare@dhw.idaho.gov;
Brian Shakespeare has worked for Idaho Sound Beginnings since 2011; starting as the Data Manager and being promoted as Program Coordinator in 2014. He received his Baccalaureate of Science in Psychology from Boise State University in 2009. Following graduation he worked with children with developmental disabilities for two years, eventually becoming a Certified Behavioral Interventionist. Brian’s major accomplishments with Idaho Sound Beginnings include receiving the Outstanding Organization of the Year Award from the Idaho Chapter of the American Academy of Pediatrics, overseeing data linkages between HiTrack, Idaho’s Early Hearing Detection and Intervention Information System, and the databases of both Idaho Vital Records and ITPKIDS, Idaho’s Part C database, as well as implementing process improvements in screening programs and audiology clinics across the state. Brian enjoys playing soccer, rock climbing, and taking his two Boston Terriers to the park to play Frisbee golf.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Amber Bell
(), Montana Dept of Public Health and Human Services, abell@mt.gov;
Amber Bell is the program coordinator for the Montana Department of Public Health and Human Services, Universal Newborn Screening Program. She is also the program coordinator for the Montana Critical Congenital Heart Disease Screening Program. She has 9 years of experience in public health. She has a strong passion for ensuring that all children receive equal access to health screenings for the best possible outcomes.
ASHA DISCLOSURE:
Financial -
Nonfinancial -