18th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 3-5, 2019 • Chicago, IL
3/06/2012 | 9:40 AM - 10:40 AM | Family Advisory Boards: Making them Meaningful | Grand Ballroom A | 6
Family Advisory Boards: Making them Meaningful
Family Involvement comes in many forms. Contributions from individual parent leaders, Family organizations, and Family Advisory Boards are a few examples of how family input is received in different aspects of the EHDI system. This session will focus primarily on the function and dynamic process of ‘Advisory Boards’, and share elements from a few models of family involvement including:
1. The NCHAM Family Advisory Board
2. The NICHQ Parent Faculty Chair Position
3. The Deaf/Hard of Hearing Alliance (DHHA)
4. The National Center for Cultural Competency Parent Consultant Position
While active Family Involvement is a principle that is often put forth as a necessity, actual meaningful participation requires conditions in which parent perspective can be introduced and acted upon. This session will demonstrate dynamic, often ‘outside the box’ participation by individuals, groups, and organizations with examples of organizational change that has been implemented as a result. Basic strategies will be shared, including how to engage families when certain challenges exist, including: Availability of time constraints, ensuring diverse perspectives, pros and cons of funded vs. unfunded positions etc.
- 1. Identify the major functions of Family Advisory Boards in developing collaborative partnerships 2. Learn about different elements family members can contribute to Grants, National Centers, Committees and other venues for Family involvement 3. Determine ways to strengthen partnerships among EHDI and Family organizations
Presentation:
This presentation has not yet been uploaded.
Handouts:
Handout is not Available
Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Stephanie Olson
(), Children's Hospital Colorado, stephanie.olson@childrenscolorado.org;
Stephanie Olson, B.A., is the Family Consultant for the Bill Daniels Center for Children’s Hearing at Children’s Hospital, Colorado. Stephanie has been in this position for 18 years and serves as a liaison between families and the audiology health care system. Previously she worked with families and children from birth to three through the Colorado Home Intervention Program and for Hands and Voices Headquarters.
Stephanie has traveled to Northern China, London, South Africa, Brazil and New Zealand and St. Petersburg, Russia, and FCEI Austria- Family Centered Early Intervention in 2012, 2014, 2016, 2018 and 2022. Stephanie’s passion is to increase the understanding and impact of deaf and hard of hearing individuals in the parenting journey and with the professionals who work with those families. Stephanie was identified deaf/hard of hearing at the age of three and brings a variety of perspectives into her work and presentations.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exist.
Nonfinancial -
No relevant nonfinancial relationship exist.
Trish Thomas
(Co-Presenter), Nt'l Center for Family-Professional Partnerships, tthomas@familyvoices.org;
Trish has been a leader in the field of family-professional partnerships, serving as the coordinator for the New Mexico Family Voices chapter and later as the partnerships coordinator at National Family Voices. Trish has a son with hearing loss, and advocating for hearing-related needs is a particular passion.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
Cheri Dowling
(Co-Presenter), American Society for Deaf Children, cad800@aol.com;
Cheri Dowling is the Executive Director of The American Society for Deaf Children (ASDC). She is the parent of a child who is deaf, and lives in Maryland.
ASHA DISCLOSURE:
Financial -
Nonfinancial -