15th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 13-15, 2016 • San Diego, CA
3/14/2016 | 2:30 PM - 3:00 PM | Topical Session 2 | Pacific Salon 6/7 | 6 - Follow-up, Tracking and Data Management
Challenges in Collecting and Using EHDI Data: What Next?
Through the successful implementation of Early Hearing Detection and Intervention (EHDI) programs, states and territories have made notable progress in being able to identify deaf and hard of hearing infants soon after birth. This progress has been made possible in part by the development of EHDI Information Systems (EHDI-IS), which are one of the tools that programs use to help make sure all infants are screened and receive recommended diagnostic and intervention services. Through the use of EHDI-IS programs are able to capture information about many aspects of the screening and follow-up process, including why infants do not receive services. These systems also make it possible for programs to report data each year to the Centers for Disease Control and Prevention, which along with national partners use these data to help assess progress and identify areas for continued improvement. An area where additional progress is needed involves ensuring that all infants receive recommended follow-up services. EHDI-IS need to consistently capture complete and accurate data in a standardized way before they are able to help programs fully address this problem. The data then need to be used by programs in ways that help infants receive recommended follow-up. Given that data reporting may not be required and that programs often have limited resources, obtaining and using these data can be challenging. Other challenges include determining what information should be collected now and in the future, defining the role of interoperability and quality measures in EHDI-IS, and how data are analyzed and reported. This presentation will discuss ways of addressing these challenges and the potential benefits of doing so. It will also highlight technical assistance available to EHDI programs.
- Discuss the ways data supports programs in the early identification of deaf and hard of hearing children.
- Describe how the collection, reporting, and analyses of EHDI related data can be improved through advances in technology and the use of national standards.
Presentation:
This presentation has not yet been uploaded or the speaker has opted not to make the presentation available online.
Handouts:
Handout is not Available
CART:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
(), ;
ASHA DISCLOSURE:
Financial -
Nonfinancial -
Marcus Gaffney
(Primary Presenter,POC), CDC, MGaffney@cdc.gov;
Marcus Gaffney is a Health Scientist and serves as the lead for the CDC EHDI Team. He has over 14 years’ experience working in the area of newborn hearing screening and is responsible for overseeing a range of activities, including supporting the development of jurisdictional EHDI Information Systems, assessing progress towards national goals, providing technical assistance, and supporting research efforts. He holds a Masters of Public Health from Mercer University.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Craig Mason
(Co-Presenter), University of Maine, craig.mason@maine.edu;
Craig Mason, Ph.D. is a Professor of Education and Applied Quantitative Methods at the University of Maine. He received his PhD in Clinical Child Psychology from the University of Washington and his interests include informatics, newborn hearing loss, and quantitative methods. Dr. Mason has been PI or Co-PI on numerous grants and contracts from the National Science Foundation, the National Institutes of Health, the Centers for Disease Control and Prevention, and the Department of Education. In addition, he has published, presented, and taught on multivariate analysis, multi-level modeling, epidemiological analysis, structural equation modeling, and growth modeling. He has been invited to present on methodology and informatics by the Centers for Disease Control and Prevention, the National Association for Public Health Statistics and Information Systems, the Department of Health and Human Services, the Association of Maternal and Child Health Programs, and other national organizations.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Karl White
(Co-Presenter), Utah State University, karl.white@usu.edu;
Dr. White is a Professor of Psychology, the Emma Eccles Jones Endowed Chair in Early Childhood Education, and the founding Director of the National Center for Hearing Assessment and Management. He has been the PI or Co-PI for over $50 million of competitively awarded research. His work has been recognized with awards from such diverse organizations as the Deafness Research Foundation, the American Association for Speech Language and Hearing, The Swedish Society of Medicine, and the Alexander Graham Bell Association for the Deaf. He has hundreds of publications and presentations at scholarly meetings, and has been an invited speaker to more than 35 countries. He also serves on many national and international advisory groups for organizations such as the United States Department of Health and Human Services, the World Health Organization, the Institute of Medicine, and the American Academy of Pediatrics.
ASHA DISCLOSURE:
Financial -
Nonfinancial -