18th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 3-5, 2019 • Chicago, IL
3/05/2012 | 2:00 PM - 3:00 PM | Collaboration: How to Provide Effective Parent Support Through Collaboration | Grand Ballroom B | 6
Collaboration: How to Provide Effective Parent Support Through Collaboration
We all know that parent support is key to successful intervention for families with children with hearing loss. But how do we get there? What key players do we invite to the table? How do we create a budget? Who writes the grants? Who provides the trainings and creates the parent support program? How do you mold parent volunteers into parent professionals? Who takes care of paychecks and hiring and unfortunately firing? We will walk you through one example of how we made it work in Illinois!
- Attendees will learn how to gather key players around the table to establish a collaborative workgroup that will result in a successful parent support program for their state.
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Presenters/Authors
Ginger Mullin
(Co-Presenter), Illinois EHDI, gk520@hotmail.com;
Dr. Mullin is the Illinois Coordinator of the EHID Program. Instrumental in the development and funding of the state's parent to parent program, she is a strong supporter of ensuring that parents receive the support that they need while on their journey of raising a child with hearing loss.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
Karen Aguilar
(POC,Primary Presenter), Chicago Hearing Society, KAguilar@anixter.org;
Karen Aguilar is the VP of Communication Access at the Chicago Hearing Society, a division of Anixter Center, that provides social services and advocacy, youth programing and mentoring, a hearing health clinic and interpreter referral service throughout Illinois. CHS houses the Youth and Family Connections Program and Deaf Mentor Program. Ms. Aguilar's past work includes creating a center based early intervention program for families and providing developmental therapy, service coordination and family support. Ms. Aguilar has a Masters of Jurisprudence in Health Law from Loyola University Chicago School of Law and has trained the legal community on the rights of persons who are deaf or hard of hearing, and educated the Deaf Community about their rights under state and federal laws. Ms. Aguilar has been signing since childhood and is a nationally-certified state-licensed sign language interpreter.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
Andrea Marwah
(Co-Presenter), IL School for the Deaf Outreach, andrea.marwah@illinois.gov;
Andrea Marwah received her B.A. in Psychology from North Central College. Since her daughter’s diagnosis of hearing loss in 2002, Andrea has devoted her career to educating parents and professionals about the ADA, IDEA, and effective advocacy for students who are deaf or hard of hearing. She is a sought-after presenter both locally and nationally, speaking on topics such as special education rights and advocacy, the impact of deafness and hearing loss (especially when combined with other disabilities), socialization and Theory of Mind, and best practices for supporting children who are deaf or hard of hearing. Andrea currently works for the Illinois Department of Human Services – Illinois School for the Deaf as an outreach trainer and consultant for families and professionals serving children who are deaf, hard of hearing, blind, visually impaired, or deaf-blind. She also serves as a parent advocate, helping Illinois families secure appropriate educational supports and services for their children, and collaborates closely with the Illinois Early Hearing Detection and Intervention (IL EHDI) Program. In addition, Andrea lead the Illinois chapter of Hands & Voice for 16 years. She continues her work with the organization as the IDEA Liaison for the Guide By Your Side Program, providing unbiased information, one-on-one advocacy, and IDEA support to families. She is also a national trainer for the Hands & Voices ASTra Program, a member of the Hands & Voices Speakers Bureau and a member of COPAA (Council of Parent Advocates and Attorneys). Andrea serves on numerous local and national committees and previously completed six years of service on the Advisory Commission on Disabilities in her hometown of Naperville, Illinois. She lives there with her husband, Ajay, and they are the proud parents of three young adult children—Samantha, Julia, and Andrew.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Carrie Balian
(Co-Presenter), IL Hands & Voices Guide By Your Side, IL School for the Deaf, ilhvgbys@gmail.com;
Carrie Balian is the mother of five children. Her oldest, Jack, was born deaf. Carrie and her family reside in Island Lake, IL. She is the Coordinator of the Guide By Your Side program in Illinois. Carrie has presented to groups nationwide and co-authored several publications including the NCHAM e-book. Carrie has served or is currently serving as a board member for the Illinois Genetic & Metabolic Diseases Advisory Council, , an editor for the JEHDI publication and participated on the Illinois Universal Newborn Hearing & Screening Advisory Board and Illinois Deaf Task Force. She also participated as a parent professional on the NICHQ national and statewide learning collaborative teams. Carrie has been recognized and awarded both nationally and locally for her support, commitment and leadership in the field. Her educational background includes a Bachelor’s degree in Marketing and Management.
ASHA DISCLOSURE:
Financial -
Nonfinancial -