2022 Early Hearing Detection & Intervention Virtual Conference
March 13 - 15, 2022
3/15/2022 | 10:00 AM - 10:25 AM | Supporting Parental Learning and Decision-Making with Web-Based Resources: How are we doing? | Room 4
Supporting Parental Learning and Decision-Making with Web-Based Resources: How are we doing?
Growth of the Internet as an information resource has provided expanded opportunities for families to easily gather information. The Pew Research Center reported that 72% of mothers sought medical information on the Web during the timeframe March-May 2021. Internet use is highest among those 18-49. While utilization is slightly lower among certain groups (lower socio-economic and education), it is still above 75% across race, income and education. Among wired parents, 61% had make use of governmental websites.
State EHDI websites are an important opportunity for families seeking information on options for their children who have been identified as deaf or hard of hearing. The sites should be parent-friendly and free of jargon given the overwhelming confusion (and even despair) that parents experience upon receiving a diagnosis for their child. Vocabulary should be explained; many families note that don’t know what “early intervention” means. Parents need to know “What should we do? What comes next? Who can I talk to?” EHDI Websites provide an opening to address such uncertainty and conform with the Federal legislative mandate that “Information provided to families should be accurate, comprehensive, up-to-date, and evidence-based … to allow families to make important decisions for their children in a timely manner, including decisions with respect to the full range of assistive hearing technologies and communications modalities”.
A review was conducted of the 50 state and DC websites to assess whether essential need-to-know data was provided clearly, comprehensively, and without bias on: hearing loss basics, technology and communication options, and resources for family support. Scoring used objective criteria with 26% rated as excellent, 35% as “somewhat helpful”, and 39% as “inadequate”.
Findings will precede audience discussion of possible options including provision of data that may be utilized by each state, suggested resources, and possible online learning opportunities.
- After the presentation, attendees can review a state’s EHDI Website and its potential to support a family’s early journey after learning that their child is deaf or hard of hearing.
- After the presentation, attendees will be able to identify opportunities to improve the information provided to families via the state EHDI Website.
- After the presentation, attendees will be able to explore the ways other states have addressed information provision and parent interactions via the Internet.
Presentation:
3353554_14994LauriNelson.pdf
Handouts:
Handout is not Available
Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Lauri Nelson
(), Utah State University, lauri.nelson@usu.edu;
Lauri Nelson is a Professor in the Department of Communicative Disorders and Deaf Education at Utah State University. She is the Deaf Education Division Chair, the Director of the Listening and Spoken Language Deaf Education graduate training program and Sound Beginnings. She was one of the co-founders of the Hear to Learn website. She has a dual background as both a pediatric audiologist and LSL deaf educator.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Nichole Westin
(), American Cochlear Implant Alliance, nwestin@acialliance.org;
Nichole Westin MA has been the Director of Government Affairs at the ACI Alliance since 2018. She has worked in advocacy since 1998 when she began her career working for the U.S. Senate. Ms. Westin has successfully managed policy campaigns at both the federal and state levels on issues ranging from export sales to payroll taxes to school nutrition. Since joining ACI Alliance, Ms. Westin has worked on a variety of parent support issue and provided one on one support on complicated insurance questions. She also leads the two advocacy networks, including CI CAN which is devoted solely to sharing the experiences of consumers and families. Ms. Westin enjoys using her experience within the federal government and other non-profits to educate people on being effective advocates for their priority policy issues.
ASHA DISCLOSURE:
Financial -
• Receives Salary for Employment from American Cochlear Implant Alliance.
Nonfinancial -
No relevant nonfinancial relationship exist.