15th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 13-15, 2016 • San Diego, CA
3/06/2012 | 9:40 AM - 10:10 AM | Grand Ballroom A | 6 - Follow-up, Tracking and Data Management
Family Advisory Boards: Making them Meaningful
Family Involvement comes in many forms. Contributions from individual parent leaders, Family organizations, and Family Advisory Boards are a few examples of how family input is received in different aspects of the EHDI system. This session will focus primarily on the function and dynamic process of ‘Advisory Boards’, and share elements from a few models of family involvement including:
1. The NCHAM Family Advisory Board
2. The NICHQ Parent Faculty Chair Position
3. The Deaf/Hard of Hearing Alliance (DHHA)
4. The National Center for Cultural Competency Parent Consultant Position
While active Family Involvement is a principle that is often put forth as a necessity, actual meaningful participation requires conditions in which parent perspective can be introduced and acted upon. This session will demonstrate dynamic, often ‘outside the box’ participation by individuals, groups, and organizations with examples of organizational change that has been implemented as a result. Basic strategies will be shared, including how to engage families when certain challenges exist, including: Availability of time constraints, ensuring diverse perspectives, pros and cons of funded vs. unfunded positions etc.
- 1. Identify the major functions of Family Advisory Boards in developing collaborative partnerships 2. Learn about different elements family members can contribute to Grants, National Centers, Committees and other venues for Family involvement 3. Determine ways to strengthen partnerships among EHDI and Family organizations
Presentation:
This presentation has not yet been uploaded or the speaker has opted not to make the presentation available online.
Handouts:
Handout is not Available
CART:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Janet DesGeorges
(), Hands & Voices, Headquarters, janet@handsandvoices.org;
Janet DesGeorges lives in Boulder, Colorado and is mom to Sara, who is hard of hearing. She is a co-founder of Hands & Voices, serving as the Executive Director since September 2011, and as the E.D. of the Flagship chapter of Hands & Voices in Colorado for 10 years prior to that. Ms. DesGeorges is the author on the chapter for Family Support in the NCHAM e-Book, the co-author of the book Educational Advocacy for Students who are Deaf and Hard of Hearing: The Hands & Voices Guidebook, and many other publications. Ms. DesGeorges received a program certificate from the MCH Public Health Leadership Institute in 2011 at the University of North Carolina – Chapel Hill. Her areas of interest include Leadership Development for parents; Early Hearing Detection and Intervention Systems; Parent/Professional partnerships in Quality Improvement processes.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Trish Thomas
(Co-Presenter), Nt'l Center for Family-Professional Partnerships, tthomas@familyvoices.org;
Trish has been a leader in the field of family-professional partnerships, serving as the coordinator for the New Mexico Family Voices chapter and later as the partnerships coordinator at National Family Voices. Trish has a son with hearing loss, and advocating for hearing-related needs is a particular passion.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
Cheri Dowling
(Co-Presenter), American Society for Deaf Children, cad800@aol.com;
Cheri Dowling is the Executive Director of The American Society for Deaf Children (ASDC). She is the parent of a child who is deaf, and lives in Maryland.
ASHA DISCLOSURE:
Financial -
Nonfinancial -