2023 Early Hearing Detection & Intervention Conference
March 5-7, 2023 • Cincinnati, OH
DUKE ENERGY CONVENTION CENTER
Building capacity for engaging families in early hearing detection and intervention research
Research with children who are deaf/hard-of-hearing (CDHH) using the traditional top-down approach has generated important knowledge related to early hearing detection and intervention (EHDI) (i.e., screening, diagnostic and early intervention), and areas central to CDHH (i.e., linguistic, cognitive, psychosocial development). However, without parent input on the research process, the traditional approach potentially overlooks critical questions, effective data collection methods for families across education and income levels, and dissemination of findings to stakeholders. CBPR is warranted given the complex and often intersectional issues specific to families of CDHH in addition to existing family challenges.
The proposed solution is to build the capacity of parents of CDHH to engage in PCOR/CER by applying established methods for engaging stakeholders and identifying PCOR/CER topics. The project team will recruit parents/caregivers from diverse backgrounds to establish a Family Research Council (FRC). The FRC will engage in trainings designed to provide them with foundational knowledge about PCOR/CER, Ohio’s EHDI program, and research conducted at BCHD. The FRC will engage in a series of engagement sessions to generate, refine, and prioritize topics, and develop a final report to share with researchers and stakeholders.
- Describe the value of a community-based participatory research (CBPR) approach.
- Describe strategies for meaningfully engaging stakeholders in the research process (conducting research with stakeholders, not just on stakeholders).
- Describe how CBPR will be applied to the context of families of deaf/hard-of-hearing children.
Poster:
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Presenter: Carrie Davenport
Carrie Davenport, Ph.D., is a Postdoctoral Researcher in the Department of Otolaryngology at The Ohio State University Wexner Medical Center. Carrie is a teacher of the deaf by training with a Master's degree in Family-Centered Early Education from Gallaudet University. She earned her doctorate in special education at OSU in 2017. Prior to entering the PhD program at OSU, she was the Early Childhood Consultant for the Center for Outreach Services at the Ohio School for the Deaf. Carrie is a founding Board member of Ohio Hands & Voices. Her research interests include parental self-efficacy, parent-to-parent support, and parent-infant interaction. She is especially interested in building academic-community partnerships with families with deaf/hard-of-hearing children and other stakeholders.
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No relevant financial relationship exist.
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Ursula M. Findlen, Ph.D., is the Director of Audiology Research in the Division of Clinical Therapies- Audiology Department at Nationwide Children’s Hospital and an Assistant Professor-Clinical at The Ohio State University College of Medicine, Department of Otolaryngology- Head and Neck Surgery. Dr. Findlen engages in clinical practice and research endeavors related to pediatric (re)habilitative audiology, particularly in regards to a multidisciplinary team approach to family-centered care. Her research interests include infant diagnostics and improving outcomes of children with hearing loss through systematic quality improvement and population health endeavors.
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No relevant financial relationship exist.
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No relevant nonfinancial relationship exist.
Dr. Lisa M. Vaughn is Professor of Pediatrics at University of Cincinnati College of Medicine/Cincinnati Children’s Hospital Medical Center with a joint appointment in the Educational Studies Community-Based Action Research PhD program at the University of Cincinnati. She is formally trained as a social psychologist. Dr. Vaughn has specific expertise in qualitative and participatory research methodologies and community-engaged research with a focus on health equity and wellbeing of vulnerable and immigrant families and youth. She has an impressive and established track record with a significant number of grant funded projects, over 100 refereed manuscripts and 200+ conference presentations, 5 books, and 18 book chapters. She has been involved in numerous projects either as a Principal or Co-Investigator that engage community stakeholders in the research process and use innovative, participatory methodologies.
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Dr. White is a Professor of Psychology, the Emma Eccles Jones Endowed Chair in Early Childhood Education, and the founding Director of the National Center for Hearing Assessment and Management. He has been the PI or Co-PI for over $50 million of competitively awarded research. His work has been recognized with awards from such diverse organizations as the Deafness Research Foundation, the American Association for Speech Language and Hearing, The Swedish Society of Medicine, and the Alexander Graham Bell Association for the Deaf. He has hundreds of publications and presentations at scholarly meetings, and has been an invited speaker to more than 35 countries. He also serves on many national and international advisory groups for organizations such as the United States Department of Health and Human Services, the World Health Organization, the Institute of Medicine, and the American Academy of Pediatrics.
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Ann Scheck McAlearney, ScD, MS, is Associate Dean for Health Services Research, Distinguished Professor of Family and Community Medicine, and Executive Director of CATALYST, the Center for the Advancement of Team Science, Analytics, and Systems Thinking in Health Services and Implementation Science Research in the College of Medicine (COM) at The Ohio State University (OSU). She has over 30 years of health services research experience during which she has been actively involved in both performing research and disseminating research results to academic and practitioner audiences. Dr. McAlearney is internationally known for her expertise in both qualitative and mixed methods analyses, and has been continuously funded for over 20 years. She has authored over 350 peer-reviewed publications, 11 books/edited books and more than 100 book chapters. Dr. McAlearney received her undergraduate and graduate degrees from Stanford University and Harvard University’s School of Public Health.
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Irina Castellanos, PhD is an Assistant Professor and Philip Holton Scholar in the Department of Otolaryngology - Head and Neck Surgery at Indiana University School of Medicine. Dr. Castellanos received her Ph.D. in Developmental Science from Florida International University, where she was trained in multisensory perception. She then completed a postdoctoral fellowship at Indiana University School of Medicine, where she focused on how neurocognitive systems are impacted by a period of early auditory deprivation in children who use cochlear implants. Dr. Castellanos’ research seeks to understand the dynamic interplay between the brain, body, and environment, and focuses on three areas of research involving the development of: (1) emotional and behavioral regulation, (2) conceptual thinking and reasoning, and (3) embodied visual attention during early language learning.
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Derek M. Houston, PhD, received his doctorate in cognitive psychology from Johns Hopkins University in 2000, focusing on how typically developing infants segment words from fluent speech and recognize words across different talkers. After graduating, he constructed the world's first laboratory to investigate the speech perception and language skills of deaf infants who receive cochlear implants at Indiana University. Since then, his work (supported by NIDCD) has investigated the role of early auditory experience and parent-child interactions on cognitive, linguistic, and social building blocks of language development. He also engages in community-based participatory research aimed at addressing barriers families face in obtaining high-quality early intervention services for their children.
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