18th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 3-5, 2019 • Chicago, IL
3/04/2019 | 11:45 AM - 12:15 PM | It takes a Team: Interdisciplinary Approaches to Improving Outcomes for Deaf/Hard of Hearing Children | DaVinci A/B
It takes a Team: Interdisciplinary Approaches to Improving Outcomes for Deaf/Hard of Hearing Children
In a recent Pediatrics study, it is reported that of participating EHDI programs only one-half to two-thirds of children are achieving 1-3-6 (newborn screening by 1 month of age, diagnostic identification by 3 months of age, and early intervention enrollment by 6 months of age) goals. A team approach that includes newborn screening personnel, audiologists, early interventionists, pediatricians, and state-level EHDI programs is encouraged (Yoshinaga-Itano et al., 2017). In this presentation we explore professional collaborations with EHDI programs and the families they serve. The effect of using a multi-faceted, interdisciplinary, team approach, on lost to follow up to diagnosis rates will be discussed. Additional examples will be discussed.
To further promote collaboration, a visual representation of a family’s journey has been created. This resource tree directly connects the professionals who impact the family and helps them navigate their child’s hearing loss journey. This illustration can be used as a tool to discuss resources and services that are available to support the family. Early interventionists can use this tool to foster communication, to enlist services, to develop IFSP and IEP plans, and to consider different resources at different developmental stages. As the tree grows, and the child’s needs change, the leaves (resources) can change too. This tool, From The Roots Up: A Family’s Journey through Hearing Loss-related Services, is proposed to help foster communication and support the family in various stages of the child’s development.
These efforts are designed to foster collaboration and further engage families in efforts to improve the lives of children with hearing loss and the families who love and support them.
- Define EHDI partnerships with professionals and families
- Describe successful collaboration leading to improved systems of care
- Obtain visual representation of a family-centered tool to further foster collaboration with and among professionals
Presentation:
18878_10443JenniferFleming.pdf
Handouts:
18878_10443JenniferFleming.pdf
Transcripts:
18878_10443SarahStone.docx
Presenters/Authors
Sarah Stone
(), MA Dept. of Public Health, sarah.stone@state.ma.us;
Sarah Stone is the Director of the Massachusetts Universal Newborn Hearing Screening Program. She has a hearing loss and has been with the program for over 20 years. She has developed programming for families, including social and educational events. She is a member of the state's Universal Newborn Hearing Screening Advisory Committee.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Jennifer Fleming
(), MA DPH, jennifer.fleming@state.ma.us;
Jennifer Fleming is the special projects coordinator for the Universal Newborn Hearing Screening Program. In her former career, she was an engineer working in the medical device industry. She now has two children including a 13-year-old son who is deaf. Her new passion is to serve and support deaf and hard of hearing children and their families. She is a member of the state's Universal Newborn Hearing Screening Advisory Committee. She recently completed her fellowship with the Shriver Center’s Leadership Education in Neurodevelopmental and Disabilities Program (LEND) at the University of Massachusetts Medical School.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.