2024 Early Hearing Detection & Intervention Conference

March 17-19, 2024 • Denver, CO

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  |  EHDI Long-term follow-up: Electronic health record abstraction to assess hearing care and well-child visit attendance during the 4th year of life.

EHDI Long-term follow-up: Electronic health record abstraction to assess hearing care and well-child visit attendance during the 4th year of life.

Regular primary and hearing care are important for maintaining and identifying changes in health for children who are deaf or hard of hearing (DHH). The American Academy of Pediatrics recommends that children have well-child visits (WCV) annually beginning at age 3. For children who use hearing technology, regular hearing care is necessary to ensure the technology is working well. As part of a quality improvement project, we attempted to abstract healthcare visit information from electronic health records (EHRs) in order to assess whether children who are DHH received primary and hearing care between ages 3 and 4 years. This project included children who were identified as DHH through Minnesota newborn hearing screening. In this presentation we will discuss our efforts to align newborn screening longitudinal follow-up data collection across conditions identified by newborn screening. We will discuss EHR abstraction as a tool for obtaining WCV and hearing care dates, including challenges like data completeness affected by lack of access to smaller health systems and independent pediatric and audiology clinics. Future quality improvement efforts will focus on obtaining more complete data through attempting to expand EHR access to additional clinics, exploring the feasibility of using medical records requests to supplement data obtained through EHR abstraction, and assessing inequities in health care utilization. This project was supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under grant number UG8MC31893 to the Association of Public Health Laboratories (APHL) for the Newborn Screening Data Repository and Technical Assistance Center which provided $100,000 during the fiscal year. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS, the U.S. Government or APHL.

  • Participants can describe QI steps to align common data elements across NBS conditions
  • Participants can list barriers to successful electronic health records abstraction
  • Participants can describe ways to improve data completeness.

Presentation:
3478265_16280SaraLammert.pdf

Handouts:
Handout is not Available

Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference


Presenters/Authors

Sara Lammert (Primary Presenter), Minnesota Department of Health, sara.lammert@state.mn.us;
Sara is an epidemiologist, focusing on longitudinal follow-up of children who are deaf and hard of hearing.


ASHA DISCLOSURE:

Financial -
No relevant financial relationship exists.

Nonfinancial -
No relevant nonfinancial relationship exists.

AAA DISCLOSURE:

Financial -
No relevant financial relationship exists.

Nonfinancial -
No relevant nonfinancial relationship exists.

Venessa Heiland (Co-Presenter), Minnesota Department of Health, venessa.heiland@state.mn.us;
Venessa Heiland, RHIT, is a health program representative working with long-term follow-up after a child is identified as deaf or hard of hearing. She is experienced in EHR abstraction.


ASHA DISCLOSURE:

Financial -
No relevant financial relationship exists.

Nonfinancial -
No relevant nonfinancial relationship exists.

AAA DISCLOSURE:

Financial -
Financial relationship with MN Dept of Health.
Nature: Employer .

Nonfinancial -
No relevant nonfinancial relationship exists.

Jennifer Hauser (Co-Presenter), Minnesota Department of Health, Jennifer.Hauser@state.mn.us;
Jennifer Hauser supervises the team at the Minnesota Department of Health that does longitudinal follow-up for conditions identified through the Minnesota newborn screening program.


ASHA DISCLOSURE:

Financial -
No relevant financial relationship exists.

Nonfinancial -
No relevant nonfinancial relationship exists.

AAA DISCLOSURE:

Financial -
No relevant financial relationship exists.

Nonfinancial -
No relevant nonfinancial relationship exists.

Bridget Walde (Co-Presenter), Minnesota Department of Health, bridget.walde@state.mn.us;
Bridget Walde is a Planner in the Longitudinal Follow-up Unit for the Minnesota Department of Health (MDH). She supports the work of the Early Hearing Detection and Intervention program and other projects related to long-term follow-up for newborn screening conditions. Prior to working for MDH, she worked for the Children’s Defense Fund supporting the implementation of culturally responsive afterschool programming. She also spent two years working in Guatemala with children and adults with disabilities. Bridget graduated from Saint Louis University in 2018 with her Master of Public Health and a concentration in maternal and child health.


ASHA DISCLOSURE:

Financial -
No relevant financial relationship exists.

Nonfinancial -
No relevant nonfinancial relationship exists.

AAA DISCLOSURE:

Financial -
No relevant financial relationship exists.

Nonfinancial -
No relevant nonfinancial relationship exists.

Lexie Barber (Co-Presenter), Minnesota Department of Health, lexie.barber@state.mn.us;
Lexie is an epidemiologist, working on longitudinal follow-up for children with newborn screening conditions.


ASHA DISCLOSURE:

Financial -
No relevant financial relationship exists.

Nonfinancial -
No relevant nonfinancial relationship exists.

AAA DISCLOSURE:

Financial -
No relevant financial relationship exists.

Nonfinancial -
No relevant nonfinancial relationship exists.

Darcia Dierking (Co-Presenter), Minnesota Department of Health, darcia.dierking@state.mn.us;
Darcia Dierking, Au.D. holds pediatric audiology specialty certification and has more than 20 years of clinical and research experience working with both children and adults. Dr. Dierking works with the Minnesota Department of Health Early Hearing Detection and Intervention program doing longitudinal follow-up for children who are deaf and hard of hearing.


ASHA DISCLOSURE:

Financial -
• Receives Salary for Employment from Minnesota Department of Health.

Nonfinancial -
No relevant nonfinancial relationship exists.

AAA DISCLOSURE:

Financial -
Financial relationship with Minnesota Department of Health.
Nature: Employment.

Nonfinancial -
No relevant nonfinancial relationship exists.

Kirsten Coverstone (Co-Presenter), MN Dept. of Health, Kirsten.Coverstone@state.mn.us ;
Kirsten Coverstone is an audiologist with many years of service dedicated to early hearing detection and intervention. She grew up in southern Minnesota, earned her masters degree from the Univ. of Northern Iowa and her doctorate from Salus University. Kirsten has actively worked at the local state and national levels to promote universal newborn screening for hearing. As coordinator of the Lions Infant Hearing Program at the University of Minnesota she worked directly with hospitals to establish effective hearing screening programs and audiologists to confirm hearing loss. In addition, Kirsten implemented a statewide hearing instrument loaner program for infants and young children in Minnesota. She is dedicated to making a difference in the lives of children and their families as the MDH EHDI Screening Program Coordinator.


ASHA DISCLOSURE:

Financial -
• Receives Grants for Other activities from Centers for Disease Control and Prevention.

Nonfinancial -
No relevant nonfinancial relationship exists.

AAA DISCLOSURE:

Financial -
Financial relationship with Centers for Disease Control and Prevention.
Nature: Cooperative Agreement - EHDI Grant.

Nonfinancial -
No relevant nonfinancial relationship exists.