2024 Early Hearing Detection & Intervention Conference

March 17-19, 2024 • Denver, CO

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  |  Comparison of results from the Hearing Screening & Follow-up Survey (HSFS) and Aggregated Individual Level Data (iEHDI) from 35 States, 2021?2022

Comparison of results from the Hearing Screening & Follow-up Survey (HSFS) and Aggregated Individual Level Data (iEHDI) from 35 States, 2021?2022

Since 2005, CDC has supported the collection of annual aggregate data from jurisdictional EHDI programs through the Hearing Screening & Follow-up Survey (HSFS). HSFS results aid in the evaluation of trends in hearing screening by 1 month, diagnostic evaluation by 3 months, and enrollment in early intervention (EI) services by 6 months - known as EHDI 1-3-6. HSFS is also used to identify potential gaps in EHDI program performance and to monitor national trends. However, limitations to HSFS include the inability to make inferences or assess sociodemographic variation due to the lack of individual-level information. Due to these limitations, CDC piloted an individual-level EHDI (iEHDI) surveillance system from 2011?2013 among three states, which was then expanded to 9 states in 2017?2019. Beginning in 2020, through a cooperative agreement, 39 jurisdictions were funded to report individual-level data to CDC on infants born in specified years. While both the HSFS and iEHDI are in place among these 39 states, little is known regarding the comparability between HSFS and aggregated iEHDI data. To ensure that CDC continues to provide the most accurate information about early hearing surveillance, aggregated iEHDI data on timely receipt of EHDI 1-3-6 services will be assessed and compared with time matched HSFS data. National and regional-level data comparisons will be presented for 2021 and 2022 births for 35 states with complete data in both years. This will provide insight into any major discrepancies occurring during data collection and processing, as well as a more complete understanding of the comparability of iEHDI and HSFS.

  • Participants will be able to describe differences between HSFS and iEHDI.
  • Participants will be able to interpret results from EHDI 1-3-6 quality measures from both HSFS and iEHDI.
  • Participants will identify benefits for monitoring progress in timely receipt of hearing screening, diagnostic evaluation, and EI referral using both iEHDI and HSFS.

Presentation:
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Transcripts:
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Presenters/Authors

Caitlin Loretan (Primary Presenter), Centers for Disease Control and Prevention, cloretan@cdc.gov;
Caitlin Loretan, MPH recently joined the CDC EHDI Team. Caitlin is a Health/Data Scientist with a background in epidemiology. As a member of the CDC EHDI Team, Caitlin is working on projects related to advancing data modernization efforts. Prior to joining the CDC EHDI Team, Caitlin worked as an Epidemiologist in the Office on Smoking and Health (CDC), where she focused her time on the National Youth Tobacco Survey and tobacco surveillance research.


ASHA DISCLOSURE:

Financial -
No relevant financial relationship exists.

Nonfinancial -
No relevant nonfinancial relationship exists.

AAA DISCLOSURE:

Financial -
No relevant financial relationship exists.

Nonfinancial -
No relevant nonfinancial relationship exists.

Suhana Ema (Co-Author), CENTERS FOR DISEASE CONTROL AND PREVENTION, vns0@cdc.gov;
Suhana Ema serves as an epidemiologist with the CDC EHDI Team. She is responsible for analyzing EHDI data and disseminating findings with jurisdictional EHDI programs and partners. She also provides technical assistance to jurisdictional EHDI programs to improve their program and tracking and surveillance work. She holds Master of Public Health degree from the University of Georgia. Suhana was born with severe to profound hearing loss on both ears and wears hearing aids. She is fluent in American Sign Language and lipreads well.


ASHA DISCLOSURE:

Financial -
No relevant financial relationship exists.

Nonfinancial -
No relevant nonfinancial relationship exists.

AAA DISCLOSURE:

Financial -
No relevant financial relationship exists.

Nonfinancial -
No relevant nonfinancial relationship exists.

Corey Lipton (Co-Author), Centers for Disease Control and Prevention, OOD1@CDC.GOV;
Corey Lipton is a Health Scientist on the CDC EHDI Team. She leads data management on the ODDACE project and assists with iEHDI data management and technical assistance. She received her Master of Public Health (MPH) degree with a concentration in biostatistics in May 2019 from Georgia State University. Prior to joining the EHDI team, she worked with Booz Allen Hamilton as a Health Statistician and as a fellow with the CDC. Her expertise involves data management, analysis, visualization, and communication of analysis findings.


ASHA DISCLOSURE:

Financial -
No relevant financial relationship exists.

Nonfinancial -
No relevant nonfinancial relationship exists.

AAA DISCLOSURE:

Financial -
No relevant financial relationship exists.

Nonfinancial -
No relevant nonfinancial relationship exists.

Erika Odom (Co-Author), Centers for Disease Control and Prevention, iyo7@cdc.gov;
CDR Erika Odom (Commander, United States Public Health Service) has spent 15 years shaping science and programs using a health equity perspective grounded in biopsychosocial frameworks in human development. She received her PhD in Applied Developmental Sciences from the University of North Carolina at Chapel Hill in 2008 and completed a post-doctoral fellowship at the Frank Porter Graham Child Development Institute, conducting research on maternal mental health and the association with various developmental outcomes for young children. CDR Odom joined the Centers for Disease Control and Prevention (CDC) in 2010 as an Epidemic Intelligence Service Officer where her work focused on promoting supportive environments for women who choose to breastfeed. She then went on the serve with the National Center for Birth Defects and Developmental Disabilities, honing skills in registry data collection, evaluation and translational research within populations living with blood disorders and that have been systematically marginalized in healthcare. From 2014-2023, CDR Odom served as an Epidemiologist in the Division for Heart Disease and Stroke Prevention. There she excelled in program management and developed subject matter expertise focused on the pre-hospital environment and improving the stroke and cardiac chain of survival. In her most recent tenure, she serves as the Team Lead for the Early Hearing Detection and Intervention Program, working with a team of passionate public health professionals, shaping the future of early hearing surveillance and data quality improvement.


ASHA DISCLOSURE:

Financial -
No relevant financial relationship exists.

Nonfinancial -
No relevant nonfinancial relationship exists.

AAA DISCLOSURE:

Financial -
Financial relationship with Centers for Disease Control and Prevention .
Nature: Employer and EHDI funder.

Nonfinancial -
No relevant nonfinancial relationship exists.