18th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 3-5, 2019 • Chicago, IL
4/16/2013 | 1:45 PM - 2:45 PM | EHDI and NewSTEPs: Building Collaborations for Healthy Babies through Newborn Screening | Aurora C/D | 9
EHDI and NewSTEPs: Building Collaborations for Healthy Babies through Newborn Screening
Newborn screening (NBS) activities, while guided by national recommendations, are independently implemented by state-based programs. Early Hearing Detection and Intervention (EHDI) programs are funded through the Centers for Disease Control and Prevention (CDC) in most states in the United States. EHDI programs provide support for screening and referral procedures, tracking and surveillance systems, and educational materials to stakeholders of newborn hearing screening. NewSTEPs, the Newborn Screening Technical assistance and Evaluation Program, is a comprehensive newborn screening resource center (funded through the US Department of Health and Human Services (HHS) Health Resources and Services Administration (HRSA)). NewSTEPs will provide a data repository, technical assistance, and education/advocacy efforts for newborn screening programs throughout the United States. One critical component of NewSTEPs is a Continuous Quality Improvement (CQI) program that will assist states in identifying benchmarks and creating strategies to improve their newborn screening programs. Most newborn hearing screening and bloodspot based newborn screening programs are managed by parallel and sometimes identical groups within a state public health department. Duplicative efforts may be common and unnecessarily redundant programs are likely tracking and reporting similar data to external stakeholders. Intentional collaboration between EHDI programs and NewSTEPs may provide a streamlined consistency for state-based newborn screening programs and serve to improve data collection and benchmarking processes for both programs while decreasing the effort needed to report data. An innovative systems approach coordinated between EDHI and NewSTEPs may facilitate harmonization among partners and lead to better coordinated systems, robust data and more effective NBS that will improve program quality and child health outcomes.
- Identify the goals of NewSTEPs and describe similarities to EHDI program requirements.
- Describe opportunities for partnership between NewSTEPs and EHDI programs.
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Presenters/Authors
Marci Sontag
(POC,Primary Presenter,Co-Presenter), NewSTEPs, marci.sontag@ucdenver.edu;
Marci Sontag, PhD is the Director of Epidemiology for NewSTEPs, the Newborn Screening Technical Assistance and Evaluation Program. She is guiding the efforts to develop the newborn screening data repository. She is an epidemiologist at the Colorado School of Public Health and has worked in cystic fibrosis newborn screening since 1995. She is also working within the Mountain States Region to support Critical Congenital Heart Disease Newborn Screening.
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Jelili Ojodu
(Co-Presenter), Association of Public Health Laboratories , jelili.ojodu@aphl.org;
Jelili Ojodu, M.P.H., is the director for Newborn Screening and Genetics Program at the Association of Public Health Laboratories (APHL). He is also the project director for the Newborn Screening Technical assistance and Evaluation Programs (NewSTEPs). Mr. Ojodu is responsible for providing guidance and direction for the Newborn Screening and Genetics in Public Health Program.
Prior to joining APHL, he spent four years at Georgetown University Medical Center on a National Institutes of Health initiative to reduce infant mortality in the District of Columbia as a research associate. He received his Masters in Public Health from The George Washington University and a Bachelor of Science degree in Biological Sciences from the University of Maryland, College Park.
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Yvonne Kellar-Guenther
(Co-Presenter), NewSTEPs, marci.sontag@ucdenver.edu;
Yvonne Kellar-Guenther is an Associate Professor in the Colorado School of Public Health in the department of Community and Behavioral Health. She received her doctorate in Interpersonal Communication from Arizona State University where she studied the role of personal relationships and health choices. Yvonne is the program evaluator for NewSTEPs. She has been conducting program evaluation for about 15 years.
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