18th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 3-5, 2019 • Chicago, IL
Engaging Families through the CARE Project: Family Weekend Retreat Program Evaluation
The overall goal of the CARE Project Family Retreat
endeavor was to develop a replicable model
demonstrating how EHDI programs can engage
families, focusing on early involvement and education of parents as a critical “next step” in providing a comprehensive, seamless system of service delivery to families of children birth to three. The CARE Project Family Retreat was developed and implemented as a weekend workshop for families of children recently
identified as deaf or hard of hearing in two states as a pilot project. A program evaluation based on the
conceptual model of parent-to-parent support described by Henderson et al., (2016) was used as a framework. The aim of this program evaluation was to assess the impact of The CARE Project family retreat on family and child well-being, knowledge, and empowerment with families of children who have been recently diagnosed
as deaf or hard of hearing. The program evaluation tools were designed as pre-post questionnaires with a satisfaction survey included on the post-retreat form. Data analysis consisted of the comparison of pre-retreat responses and the post-retreat satisfaction responses for learning family members as well as for teaching parent volunteers. Data is presented in the aggregate for four
states and include summary statistics (e.g., means,
variability, proportions). Next steps for the project
development are detailed. Implications for future activities designed to provide parent-to-parent intervention and support are detailed.
- Identify the features of the Henderson et al., (2014) Revised Conceptual Framework of Parent to Parent Support designed for families of children with hearing loss
- Relate features of the pre-/post- intervention survey tool to the revised parent-to-parent support conceptual framework
- Identify three types of family support activities and/or interventions appropriate for use with the Parent-To-Parent Support Survey
Poster:
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Presenter: Nannette Nicholson
Nannette Nicholson is a Professor at Nova Southeastern University in Ft. Lauderdale, FL. Her areas of interest include early hearing detection and intervention systems, pediatric audiology, and family support. She currently teaches counseling, pediatric aural rehabilitation, and research methods. Dr. Nicholson has served as a reviewer for the Journal of Early Hearing Detection and Intervention (JEHDI) and is an active member of the ASHA Committee on Clinical Research, Implementation Science, and Evidence-Based Practice.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Patti Martin, Ph.D., is the Director of Audiology and Speech Language Pathology at Arkansas Children’s Hospital (ACH). Her areas of expertise include infant screening/assessment, family support and program development. Her efforts with infant hearing screening began with a collaboration project to investigate the efficacy of TEOAEs as a newborn screening tool in the early 1990s and continue through her work on the board of the American Speech-Language-Hearing Association Special Interest Division on Childhood Hearing Disorders and as a Consultant for NCHAM. Dr. Martin’s ongoing passion centers around how professionals can help support families in improving the outcomes of children with hearing loss.
ASHA DISCLOSURE:
Financial -
• Receives Consulting fee for Consulting from NCHAM.
• Receives Grants for Other activities from Oberkotter Foundation.
• Receives Consulting fee for Independent contractor from The Care Project.
Nonfinancial -
• Has a Professional (supporter)
relationship for Other volunteer activities.
Johnnie Sexton Au.D. has worked with children who are deaf and hard of hearing for 40+ years. With the passage of the Newborn Hearing Screening mandate in North Carolina, he designed the early intervention system for audiology in North Carolina. He has devoted his energy in the past 8 years to redefining counseling for families with children who have hearing challenges and the professionals who provide services for them. He owns a private practice specializing in educational audiology services and has established the nonprofit agency, The CARE Project, Inc., serving as Executive Director, for the advancement of family, professional and preprofessional training opportunities in counseling.
ASHA DISCLOSURE:
Financial -
• Receives Intellectual property rights for Teaching and speaking,Consulting from The CARE Project.
Nonfinancial -
• Has a Other relationship (Founder)
relationship for Other volunteer activities.