18th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 3-5, 2019 • Chicago, IL
4/16/2013 | 11:00 AM - 12:00 PM | Autism in Children who are Deaf/Hard of Hearing | Solana B | 3
Autism in Children who are Deaf/Hard of Hearing
Background: 4-5% of children who are deaf/hard of hearing have an autism spectrum disorder (ASD). This presentation will combine information from the literature, a retrospective chart review of children with a dual diagnosis and feedback from family and professional focus groups to understand the needs related to communication, functional skills, and care coordination.
Chart Review: Among 24 children with ASD and HL, the median non-verbal IQ was 76 (range 32-133), the median age of diagnosis of HL was 14 months (range 1-71), while the median age of ASD diagnosis was 66.5 months (range 33-106). Only 25% (n=6) children were diagnosed with ASD <48 months of age and 46% by <6 years. The median time between identification of HL and ASD diagnosis was 41 months (range 6-105). Children who received cochlear implants completed multidisciplinary evaluations which may have provided closer monitoring of progress and led to an earlier ASD diagnosis.
Focus Group: Parent participants identified the internet as a useful resource, social skills and functional skill development as a priority, and the child’s educational programming provided as helpful. There was a need for more training for professionals to understand their area of non-expertise (i.e. autism professionals learning more about deafness and vice versa).
Professional participants expressed a need for collaboration, better family education, and challenges with interpreting. Receiving appropriate and consistent information from the child’s team and improving communication among team members was viewed as a critical need. Without this collaboration parents may be less likely to receive uniform information and may not have access to sources of information with relevance to their child’s needs.
Conclusions: Children who are deaf/hard of hearing often receive their diagnosis of ASD late, thus delaying appropriate intervention for communication and behavioral needs related to ASD. This disparity must be addressed to allow for improved outcomes.
- Participants will understand the negative impact of the late age of diagnosis of autism spectrum disorder for children who are deaf/hard of hearing
- Participants will describe the needs of families related to the dual diagnosis of autism spectrum and hearing loss.
- Participants will describe strategies for improved collaborations across various therapeutic settings.
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Presenters/Authors
Susan Wiley
(POC,Primary Presenter,Author), Cincinnati Children's Hospital Medical Center, susan.wiley@cchmc.org;
Dr. Susan Wiley is a developmental pediatrician with extensive expertise in children who are deaf/hard of hearing. She has many years of experience serving children with multiple disabilities. Dr Wiley provides leadership and guidance to the National American Academy of Pediatrics, the Ohio Department of Health Early Hearing Detection and Intervention Program, the Ohio Center for Deaf-Blind Education, and the Outreach Center for Deafness and Blindness in the Ohio Center for Low Incidence.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Jareen Meinzen-Derr
(Author), Cincinnati Children's Hospital Medical Center, jareen.meinzen-derr@cchmc.org;
Dr. Meinzen-Derr is quantitative epidemiologist at the Cincinnati Children's Hospital Medical Center. She has focused her research on outcomes of children who are deaf or hard of hearing, and specifically those who have additional developmental disabilities.
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Nonfinancial -
Samantha Gustafson
(Co-Presenter,Author), Vanderbilt University, samantha.gustafson@vanderbilt.edu;
Samantha Gustafson, AuD, CCC-A, is currently a PhD student at Vanderbilt University. She earned her B.S. in Speech and Hearing Science (2008) and her Doctorate of Audiology (2012) from Arizona State University. During her graduate studies, she worked as a research assistant in the Pediatric Amplification Lab at Arizona State University and also trained at Boys Town National Research Hospital in the Hearing Aid Research Lab. Samantha completed her clinical externship at Cincinnati Children's Hospital where she also served as a Leadership Education in Neurodevelopmental and Related Disabilities (LEND) trainee. Her past research experiences include the effectiveness of advanced signal processing in children's hearing aids, procedures for incorporating real-ear measures into hearing aid fittings, and clinical measures of middle ear pathology in typically developing infants and children with Down syndrome. Her research interests are in individualizing audiological approaches to fit hearing aids for children with varying cognitive and developmental disabilities.
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Donna Murray
(Author), Cincinnati Children's Hospital Medical Center, Donna.Murray@cchmc.org;
Dr. Murray is a speech pathologist with expertise in autism spectrum disorders. She is the clinical director of the Division of Developmental and Behavioral Pediatrics at Cincinnati Children's Hospital Medical Center. She has built a strong autism treatment program and is a co-investigator for the autism treatment network at the Cincinnati site.
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Nonfinancial -
Patricia Manning-Courtney
(Author), Cincinnati Children's Hospital Medical Center, Patty.Manning@cchmc.org;
Dr. Manning is the clinical director of the Kelly O'Leary Center for Autism Spectrum Disorders. She is the co-investigator of the autism treatment center at the Cincinnati site. She has worked with the American Academy of Pediatrics related to the field of autism spectrum disorders.
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Nonfinancial -