2023 Early Hearing Detection & Intervention Conference
March 5-7, 2023 • Cincinnati, OH
DUKE ENERGY CONVENTION CENTER
CHARGE Syndrome Foundation Liaisons: Local Support, National Strength
Newly diagnosed families can connect with CHARGE Syndrome Foundation Liaisons for local level support. The Liaison Project is a model of collaboration to improve the Foundation’s outreach to both families and professionals at the national level. Liaisons build relationships, network, collaborate and disseminate information. They are asked to share the latest CHARGE resources with the State Deaf-Blind Projects and the families. They assist in helping both the Foundation and the State Projects in identifying families. They update the Foundation on available state resources and help families access the resources of the Foundation. Through our annual Walk & Roll for CHARGE, they promote connections among the CHARGE families in their state.
- Participants will identify the CHARGE Syndrome liaison assigned to their local area.
- Participants will recall two services provided by the CHARGE Syndrome Foundation
- Participants will be able to explain two unique supports available from CSF Liaisons
Poster:
3420032_15656PenniEchols.pdf
Presenter: Penni Echols
Penni Echols is the Guide By Your Side Coordinator for Nevada Hands & Voices. She has been employed as an Educational Advocate since 2020 and a Parent Guide since 2021. She passionately believes that every child can communicate when they have the right support and a willing partner. She is a graduate of the Hands & Voices Leadership to Leadership program and volunteers as one of the moderators in the H&V DHH Plus Parent Support Facebook community. In addition, she volunteers as a member of the Board of Directors for the CHARGE Syndrome Foundation and as a Member of the Nevada Department of Education’s Special Education Advisory Committee. Penni and her husband Micah live in Las Vegas, Nevada with their six daughters. Their youngest, Martha was born in 2014 with CHARGE syndrome and is deafblind with additional medical needs.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.