19th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 8-10, 2020 • Kansas City, MO
Parent and Stakeholder Collaboration in a Learning Community
In July 2017, NC-EHDI in collaboration with the NC-EHDI Advisory Committee formed a multi-disciplinary learning community (LC) to develop innovative strategies to increase the knowledge and engagement of pediatric healthcare professionals and families in the NC-EHDI system of care. The LC members decided to focus on one county in North Carolina. The LC grew to 21 members from: 1) NC-EHDI, 2) BEGINNINGS, 3) Early Learning Sensory Support Program for Children with Hearing Impairments, 4) Local Pediatric Practice, 5) Local Pediatric Audiologist, 6) NC Hands and Voices, 7) AAP EHDI Chapter Champion, 8) North Carolina School for the Deaf, 9) Part C-Early Intervention, 10) Care Coordination for Children (CC4C), and, 11) parent partners, representing both visual and spoken communication modalities. The LC held numerous conference calls and 3 in-person meetings and through education and discussion of the needs of the county decided that one of the biggest issues for both parents and professionals was locating credible resources. In response to this, the LC developed a comprehensive resource list for parents and professionals. The NC-EHDI website was determined to be the best location for a searchable resource list. Educating primary care providers about the NC-EHDI Program and the resource list was also a top priority. A new NC-EHDI rack card was developed in response to many of the LC members expressing that they were not familiar with the term EHDI. This rack card will be included in mailings and trainings with pediatric healthcare professionals. This presentation will focus on the creation of a collaborative learning community and the strategies developed by the LC members to address knowledge and engagement of pediatric healthcare professionals and families in the NC-EHDI system.
- Participants will be able to describe steps to building a learning community.
- Participants will be able to describe the importance of engaging all stakeholders in a learning community.
- Participants will be able to describe the process to creating a comprehensive resource list.
Poster:
21060_12798JudeWilliams.pdf
Presenter: Jude Williams
Jude has worked with the NC-EHDI Program for 13.5 years. Jude has her BS in Biology and MPH in Health Behavior/Health Education.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
I received my undergraduate and graduate degrees at UNC Greensboro in Speech/language Pathology. Worked in early intervention for 22 years and have spent the last 10 years working with the EHDI program.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Dr. Fort is the Genetics and Newborn Screening Unit Manager in the Whole Child Health Section of the North Carolina Division of Child and Family Well-Being and serves as the NC EHDI Coordinator. Marcia has worked with the NC EHDI program since 2002. Dr. Fort has 32 years of experience as a pediatric audiologist in hospital, private practice, ENT office and public school settings.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
EHDI Parent Consultant, North Carolina Division of Public Health, Raleigh, NC. Work with the EHDI Team to improve family support and engagement throughout the state.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.