18th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 3-5, 2019 • Chicago, IL

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 Parent Perspectives-A Valuable Part of the EHDI Process

For parents of babies who refer on their hearing screening, there is an anxiety inducing gap between initial screening and identification; many say that it seems like an eternity when waiting for their baby’s next audiology appointment. Medical professionals strive to do what is best for each family, but they may not realize that certain words like “failed” can increase parental anxiety about the results. When results are minimized, it can cause delays in the follow-up process. Parents benefit when professionals use positive language and communicate results in a factual way. Simple changes in the script and the demeanor of medical professionals who communicate newborn hearing screening results to parents is needed. Many parents have stated that their earliest frustrations were the way the results of the newborn hearing screening were communicated to them. One parent who attended the EHDI annual meeting observed that parents from many different states shared almost identical experiences and frustrations while in the hospital with their new baby. NE-EHDI and NE-GBYS have partnered with Nebraska parents to develop a parent perspectives video that will be incorporated into a new training curriculum for medical professionals. By helping these professionals understand what it’s like to be on the receiving end of refer results, we are hoping to change the way families are prepared as they begin navigating their next steps. Once the video is completed, NE-EHDI will pilot the video presentation and newly developed educational cards with one hospital to determine the effectiveness of the parent’s message. This poster will focus on the process of producing the video and cards, as well as the impact it has on hospital staff. Once the training is rolled out, NE-EHDI will implement a Hospital Champion Program to recognize Nebraska birth hospitals who incorporate needed changes into their policies and procedures.

  • Parent Perspectives
  • Medical Professional Training
  • Family Engagement

Poster:
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Presenter: MeLissa Butler

MeLissa Butler has been with the Nebraska Early Hearing Detection and Intervention Program since April, 2011, and serves as Community Health Educator Senior. She earned a Bachelor of Science in Business Administration/Technical Studies from Bellevue University. MeLissa’s training includes Evidence Based Public Health-A Course in Chronic Disease Prevention; American Sign Language; Genetics and Hearing Loss for EHDI Professionals; ASTra Family Support training; and she is a Lean Six Sigma Yellow Belt.


ASHA DISCLOSURE:

Financial -
No relevant financial relationship exist.

Nonfinancial -
No relevant nonfinancial relationship exist.