18th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 3-5, 2019 • Chicago, IL
2/27/2017 | 11:05 AM - 11:35 AM | Getting the Support You Need: Implementing Effective Parent Support Programs | Hanover F
Getting the Support You Need: Implementing Effective Parent Support Programs
EHDI TRACK: Family Perspectives and Support
Getting the Support you need: Implementing effective parent support programs
Author: Tiffany Savage, Parent
Affiliations: 1)Texas Hands and Voices, 2)Guide by your side, 3)Moms Matter
Presenter: Tiffany Savage – Breakout presentation only
Parents whose children are diagnosed in an infant screening program are required to make some difficult choices about the management of the hearing loss at a time when they are emotionally vulnerable. They are required to evaluate information and outcomes regarding issues such as technology for hearing impairment, communication options, education, and rehabilitation. The Internet has become an important resource of health information for both health consumers and practitioners. The ability to obtain accurate health information online quickly, conveniently, and privately provides opportunity to make informed decisions. However, parents talking with other parents who have gone down their same path tends to be the best way for parents to feel supported and more at ease as they begin their journey. This presentation will be from a parents perspective to help with the above mentioned issues.
Parents whose children are diagnosed with a hearing loss in an infant screening program usually have little understanding of deafness in children or its management. They are required to weigh up information and possible outcomes regarding issues such as technology, communication options, education, and habilitation at a time when they are emotionally vulnerable. Information may be provided by professionals who hold strong ideological and methodological viewpoints that can be bewildering and unsettling for families.
Key Words: Parent, support, vulnerable, information, families
Contact Information:
Tiffany Savage
tsavage@txgbys.org
479.381.1959
- Where to turn for support
- How to support others
- Navigating this new diagnosis for your child and your family
Presentation:
This presentation has not yet been uploaded.
Handouts:
Handout is not Available
Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Tiffany Savage
(), Texas Hands and Voices, tiffsavage@gmail.com;
Tiffany graduated from Liberty University with BA in Psychology and MS in Human Services and Marriage and Family Counseling.
Tiffany, along with her husband of 28 years, Chris fostered children for eighteen years. She has two biological adult children, one son in law and three adopted children. Two children adopted from foster care and one from Haiti. Her six- year old daughter is profoundly deaf and bi-laterally implanted.
Her heart is for helping others and currently works as a Follow Through Guide for Texas Hand's and Voices, substitute teacher and founder of a non-profit that will be launching this spring. She has led students, women’s and couple’s support groups over the past twenty years and currently leads support groups for moms of deaf/hh children, foster/adopt moms as well as working closely with families of small children and kids aging out of the foster care system. Tiffany serves on several local boards and also serves on the board for Texas Hands and Voices.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
Jennifer Peterson
(), Texas Hands & Voices Guide By Your Side, jpeterson@gbys.txhv.org;
Jennifer is a parent of a child who is hard of hearing, and is a leader in the Texas Hands & Voices Guide By Your Side Program. She engages in outreach to EHDI providers as a member of the Follow Through Guide Project.
ASHA DISCLOSURE:
Financial -
Nonfinancial -