2023 Early Hearing Detection & Intervention Conference
March 5-7, 2023 • Cincinnati, OH
DUKE ENERGY CONVENTION CENTER
3/07/2023 | 11:00 AM - 11:30 AM | Understanding Barriers to Newborn Hearing Screening Follow-up in Arkansas using a Community Based Approach | DECC 205
Understanding Barriers to Newborn Hearing Screening Follow-up in Arkansas using a Community Based Approach
While Arkansas is quite successful with initial infant hearing screening (98-99%), we have a very high loss to follow-up rate in newborns who are referred for additional testing- only 30-40% of babies received their diagnosis by 3 months. In order to improve early detection of hearing loss, UAMS partnered with Arkansas Hands & Voices (ARH&V) and the Arkansas Department of Health Infant Hearing Program to evaluate the parent perceived issues and barriers that prevent infants from receiving timely follow-up after they do not pass their initial hearing screening.
We used a QR code linked electronic anonymous survey focused on parents who are in the process of obtaining diagnostic testing for hearing loss, as well as ARH&V membership as a whole and Guide By Your Side contacts. The survey focuses on communication received about newborn hearing screening (how well it was communicated and by whom) and possible areas of difficulty they may have encountered (such Cost/Financial Concerns, Transportation issue, COVID-19 concerns, Health issues within the family, etc.).
Initial survey responses indicated that the most common issue raised by parents was lack of communication and information about the hearing screening. Multiple responders asked specifically for prenatal education about hearing screens. The second most common issue for parents was anxiety/fear of diagnosis. The remaining issues were reported to be encountered much less often. At least 60% of respondents stated no problems with scheduling appointments, distance, travel, cost etc.
Based on the preliminary responses, specific focus groups looking at different issues of prenatal education and communication regarding follow-up testing will be conducted and the results will be shared during the presentation. A qualitative approach will be used to assess the type of communication and information which is most appropriate and effective in the prenatal and perinatal period.
- Identify important questions to ask parents on their newborn hearing screening experience.
- List 1-2 barriers discovered in the newborn hearing screening experience in Arkansas.
- Develop ideas to create and distribute a survey in their own state/organization.
Presentation:
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Handouts:
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Transcripts:
3420032_15610DeanneKing.docx
Presenters/Authors
Deanne King
(), UAMS, dking3@uams.edu;
Deanne L. King is the Director of Research for the Department of Otolaryngology-Head and Neck Surgery in at University of Arkansas for Medical Sciences (UAMS).
She has a Bachelor of Science in biochemistry from the Texas A&M University in College Station. She has an M.D./Ph.D. in molecular and cellular biology and pathobiology from the Medical University of South Carolina in Charleston. She completed an internship in general surgery and a surgery residency in otolaryngology-head and neck surgery, both at UAMS.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
Kimberly Scott
(), Arkansas Department of Health, Kimberly.McCray-Scott@arkansas.gov;
Kim Scott has worked with the Arkansas Department of Health since 2008 serving in roles as a Public Health Educator, Infant Hearing Program Manager, and Child Health Section Chief. Through this work, Kim has facilitated program management, grant management, monitoring continuous quality improvement and served as the Child Health Domain Lead for the Title V Maternal and Child Health program. Kim has worked with the Arkansas early hearing detection and intervention (EHDI) program since 2015, serving as the State EHDI Coordinator and participating in various stakeholder groups such as the State Interagency Coordinating Council. She is a Certified Health Education Specialist and a graduate of Arkansas State University with a Bachelor of Science in Exercise Science and a Master of Science in Health Sciences.
ASHA DISCLOSURE:
Financial -
• Receives Salary for Employment from Arkansas Department of Health.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
Financial relationship with Arkansas Department of Health.
Nature: Child Health Section Chief is responsible for managing the Infant Hearing Program, which serves as the state EHDI program.
Nonfinancial -
No relevant nonfinancial relationship exists.
Charia Hall
(), University of Arkansas Medical Sciences, chall@uams.edu;
Charia Hall, Au.D., CCC-A, is an assistant professor and Audiology Clinical Education Director in the Department of Audiology and Speech Pathology at the University of Arkansas for Medical Sciences. Before UAMS, she worked for 5 years in a pediatric and educational audiology setting, where she gained experience in improving educational outcomes of children with hearing loss and assistive technology. Her areas of interest include early intervention, educational advocacy, assistive technology, and central auditory processing disorders.
ASHA DISCLOSURE:
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Nonfinancial -
AAA DISCLOSURE:
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Nonfinancial -
Mandy Jay
(), NCHAM, mandycrowjay@gmail.com;
NCHAM Program coordinator and parent of three, two of whom are deaf.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
Angelina Myers
(), Arkansas Hands & Voices, angelina.gbys@arhandsandvoices.org;
GuideBy Your Side
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
Financial relationship with AR Hands & Voices.
Nature: TRI Grant to understand the barriers for loss to follow up in AR.
Nonfinancial -
No relevant nonfinancial relationship exists.
Liana Robbins
(), Arkansas Hands & Voices, lianar@arhandsandvoices.org;
Arkansas Hands & Voices
ASHA DISCLOSURE:
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Nonfinancial -
AAA DISCLOSURE:
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Nonfinancial -
Rachel Glade
(), University of Arkansas, rglade@uark.edu;
Rachel Glade is a clinical assistant professor as well as a speech language pathologist and LSLS Certified Auditory-Verbal Therapist at the University of Arkansas. She provides clinical training and teaches both graduate and undergraduate courses at the U of A. Her research interests include pre-professional preparation, adult aural rehabilitation, cochlear implantation, transition to work/school for adolescents with hearing loss and family involvement in the intervention process.
ASHA DISCLOSURE:
Financial -
• Receives Salary,Grants for Employment,Teaching and speaking from University of Arkansas.
Nonfinancial -
• Has a Personal
relationship for Board membership.
AAA DISCLOSURE:
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Nonfinancial -
Nidhi Patel
(), Arkansas Department of Health, Nidhi.Patel@arkansas.gov;
I’m an Outreach Coordinator for Infant Hearing Program in Arkansas Department of Health. I graduated from University of Central Arkansas (UCA) in May 2022 with a bachelor’s degree in Health Promotion and currently in Master Program of Health Promotion at UCA. In this position, I’m responsible for performing follow-up actions with parents and healthcare providers, assuring quality outputs measures, outreach, and developing educational materials for families, providers, and birthing hospital. As an outreach coordinator responsibility included increases program awareness through media campaign activities, social media, conducting workshops, training, building new partnerships to improve compliances and identifying new stakeholders and opportunities for collaboration.
ASHA DISCLOSURE:
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Nonfinancial -
AAA DISCLOSURE:
Financial -
Nonfinancial -