18th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 3-5, 2019 • Chicago, IL
Parent and Professional Perspectives on Ohio’s Early Intervention System for Families with Children who are Deaf or Hard of Hearing: A Community Collaborative Approach to Change
Each family’s EHDI journey is nested within a network of professionals who are committed to children’s hearing heath, including birthing hospitals, pediatric otolaryngologists and audiologists, speech-language pathologists, deaf educators, state and local agencies, and other early intervention providers. Despite the available resources, some families find navigating this system to be overwhelming or cumbersome. The Children’s Hearing and Language Development Resource Network [CHLDRN] of Ohio emerged as a statewide grassroots community collaborative initiative to help facilitate the family journey. With a tiered leadership approach, a steering committee partnered with a core group of diverse stakeholders of parents, providers, researchers, and state agency representatives to embark on a discovery period (August 2017-August 2018) that utilized qualitative and quantitative measures to assess the current landscape of early intervention in Ohio. Participating stakeholders hosted facilitated focus groups for parents and professionals (separately) in Toledo, Columbus, Cincinnati, and Cleveland; an online option was utilized to reach the southeast region. Data from an online survey adapted from NCHAM’s EI SNAPSHOT project complemented the information gathered from the open-ended focus group questions. From these data sources, including insights from participating stakeholders themselves and a review group, several themes emerged. These themes were then systematically prioritized by the core group, narrowing our focus on opportunities for meaningful and sustainable parent-to-parent interactions as well as on parent and provider access to comprehensive, evidence-based information about options and resources. CHLDRN of OH is currently delving deeper into these two areas and helping forge a collaborative path forward. We believe that taking action together as a community of stakeholders will create shared knowledge and understanding and will build stronger connections among the parents and professionals who embody the EHDI journey.
- Identify key components of a community collaborative
- Describe potential barriers that impede the JCIH’s 1-3-6 timeline
- Examine opportunities for collaboration in one's own communities to bolster early intervention
Poster:
This presentation has not yet been uploaded.
Presenter: Jessa Reed
Jessa Reed earned her Ph.D. in developmental psychology from Temple University after graduating cum laude from Cornell University. She currently is a postdoctoral researcher at The Ohio State University, where she studies the language development of children who are deaf or hard of hearing. She is particularly interested in applied research that can translate into policy and practice.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Cheryl DeConde Johnson, Ed.D., provides consulting services for educational audiology and deaf education specializing in program evaluation and development and state deaf education service delivery and accountability systems through her practice, The ADE vantage. Previously she provided technical assistance and leadership in audiology and deaf education as a state consultant with the Colorado Department of Education. Cheryl has also been employed as a school-based audiologist, an early intervention provider, and a coordinator of a public school program serving deaf and hard of hearing students. She currently holds adjunct faculty appointments at the University of Arizona and Salus University. Cheryl is a co-founder and member of the Board of Directors for Hands & Voices. Cheryl has many publications including co-author of the Educational Audiology Handbook, 3rd Ed., and provides workshops and consultation worldwide.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
Derek M. Houston, PhD, received his doctorate in cognitive psychology from Johns Hopkins University in 2000, focusing on how typically developing infants segment words from fluent speech and recognize words across different talkers. After graduating, he constructed the world's first laboratory to investigate the speech perception and language skills of deaf infants who receive cochlear implants at Indiana University. Since then, his work (supported by NIDCD) has investigated the role of early auditory experience and parent-child interactions on cognitive, linguistic, and social building blocks of language development. He also engages in community-based participatory research aimed at addressing barriers families face in obtaining high-quality early intervention services for their children.
ASHA DISCLOSURE:
Financial -
• Receives Grants for Independent contractor from Oberkotter Foundation.
Nonfinancial -
No relevant nonfinancial relationship exist.
Maria Sentelik is the Executive Director of Ohio Valley Voices. Ms. Sentelik earned her Master’s of Science in Audiology from the University of Utah and is ABD PhD in Audiology from the University of Cincinnati. Ms. Sentelik has been working with children with hearing loss for over 20 years. She has presented in Ohio and nationally in the areas of language development of children with hearing loss, pediatric audiology, cochlear implants and listening skills of children with cochlear implants. Ms. Sentelik has conducted research and taught courses in the area of childhood deafness.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
Carrie Spangler, AuD, CCC-A is the lead educational audiologist at the Summit Educational Service Center in Ohio and has been providing educational audiology services for 23 years. She has a personal journey growing up with hearing loss and uses a hearing aid and cochlear implant. She has presented and published in areas related to school-based services both nationally and internationally. Her areas of interest include educational audiology, teens, peer supports, advocacy, and humanitarian audiology. Dr. Spangler has a blog, hearingspanglish.blog and is the host of the empowEAR Audiology Podcast. In 2021 she received the Fred Berg Award from EAA and the ASHA Fellow Award. In 2022, she received the Kathe Shelby Leadership Award from Ohio Department of Education. Dr. Spangler also serves on the Ohio Speech and Hearing Professionals Board as board secretary and on the ASHA Sig 9 Coordinating Committee.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
Wendy Steuerwald, AuD, is the Director of Audiology at Phoenix Children’s Hospital. She works with hospital leadership and audiologists to create an environment where exceptional patient care is the norm. This includes use of evidence based practice, process improvement initiatives, expansion of services offered, the addition of new locations, and hiring the best audiologists. Wendy’s overall focus is to improve the patient’s experience within audiology while providing evidence based care. Professional leadership includes committee work with the American Academy of Audiology, American Speech Language Hearing Association, and multiple state organizations. Wendy also has numerous presentations and publications. Local committee work includes participation in the interdisciplinary Stop CMV AZ partnership.
ASHA DISCLOSURE:
Financial -
Nonfinancial -