18th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 3-5, 2019 • Chicago, IL
3/06/2012 | 3:05 PM - 3:35 PM | Distinguishing Experiences in Parent-to-Parent Support for Families with DHH Children | Grand Ballroom B | 6
Distinguishing Experiences in Parent-to-Parent Support for Families with DHH Children
The purpose of this presentation will be to describe the experiences of families of deaf or hard of hearing children who receive parent-to-parent support in Southern California.
It is known nationally that there continues to be a shortage in the timely delivery of early intervention services to families who learn their child may be deaf or hard of hearing, despite amazing gains with the Universal Newborn Hearing Screening Program. While the implementation of the Newborn Hearing Screening has improved, the follow-up process has suffered from gaps in funding. National data indicates roughly 44% of infants who did not pass their most recent hearing screening were lost to follow-up or to documentation (Center for Disease Control, 2009). More alarming, however, is the national data that indicates 32% of children with identified as deaf or hard of hearing are not receiving early intervention services (Center for Disease Control, 2009).
The Deaf Education And Families Project (DEAF Project) provides support, empowerment, referrals to early intervention programs and other services, and educational activities to families of children (birth-21 years) who are Deaf or Hard of Hearing (DHH), as well as the professionals who work with them. To date, we have served over 1,400 families and individuals within the Southern California community. Approximately 1/3 of the families served are Spanish-speaking.
This presentation will discuss data obtained throughout the last 4 years of project implementation. Discussion will include the nature of the contacts made, the kinds of supports parent mentors provided, and the questions families have asked when speaking with parent mentors. Information and support requested by Spanish-speaking and English-speaking families will be addressed.
- 1) Identify families' primary needs from parent-to-parent support. 2) Understand differences between English-speaking and Spanish-speaking families' needs in parent-to-parent support. 3)Distinguish systems for providing optimal family-to-family support.
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Presenters/Authors
Rachel Friedman Narr
(POC), California State University, Northridge , rachel.narr@csun.edu;
Rachel Friedman Narr, Ph.D. is an Professor at California State University, Northridge in the Department of Special Education, where she prepares teachers to work in the area of Deaf Education. She maintains her Certificate in Clinical Competence from ASHA as a Speech-Language Pathologist. Rachel is the Project Coordinator for Parent Links and the Deaf Education And Families Project at the Family Focus Resource Center at CSUN. Both projects provide outreach and parent-to-parent support for families with deaf/hard of hearing children, as well as outreach and education to professionals.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.