18th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 3-5, 2019 • Chicago, IL

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2/27/2017  |   3:20 PM - 3:50 PM   |  Counseling Families of Children with Auditory Neuropathy Spectrum Disorder   |  Grand Hall C

Counseling Families of Children with Auditory Neuropathy Spectrum Disorder

Auditory Neuropathy Spectrum Disorder (ANSD) is identified at increasing rates, especially as more premature babies are saved and spend extended periods of time in the NICU. The disorder and its outcomes can be quite variable for families who pursue a therapeutic intervention that emphasizes listening and spoken language development. In fact, the hearing journey for a child with ANSD often appears more complex and winding than for that of a child with sensorineural hearing loss. As such, counseling for families of children with suspected or confirmed ANSD can present with its own unique set of challenges and opportunities. Questions such as: “How soon is too soon to implant,” “What if there are conflicting diagnoses?” or “Does my child need therapy if his thresholds are normal?” can lead to stalls, disruptions or terminations of service. However, through a collaborative process of open inquiry, interventionists can empower caregivers with the information and skills to mutually investigate their child’s unique hearing and spoken language abilities. This presentation will address critical ‘decision points’ that arise when collaborating with audiologists, ENTs and parents in the management of pediatric ANSD. It will engage participants in a dialogue about counseling families in circumstances where: the presence of ANSD is not yet confirmed, additional disabilities impede assessment of the child’s listening skills, and the child’s hearing sensitivity experiences fluctuations or dramatic shifts. It will also address how to counsel the family about the kind of assistive technology needed, if at all, to promote long-term success in listening and spoken language development. Each of these ‘decision points’ will be examined through the lens of one or more clinical cases involving the family of a child with ANSD.

  • The learner will be able to list the most common causes of ANSD, define the key assessments used in its diagnosis, and understand the diverse presentation of ANSD among children.
  • The learner will understand the difference between informational and emotional counseling.
  • The learner will be able to provide examples of how counseling or intervention may be adapted to address the specific concerns that are commonly encountered by families in the management of their child's ANSD.

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Presenters/Authors

Aneesha Fairley (), Audtiory-Verbal Center, Inc, afairley@avchears.org;
Aneesha joined Auditory-Verbal Center, Inc. in January of 2011 after serving families of children with hearing loss in both North Carolina and Florida. She received her Master of Science in Speech-Language Pathology in 2004 and her Doctor of Philosophy in Speech & Hearing Sciences in 2010 from the University of North Carolina at Chapel Hill. She has a Certificate of Clinical Competence in Speech-Language Pathology from the American Speech-Language-Hearing Association (ASHA) and a license in Speech-Language Pathology from the Georgia Board of Speech-Language Pathology and Audiology. Aneesha is also a certified Listening and Spoken Language Specialist of the Alexander Graham Bell Academy. She piloted the teleintervention program for AVC in 2011.


ASHA DISCLOSURE:

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Jodi Seligman (), Auditory-Verbal Center, Inc., Jodi@avchears.org;
Jodi is an audiologist for Auditory-Verbal Center, Inc. in Atlanta, Georgia. She earned a Bachelor's in Speech and Hearing Science from the Ohio State University and completed her Doctorate of Audiology (Au.D.) from University of Texas at Dallas Callier Center for Communication Disorders. She enjoys working with individuals of all ages, from newborns to older adults. She is most excited about helping individuals improve their quality of life through amplification and aural re(habilitation). Jodi is licensed as an Audiologist by the Georgia Board of Speech-Language Pathology and Audiology and is a Fellow of the American Academy of Audiology.


ASHA DISCLOSURE:

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Sarah Radlinski (), Auditory-Verbal Center, Inc., Sarah@avchears.org;
Sarah Radlinski, M.S., CCC-SLP, LSLS Cert. AVT is a speech-language pathologist and Listening and Spoken Language Specialist. Since earning her speech pathology master’s degree on the hearing loss specialty track from Vanderbilt University, Sarah has served as the bilingual AV therapist for the Auditory-Verbal Center, Inc. in Atlanta, Georgia. Sarah also currently serves as the Latino Programming Director for the Georgia chapter of the Alexander Graham Bell Association for the Deaf & Hard of Hearing. Sarah additionally serves children in Panama through the Hear the World Foundation; Sarah provides LSL training to the local speech therapist and coaches the families of children who received donated cochlear implants in-person as well as via tele-therapy. Additionally, Sarah mentors AVT mentees internationally and has presented at state, national, and international conferences on topics related to pediatric hearing loss, with a focus on providing culturally and linguistically relevant intervention for Spanish-speaking families.


ASHA DISCLOSURE:

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Lauren Seale (), Auditory-Verbal Center, Inc., lseale@avchears.org;
Lauren joined the Auditory-Verbal Center, Inc. in Atlanta, Georgia in October 2013. She earned her Bachelor’s degree in English from the University of North Carolina in 2004 and her Master’s degree in Communication Disorders from the University of Virginia in 2013. As part of her graduate study, she treated children with hearing loss and their families according to the principles of Auditory-Verbal Therapy. Lauren has her Certificate of Clinical Competence from the American Speech-Language-Hearing Association, and is licensed to practice speech-language pathology in the state of Georgia.


ASHA DISCLOSURE:

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Jonathan Jolivette (), Auditory-Verbal Center, Inc., jonathan@avchears.org;
Jonathan joined the Auditory-Verbal Center in June 2015. He earned his Bachelor’s degree in Communication Sciences and Disorders with a minor in Spanish from the University of Houston and his Master’s degree in Speech-Language Pathology from the University of North Carolina. While at UNC, Jonathan was a participant in a U.S. Department of Education Training Grant which prepared him to serve infants, toddlers and school-age children with hearing loss. Jonathan has presented on topics related to pediatric hearing loss at the Early Hearing Detection and Intervention (EHDI) conference. Jonathan has his Certificate of Clinical Competence from the American Speech-Language-Hearing Association, and is licensed to practice speech-language pathology in the state of Georgia. Jonathan has also earned designation as a Listening and Spoken Language Specialist-Certified Auditory-Verbal Therapist by the Alexander Graham Bell Academy.


ASHA DISCLOSURE:

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Sarah Vanselous (), Auditory-Verbal Center, Inc., Sarah-Macon@avchears.org;
Sarah joined Auditory-Verbal Center, Inc. in June of 2016. She graduated from the University of North Carolina at Chapel Hill with a degree in Speech-Language Pathology. During her time there, she was part of a nationally funded grant for training graduate students to work with children with hearing loss, and devoted much of her coursework and clinical studies to working with the birth-to-five population. She previously graduated from UNC's psychology program in 2012, with a minor in Linguistics, where she developed a passion for language. Outside of her coursework, Sarah has worked as a teacher and researcher for the Middle School Writing Project at UNC-CH, and as a camp counselor for children with language impairments. She also participated in a camp specifically for children with hearing loss in the North Carolina mountains, and trained at the Children's Cochlear Implant Center at UNC. Sarah is licensed to practice speech-language pathology in the state of Georgia.


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Alison Tucker (), Auditory-Verbal Center, Inc., atucker@avchears.org;
Alison Tucker is a certified LSLS Auditory-Verbal Therapist and has worked at the Auditory-Verbal Center, Inc. in Atlanta for the past 15 years. She is also the parent of a profoundly deaf bilaterally implanted teenager who completed the Center's AV program in 1999. Prior to working at the Auditory-Verbal Center, Alison worked as an SLP in a variety of school and early intervention settings.


ASHA DISCLOSURE:

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