2023 Early Hearing Detection & Intervention Conference
March 5-7, 2023 • Cincinnati, OH
DUKE ENERGY CONVENTION CENTER
3/07/2023 | 2:15 PM - 2:45 PM | Additional Supports for Deaf Plus Families | DECC 230/231
Additional Supports for Deaf Plus Families
Perspective from a parent professional on what additional supports are available to families with infants who are deaf or hard of hearing with additional medical or developmental needs. I cannot forget the shock on some of the faces of medical, therapeutic and educational providers for my daughter in her first years. I quickly began hiding our needs so as not to overwhelm her providers. Now, as a Parent Guide with Nevada Hands & Voices, I work hard to make sure that no family ever hides the reality of their challenges. What can providers do to allow families to be authentic? What additional supports are available to early intervention and medical teams to support families in their journey? I will share some resources that have helped our family and make suggestions on how to be sensitive towards families with medically complex infants.
- Participants will be able to describe 2 unique needs of families with infants who have medical needs
- Participants will be able to identify 3 sources of support for families of infants who are Deaf Plus
- Participants will be able to locate 2 state/local providers of diagnosis specific support for families.
Presentation:
3420032_15628PenniEchols.pdf
Handouts:
3420032_15628PenniEchols.pdf
3420032_15628PenniEchols_1.pdf
Transcripts:
3420032_15628PenniEchols.docx
Presenters/Authors
Penni Echols
(), Nevada Hands & Voices, CHARGE Syndrome Foundation, penni.echols@gmail.com;
Penni Echols is the Guide By Your Side Coordinator for Nevada Hands & Voices. She has been employed as an Educational Advocate since 2020 and a Parent Guide since 2021. She passionately believes that every child can communicate when they have the right support and a willing partner. She is a graduate of the Hands & Voices Leadership to Leadership program and volunteers as one of the moderators in the H&V DHH Plus Parent Support Facebook community. In addition, she volunteers as a member of the Board of Directors for the CHARGE Syndrome Foundation and as a Member of the Nevada Department of Education’s Special Education Advisory Committee. Penni and her husband Micah live in Las Vegas, Nevada with their six daughters. Their youngest, Martha was born in 2014 with CHARGE syndrome and is deafblind with additional medical needs.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
Financial relationship with Nevada Hands & Voices.
Nature: .
Nonfinancial -
No relevant nonfinancial relationship exists.