18th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 3-5, 2019 • Chicago, IL
Improving Electronic Early Intervention Enrollment Reporting to RIEHDI
Rhode Island EHDI works closely with Early Intervention to ensure that infants diagnosed with hearing loss are enrolled in Early Intervention. Rhode Island’s EHDI Information System (EHDI-IS) includes KIDSNET, an integrated data system that links several newborn and early childhood preventive screening services including EHDI and Early Intervention. Electronic reporting of Early Intervention enrollment to KIDSNET helps RIEHDI track EI enrollment. To comply with federal privacy regulations (FERPA), parent consent is required for EI to send enrollment information to KIDSNET. Initial data analysis of children enrolled in EI during FY2018 revealed that 86% of parents gave consent, 9% declined consent, and 5% were missing consent according to the EI database. The consent process was mapped to evaluate opportunities for improvement. As a result, a new data quality report was developed for EI sites to identify children who are missing consent and implemented in April 2018. Half of the missing data were identified to be data entry omissions, while the other half were related to difficulties gaining consent for children in foster care. In addition, data were analyzed to identify EI sites with higher levels of declined consent. The EI management team worked with those sites to review the protocol and discuss barriers to consent. Analysis of data following completion will reveal the success of these quality improvement activities.
- Participants will be able to identify barriers to collecting consent to share EI data with EHDI
- Participants will be able to develop quality improvement activities to reduce barriers to consent and EI data sharing
- Participants will be able to adapt the Early Intervention quality improvement process for their state
Poster:
18878_10408EllenAmore.pdf
Presenter: Ellen Amore
Ellen Amore is currently Deputy Director of the Center for Health Data and Analysis and Manager of KIDSNET, Rhode Island’s integrated child health information system that contains preventive health care information for Rhode Island children. She is PI on the CDC EHDI Cooperative Agreement. Other programs at the Rhode Island Department of Health that she has managed include Newborn Hearing Screening, Newborn Bloodspot Screening, Newborn Developmental Risk Assessment and home visiting. Her education includes a BA in Human Biology, with a concentration in child development, from Stanford University, and an MS in Maternal and Child Health from the Harvard School of Public Health.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Jennifer is Chief, Family Health Systems at the Rhode Island Executive Office of Health and Human Services. This includes her role as Early Intervention, Part C Coordinator for the state.
ASHA DISCLOSURE:
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Nonfinancial -
Christine is the Early Intervention data manager for the State of Rhode Island.
ASHA DISCLOSURE:
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Nonfinancial -
Catherine is the KIDSNET data manager, responsible for Early Intervention data.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Liza is currently the manager for the Newborn Hearing Screening program and is the EHDI coordinator for Rhode Island. Liza provides oversight for the project and coordinate with other relevant statewide efforts. She previously worked as a parent consultant, and a Community Liaison for RIDOH’s Women, Infant and Children (WIC) Program. Dr. Then is fluent in written and spoken Spanish.
ASHA DISCLOSURE:
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Sara Franklin, Au.D, is the Program Coordinator for the Rhode Island Early Hearing Detection and Intervention program. Her duties include developing and managing the clinical components of the hospital and state-wide RI-EHDI program for infants. She interprets hearing screenings conducted throughout the state, provides patient referral sources and coordinates audiology networks. She oversees staff as well as technical staff at screening sites throughout the state of Rhode Island. She coordinates research activities and interfaces with statewide agencies such as Department of Health, Early Intervention, Newborn Screening Task Force, EHDI and Kidsnet. Prior to her position she was a clinical audiologist in the Department of Audiology at Memorial Hospital of Rhode Island supervising the hearing screening staff, diagnosing and managing hearing loss in the pediatric and geriatric populations .
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.