2023 Early Hearing Detection & Intervention Conference
March 5-7, 2023 • Cincinnati, OH
DUKE ENERGY CONVENTION CENTER
3/07/2023 | 11:00 AM - 11:30 AM | Deaf with Disabilities - Parent Professional Perspective | DECC 236
Deaf with Disabilities - Parent Professional Perspective
An estimated 40% of all children who are deaf/hard of hearing have a secondary disabling condition listed on their IFSP, IEP or 504 documents, some more than that. Because most interventionists have not been trained to work with these children, they can present a special challenge. This presentation provides information regarding what struggles we see with these students today and down the road once they are in the classroom setting. The presenters will share some tips for early interventionists that can be used to enhance therapies for babies and toddlers as well as parent support. The presenters are both parents, one is a parent of a 19-year-old who has gone through early intervention and mainstream public school with comorbid ADHD and Deafness. The other presenter has a kindergarten child who has multiple medical and developmental needs. The presenters will go into depth about the needs of their children and how you can help. This session will include specific examples that the presenter’s families have faced and solutions that proved successful. If you have clients who have children with multiple needs, this is a great way to hear real life tips and tricks that worked for these families.
- Participants will get a bird’s eye view of life with a child who is deaf and also has multiple disabilities
- Attendees will learn what types of interventions work best for these mulit-challenged children
- Professionals will leave with background knowledge on deafness with other disabilities, how many are we talking about, what types could they see, etc.
Presentation:
3420032_15579AndreaMarwah.pdf
Handouts:
Handout is not Available
Transcripts:
3420032_15579Andrea Marwah.docx
Presenters/Authors
Andrea Marwah
(), IL School for the Deaf Outreach, andrea.marwah@illinois.gov;
Andrea Marwah received her B.A. in Psychology from North Central College. Since her daughter’s diagnosis of hearing loss in 2002, Andrea has devoted her career to educating parents and professionals about the ADA, IDEA, and effective advocacy for students who are deaf or hard of hearing. She is a sought-after presenter both locally and nationally, speaking on topics such as special education rights and advocacy, the impact of deafness and hearing loss (especially when combined with other disabilities), socialization and Theory of Mind, and best practices for supporting children who are deaf or hard of hearing. Andrea currently works for the Illinois Department of Human Services – Illinois School for the Deaf as an outreach trainer and consultant for families and professionals serving children who are deaf, hard of hearing, blind, visually impaired, or deaf-blind. She also serves as a parent advocate, helping Illinois families secure appropriate educational supports and services for their children, and collaborates closely with the Illinois Early Hearing Detection and Intervention (IL EHDI) Program. In addition, Andrea lead the Illinois chapter of Hands & Voice for 16 years. She continues her work with the organization as the IDEA Liaison for the Guide By Your Side Program, providing unbiased information, one-on-one advocacy, and IDEA support to families. She is also a national trainer for the Hands & Voices ASTra Program, a member of the Hands & Voices Speakers Bureau and a member of COPAA (Council of Parent Advocates and Attorneys). Andrea serves on numerous local and national committees and previously completed six years of service on the Advisory Commission on Disabilities in her hometown of Naperville, Illinois. She lives there with her husband, Ajay, and they are the proud parents of three young adult children—Samantha, Julia, and Andrew.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
Financial relationship with Il Hands & Voices.
Nature: cover conference fees including registration, lodging and meals and travel.
Nonfinancial -
No relevant nonfinancial relationship exists.
Amy Keslinke
(), Illinois Hands and Voices, amy.keslinke@ilhandsandvoices.com;
Amy Keslinke is an educator with experience teaching students from third grade into adulthood. When she learned during her second pregnancy that her son would be born with a congenital heart defect, she knew her life as a parent would change. When he was diagnosed with severe-to-profound hearing loss at six months old and continued to accrue multiple other medical diagnoses before his first birthday, Amy developed a special interest in empowering parents of children who are deaf with disabilities. Amy has presented at the state and national levels and is acting executive director of the Illinois Hands and Voices, providing unbiased support to parents of children who are deaf and hard of hearing, many of whom have additional disabilities. She is about to complete her masters degree in social work and is a school social work intern in a special education cooperative in the suburbs of Chicago. She lives in Gilberts, Illinois, with her husband, Dan, and children, Emerie and Evan.
ASHA DISCLOSURE:
Financial -
• Receives Salary for Employment,Teaching and speaking from Elgin Community College.
• Receives Salary for Independent contractor from Illinois Hands and Voices Guide By Your Side.
• Receives Salary for Independent contractor from Illinois Service Resource Center.
• Receives Salary for Employment,Teaching and speaking from Northwestern Illinois Association.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
Financial relationship with Illinois Hands and Voices Guide by Your Side
Illinois Service Resource Center
Elgin Community College
Northwestern Illinois Association
Chicago Hearing Society.
Nature: Employment and/or contract work.
Nonfinancial -
No relevant nonfinancial relationship exists.